What Every Male with Prostate Cancer Should Know

[dsmith200201]

Check out an active research study currently recruiting males with advanced prostate cancer. Unfortunately, it's not happening everywhere, but a loved one may benefit. Visit localprostatecancerhelp.com and share the news!!!

Opinions are welcome

[Hidden]

I had a bad experience while on a study drug. It had nothing to do with the drug, it had to do with the studies radiologists, who argued with my oncologist that I had no mets. Well, I had one in my hip, and at least two in my spine. The study was for non-met Pca. It was a joke. I have yet to hear from the study, and they were supposed to follow up on a routine basis, and it's been six months since I've been off it. Very disappointed.

[dsmith200201 in reply to Hidden]

Hello Joe_Kam. Thank you so much for sharing your experience. How is everything going for you now?

[Hidden in reply to dsmith200201]

Thanks for acknowledging my post.

I just saw my radiologist this morning to see about starting Xofigo. It turns out my hemoglobin is to low to begin. He showed me the imaging, and both of us had a problem finding the mets. Now, I'm finding out it truly is for pain, and it happens to kill the cancer too. So, I'm putting that off. I have no pain.

Do you happen to know a good lawyer? lol Between the study group and my uro group, I got screwed. Or for a better term, I was ignored. The best thing I did was find a new group of urologists. So, on that front, I'm doing much better.

Thanks, Joe

[dsmith200201]

Hi Joe,

Unfortunately I do not know a good lawyer (hard to find these days)! On the other hand, I'm HAPPY to hear you have no pain. Before you decide on your next doctor, look them up at projects.propublica.org/doc... to see if they were paid by any major pharma companies.

My best, Debbie

[Hidden]

I see that the study uses estradiol. I was very interested in supplementation with female sex hormones a while ago, but have moved away from the hormone manipulation path, even though hormones are definitely involved in prostate cancer, and it's key. The prostate is, after all, a gland in the sexual system.

Estradiol would reduce some of the side effects of low T - a strong positive. Reducing hot flashes and also most of the danger of bone loss. I no longer feel I have a good sense of the dangers of estradiol. DES used to be a treatment of choice, but was abandoned after problems (with clotting?) at the 3 (mg/dl?) level

Patches seem good.

The bonus money is a confusion. It's nice, could help with expenses for someone already interested, but it can't be an inducement to take a drug. That becomes (in the worst spin) experimenting on the poor.

I could maybe get interested, but my real (moonshot) interest is in raising testosterone to normal levels, and curing the prostate, at least to the extent that all the cancer is constrained to the prostate, and that it calms down and plays nice.

[Hidden in reply to Hidden]

so bone loss is not a problem for me at this time (as a consideration) and hot flashes are an annoyance but not more than that. If it was a treatment with little downside and removed the hot flashes, it could be nice. I favor treatments that have no downside - like 30000IU Vitamin d3, but not all of them, like drinking pomegranate juice. D3 because of Bruce Hollis on YouTube.