How was your experience of being diag... - Acoustic Neuroma ...

Acoustic Neuroma Support

2,725 members913 posts

How was your experience of being diagnosed with a brain tumour?

Shannon_TBTC profile image
Shannon_TBTCPartner
3 Replies

'When I first experienced symptoms of my own I had many types of tests, scans and treatments but my tumour was able to stay hidden. In the seven years that followed however its side effects gradually increased and they became much more visible and more serious as well - not knowing what this condition was for such a long time therefore made me feel extremely isolated too. When my diagnosis eventually came I received an amazing amount of care, support and understanding.

When being told we have a brain tumour, all of this is so very important for our health and wellbeing. I am so very passionate and determined to help brain tumours become much more represented in national surveys so as to improve the level of general awareness towards them, to have their symptoms be more easily recognisable and to help others affected by a brain tumour receive much more support too. By completing the surveys and helping the Brain Tumour Charity, we can make a really important difference for us now and for the wider world in future.’- Nicola Clark

Take part in our dedicated diagnosis survey here today- thebraintumourcharity.org/l...

Written by
Shannon_TBTC profile image
Shannon_TBTC
Partner
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Shannon_TBTC profile image
Shannon_TBTCPartner

thebraintumourcharity.org/l...

Kristyll profile image
Kristyll

I was named a neurotic nurse and went down to under six stones due to continual dizziness and vomiting due to Nystagamus so I was, after over two years, greatly relieved to know it had been acknowledged and I had a REAL ILLNESS

I was diagnosed over the phone

Not what you're looking for?

You may also like...

Head tingling face, legs, and arms

Hi, I am a newbie here, so hope you are all doing as well as can be expected. for the last 12...

Newly diagnosed with AN

Hi, I was diagnosed with a 2cm AN in July of this year in Dorset County Hospital with promise of a...

can rapid growth be malignant

I was diagnosed with AN in left ear 3 years ago. It is not growing but a routine scan a year ago...

Radiotherapy at Guys hospital anyone? I need to make a decision!

So it is decision time. My 1.5cm AN has grown in a relatively short time to 2.2cm, pressing on the...

Who has had radiotherapy without terrible balance effects etc on tumor 15mm pressing on brain stem or similar

Hello, my fellow AN warriors! I've been told by the team at Kings that I may not be a candidate for...