I have a small acoustic neuroma on the balance nerve on my right hand side. Ive lost most of my hearing on that side and have tinnitus. I’ve recently started to have bouts of dizziness also. Does anyone know......do you learn to adapt to the dizziness? Can your body learn to get used to and compensate in other ways?
Thanks in advance for any words of wisdom
Josie
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Josie-p
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The body and the brain are such marvelous things and with loss of hearing i found it disorienting but your brain will try to adjust to it. I found the dizziness never really got better for me but since the operation I learnt there are exercises that help with vertigo/balance that may help you too. Its worth asking your doctor or googling. Hope things go well for you
Hi Josie. Vestibular exercises really do help in my opinion, you have to stick with them for weeks but I improved my dizziness with them after a vestibular virus before my AN was diagnosed. If you've had hearing and balance tests they should be able to either advise you on what exercises to do or send you to a physio experienced in this field who will recommend exercises. Failing that there are generic versions on line. Yoga helped me - as does walking - especially in busy shops which is hard to bear (!) but I think the bottom line is, much as you want to stay at home indoors, the more you get out and move and challenge your balance the quicker your brain will re-wire. Good luck!
Hi Josie, I had radiotherapy for my AN 2 years ago. Initially I suffered from dizziness and imbalance. The oncologist gave me exercises that I regularly did for a couple of months and they really helped with the dizziness. I no longer suffer from that, but I still have imbalance when walking, especially over uneven ground so I use a stick which helps. I don't know if that will ever get better but the best thing to do is just to keep going. I also do simple balance exercises. As they say, use it or lose it! Good luck and hange in there!
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