Hi Guys, in recent times, I've been reading up a lot about Androgen Deprivation Therapy (ADT) Intermittent ADT (IADT) and Bipolar Androgen Therapy (BAT).
It seems to me, from what I've read that becoming castration resistant, is the time that PCa goes from being a chronic illness to a life threatening situation.
I've read many comments on this site that continuous use of hormone blockade, eventually fails in all who try ADT but the uncertain factor is how long the treatment will last. My Oncologist told me that 18 months is about the average to move to being hormone sensitive to being hormone resistant. I've read similar things on this site.
I've read that on this site that Dr Charles Snuffy Myers tries to keep patients on ADT for as long as possible, while at the Other end of the spectrum, Dr Bob Leibowitz at Compassionate Oncology seems keen to give guys a 'Triple Hormone Blockade' followed by a 'maintenance program'. He seems very keen to get guys of hormone blockade, within 13 months as far as I can tell.
Two major figures, with two opposing views. My current Oncologist is very, very conservative. She told me that for me, the treatment is Zolodex, until it stops working, followed shortly by Docetaxel, Xtandi/Abiraterone. When I questioned her about whether this was the best course of action, she got quite short with me, "get back in your box - I'm the expert" attitude. We discussed testosterone therapy, BAT, estrogen patches etc, she barely gave any of these topics airtime, while I consider them very important.
My purpose for this post is to question what others have done and what they think about the 'best' approach. My concern comes from a Dr Bob Leibowitz comment that "Every day your on hormone blockade, you are one day closer to castration resistance - and death".
I have two kids under ten and my main goal is to stay alive long enough to see them grow up and long enough that PCa becomes a chronic, but manageable condition, rather than a killer.
I've read lots of material (and watched all the youtube videos) for Dr Bob Leibowitz. I am keen to speak with him, but being based in Perth, the other side of the planet, makes thinGs difficult. I found that there is a Dr in Singapore (much closer to my part of the world) who used to work with Dr Bob at compassionate Oncology. If anyone has any direct experience of Dr Steve Tucker, or Dr Bob, please feel free to leave a comment.
Thanks in advance,