Am I really vulnerable?

[GGourmet]

Although I don’t mind being called early for vaccinations, etc, I find the logic confusing.

Apparently my benign brain tumour classes me as medically vulnerable. I don’t feel vulnerable and can only see that this might because the tumour could possibly still be growing and I have to have another 4 years of MRI’s before I get the final all clear, I hope.

I really don’t see though how this necessitates early vaccinations.

Have I missed something or not been told something?

[Karbob]

Hi, I wouldn't worry about it. I think someone has made a mistake with that one. It may be a lot of trouble getting off the list. Good luck. Karen

[GGourmet in reply to Karbob]

I’ve checked and it’s confirmed. To be frank, I’m sort of happy I am in the list - for 15 years I had to self present for the flu jab, because my condition that made me vulnerable to flu wasn’t on the official list.

[flappers]

Hi, I had the same, I assumed it was because I had radiotherapy, rather than the AN itself. I had covid at the time I got the letter telling me I was eligible for viral treatment, and free tests etc..and to contact them if I tested positive, bit late! I wouldn't worry about it.

[Alison_L]

I had my latest jab earlier this year after getting a text saying I was vulnerable. I went to my local pharmacist to get it done, and he did it, but said he couldn’t understand why I was on the list. Even with all my heart meds, I shouldn’t be on it. It wasn’t until a couple of days later that I realised the text might have been for my 94yo mum, whose medical texts all came to me! Oh well 😬

I did, however, also get the viral treatment letter that flappers mentioned, and that was definitely addressed to me, although I’m pretty certain that relates to my heart.

[GGourmet in reply to Alison_L]

I’ve had those texts too challenged it with 3 different nurses and they all say I qualify for being vulnerable. Not worried just bizarre what the logic would be and I think we are on the same page on that one.

[bypass]

For most AN patients this is true! However, the system isn't clever enough to differentiate between brain tumours so working on the safe side simply puts us all into the Vulnerable" category. Better than leaving us out when we should be in!

[LikeBillyo]

I have AN along with a pre-existing (different) brain condition, and I'm classed as clinically vulnerable too. I think it's just because it affects the brain, as I became CV when diagnosed with my first brain issue, long before my neuroma was found.

I've queried it with GPs and consultants, but none of them know why, just that it ticks a box somewhere!

[zeekay]

I got the same texts which mentioned about being over 75 or having a weakened immune system. Initially I assumed they were for my mother-in-law whose hospital appts come to me. But then I received a letter in my name and realised that it may be because I had received radiotherapy last year rather than because of the AN. So I got the booster. Have also received test kit with same "weakened immune system" info in the letter. I feel fine otherwise apart from some lingering side effects of the treatment. But i feel OK that somewhere in the system we are considered a priority group.