C-11 choline PET: Has anyone had... - Advanced Prostate...

Advanced Prostate Cancer

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C-11 choline PET

Don1157 profile image
6 Replies

Has anyone had difficulties with or been turned down by insurance company for the C-11choline PET scan?

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Don1157 profile image
Don1157
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6 Replies
vandy69 profile image
vandy69

I have not had C-11 Choline, but did have C-11 Acetate and had to pay out of pocket as Medicare did not approve.

Recently had Axumin PET/CT which is the latest, greatest, and Medicare paid!

For all of these to be most accurate, your PSA should be above a certain minimum threshold.

Best wishes. Never Give In.

Rexwaterbury profile image
Rexwaterbury in reply tovandy69

Yes, my POS insurance failed to approve my c-11 at Mayo, stating it was unnecessary and investigational. Had to go through peer-to-peer, internal appeal process, and finally external appeal process before insurance paid for it entirely. Just keep appealing. The insurance company is betting that you’ll get fed up and pay out of pocket.

Don1157 profile image
Don1157 in reply tovandy69

No give for sure. I recently reached 1.99 after I started a vacation from Lupron, so I am ready to go! Except waiting on approval from BC&BS.

I wonder if I will ever get approved for new scans. My PSA was only 2.7 at diagnosis. It is now undetectable after HIFU. If I have to wait for a high PSA reading to get scanned I could be in trouble by then.

Don1157 profile image
Don1157 in reply to

Let’s hope not and you stay undetectable!

Don1157 profile image
Don1157

I just found out the ins co appoved the scan. So I am off to Decatur Ill, with a stop to visit Abe on the way back!

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