Odd metallic taste in mouth & shudder... - Acoustic Neuroma ...

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Odd metallic taste in mouth & shudders in head

SJa2020 profile image
11 Replies

1. Hi all do any of you have metallic horrible taste in your mouth? And although I have never liked v. Tangy stuff do so now. This came just before the metallic taste.

2. My head has been shuddering a bit When it all started & going more Just last few days.

Just trying to work out if it’s linked with what’s going on in my head/ ear or is something separate. Thanks all

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SJa2020 profile image
SJa2020
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11 Replies
904newton profile image
904newton

Do you have some issues with anxiety? That can cause a metallic taste in your mouth? If so try some Mindfulness there is loads on YouTube not necessarily relaxation but it can also be. No idea about the shuddering maybe contact your medical team and ask? Good luck 👍🙏

SJa2020 profile image
SJa2020 in reply to904newton

Hi thanks for the reply. Nope no anxiety issues have gone thru many things in life & appear to deal with it calmly but think it goes & affects me physically!

Will contact my GP on mon anyway - still chasing them for sick note, referral forms for pvt. etc etc. 😱

Kristyll profile image
Kristyll

I had that taste pre op, for a long time but it actually went gradually post op,x

SJa2020 profile image
SJa2020 in reply toKristyll

Thanks Kristyll, much appreciated. Guess that is a possible symptom so I’m not Going mad! All the best TC

Kristyll profile image
Kristyll in reply toSJa2020

It appears it’s quite common don’t know why x

Silversmith2000 profile image
Silversmith2000

Hello SJa, have you been diagnosed with any condition?

I had odd taste sensation because I had an acoustic neuroma sitting on my nerve, this also affected the skin on my face, felt like my skin was wet, this was all on the side of the AN.

With regards to the taste, for me it was two things; 1. It was like I was sucking a strong mint and it felt a cool breeze when breathing, and 2. it was like I had a pile of salt sitting on the back of my tongue, made everything taste weird. Now I’ve had the AN removed this has almost completely gone and I rarely notice odd tastes, thankfully.

With regards to your head shuddering, I’ve not had that sensation but did get dizzy spells , especially when turning my head or turning a corner, this has also completely gone 😁

Hopefully you can get the source of your sensations identified, it took four years for my AN to be diagnosed and this was only due to one sided hearing loss, all my other symptoms didn’t trigger my ENT doc to think of an AN.

Good luck!

SJa2020 profile image
SJa2020 in reply toSilversmith2000

Hi Silversmith2000 apologies didn’t reply all this time.

Well I must have picked up Covid last March but had a mild version. Drs think it basically spiked up my MS (benign for over 21 years). Ive had running courses of steroids all this time since July.

I am now on long term meds that can have a fatal reaction for the first one. Thankfully I was ok but with a few side effects. Had a no of mri scans but didn’t see AN so guess not. But must have been effecting those nerves.

Thanks TC

00001111 profile image
00001111

I get both.i m trying not to sleep on my right side now to see if that helps.im dizzy.its affecting my eyes at times.and can get confused.

SJa2020 profile image
SJa2020 in reply to00001111

There’s a post by someone with exercises that help the dizziness.

00001111 profile image
00001111

Thankyou i.ll look it up.x

SJa2020 profile image
SJa2020 in reply to00001111

It’s Drdeanbellavia’s post.

(All in lower case).

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