Why not share your story?: One of the... - Acoustic Neuroma ...

Acoustic Neuroma Support

2,742 members927 posts

Why not share your story?

6 Replies

One of the best ways for people with certain conditions to connect with each other it to share your story - the experience you've been through with your condition. That's what this blog section is for. There are 50 members in this community so far... let's make it a vibrant place where more people will want to join, ask questions, and provide support!

6 Replies
keithzx12r profile image
keithzx12r

When I was in my early thirties I suffered from Rhinitis which led to polyps in my sinuses. Eventually I had surgery (Polypectomy?) to remove them. After that I had no sense of smell. It was so definite I couldn't even detect if a can had petrol or paraffin in it! This carried on until I went for my AN op at the age of 50. When my wife was driven up to Oxford from Cornwall to collect me from hospital we had a spare evening before the return journey and decided to try my first forray outside. In hospital I felt my balance was ok but as soon as my feet hit the payment I realised this was not so. Then I realised I could smell the traffic fumes, something I'd missed for 20 years. Seems my AN op brought back my sense of smell which continues 25 years later. How weird is that? Keith

in reply tokeithzx12r

Thanks for sharing your story Keith! It would be great for the rest of the community to see it - maybe you can post your own blog? Just go to the "Home" page and click "Write a blog post" then you can paste there just what you said here.

Just a suggestion :)

My best,

Lora

keithzx12r profile image
keithzx12r in reply to

Thanks Lora - I have done a blog but not about this, about my 25th anniversary of my op. K

in reply tokeithzx12r

Ah yes, I see! Thanks for sharing your story.

millommite profile image
millommite

Hi I don't know if this is the right place to post I had my AN diagnosed in September 2009 and had it removed in the November 2009 it was 5cm and pressing I had a lot of problems I didn't know if i should put all the details of it down or not

in reply tomillommite

Hi Millommite - If you feel like sharing the details we would be pleased to hear them. The best thing to do is click on "Create a post" at the top, then share away. You can share as much or as little as you feel comfortable. Sometimes just writing it down helps to lessen the load.

Not what you're looking for?

You may also like...

why did I not go sooner

hi, I have a large (3cm) acoustic neuroma diagnosed this week. I will find out the recommendation...
Jayme48 profile image

Not yet diagnosed....AN

Hi, I'm 37 and woke up 3 weeks ago with complete hearing loss in 1 ear, severe tinnitus and...

Not sure what to do next

Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors....

Why is fatigue a symptom?

Hello everyone, does anyone know why fatigue is so bad with a tumour? Is it because the ear is...
Njjan profile image

Just diagnosed not worried ❤

Hi friends....well i am in this special group by chance i went for a hearing test which progressed...
Klatu profile image

Moderation team

See all
Zhaleh_TBTC profile image
Zhaleh_TBTCAdministrator
Maddie_TBTC profile image
Maddie_TBTCAdministrator
Beth_TBTC profile image
Beth_TBTCPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.