Hi , I am in my 8th month of a 2 year planned course of Lupron following Radiation Therapy .
Has anyone else completed a similar protocol ? I’d be interested to know how you have done .
Or , I would appreciate any information on the success of this type of plan .
Thanks ! Live long live strong !
What kind of a radiation dose did you get? Did it include the pelvic lymph nodes? Here's some info:
pcnrv.blogspot.com/2016/08/...
Wow ! A reply from Tall_Allen ! I feel like I just won a lottery ! ( I’m a big fan obviously ..... I think you bring so much knowledge and current , valid information to this site that benefits everyone!)
To answer your question .... I did get pelvic nodes radiated .... but I am embarrassed that I do not know the grays administered . ( slack of me ..... I know ) I am guessing the high 60s ...... that seems to be what I remember ) perhaps it was more ?
*blushing* And after that very nice compliment, I have to apologize - I sent the wrong article. I didn't understand from your post that this is SALVAGE RT you had. I just looked at your first post to understand your situation better - you had some positive pelvic LNs. So the following article covers your situation:
pcnrv.blogspot.com/2017/12/...
The duration of adjuvant ADT depends, in part, on the dose you received, so you should try to get copies of the treatment plan. The duration of ADT and the radiation dose are are inversely related to some degree. Some recent evidence suggests that the dose to the prostate bed is ideally around 70 Gy and the dose to the pelvic LNs should be at least 50 Gy. If your doses were less than those, I think it would be prudent to stay on the ADT longer.
I ve done RT only plus adt for 3years . Stopped Lupron 9-16 with orchiectomy. But still on test adt drug Tak -700 until failure. I believe this a fight for life and for the remainder of our lifes we will toil with it. It rarely just gives up. We deal with this harsh reality of APC by finding enjoyment in simple things. Be kind to yourself. I got bogged down in fear and self loathing. I seem to learn the hard way. You can save a lot of energy by avoiding anger. For me being cut from T gave me steroid rage in reverse. The upside i5 that I’m here and no Psa for now . I count my blessing and pray to god 5hat it does not return. Which truthfully it normally does. There is heavy psychology behind being stripped as a male. Hope that i5 goes well for you from here. Take care...
Nicely said, Lulu700. You may not ever be Cured of your disease, but you have very obviously been Healed in many ways. Thanks so much for being emotionally vulnerable and authentic, and sharing with all of us here.
Charles
I am work in progress. Coping with APC .
Thanks for your kindness. APC invokes heart ,body ,and soul. The flesh is weak. I’m working on the other two. .. we are mostly in the same camp. Us that carry APC can relate totally to each other... .We just bite the bullet on the pain and suffering. No PSA , that’s what we seek. Enjoy this weekend .Take care..
Go Nalakrats! That’s good results. Gives ...hope.. to me.. peace...
I was diagnosed in July 2012 with a metastasized (to bladder and pelvic lymph nodes) Gleason 9 prostate cancer. I went on ADT (Lupron and Casodex) and stayed on it for 26 months. I also had external beam radiation in November and December 2012.
I am currently doing much better than I ever expected. I am off all cancer meds and my PSA has been stable at 0.2 for the last year and a half. I am currently 68 years old and feeling very good and enjoying life!
Very best wishes to you in your battle with this disease!
I have been on Lupron continuously for 18 years. I have weathered three re-occurrences of my Stage IV metastatic PC. You can get along w/o testosterone. Lupron has saved my life. There are accommodations you need to make to live a full life.
To johnstonearch. 18 years. I’m wet behind the ears in comparison. Your 18 Years gives hope to us just starting this voyage. Remarkable !! Thank you ..
Amen Brother. Thank you for sharing this. So much doom and gloom on these pages....my husband says..life is life...and he makes the very best of it. Continued health and happiness to you.
The two year ADT thing seems to be the standard of care after radiation. I had HIFU and my urologist (who wasn't the HIFU surgeon) recommended two more years of eligard. No thanks. You want me to wait two more years to gauge the effectiveness of this surgery? That was easy for him to recommend, he doesn't have to walk a mile in my shoes. Still doing fine without ADT a year and a half after surgery. I'll have my PSA tested every 3 months. Now age 68.
Keep rolling WSOPeddie. !
Hair loss with Hormone Therapy & RT... anyone else?
ADT (sort of) on screen
How many 3-months injections of lupron for 2-year-long ADT
Clarification on the timing of ADT
opinion on timing of ADT vacation 
