Does anyone get buzzing in head when ... - Acoustic Neuroma ...

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Does anyone get buzzing in head when sitting and lying down?

Njjan profile image

Hello all, I've recently been diagnosed with a Intracanalicular Vestibular Schwannoma. Does anyone else get a buzzing /vibration in the head when lying down or sitting resting in a quiet room? It is torturous!

9 Replies

I occasionally get buzzing if a sudden loud noise makes me jump or if I’m very tired. I’m post op now, nearly 6 months, but do get some weird & wonderful symptoms/side effects. But glad to have the tumour debulked and here to tell the tale. Take care & hope all goes well for you. B xx

Yes , I have a constant hissing noise, with a shooting pain on the back of my head if I move it to quickly or suddenly.

Hi Njjan Yes, I do, particularly when I'm tired. It's a very strange sensation. Not at all nice. I've always been very active. But this little tumour makes me very fatigued!

Thanks for all your responses. Tiredness definitely exasperates the Tinnitus and buzzing. I've had symptoms for over 2 years: dizziness, headaches, fatigue and Tinnitus. My doctor suggested I was a hypochondriac. I've been too embarrassed to go to him in fear of being judged. It's been a long road to get to diagnosis. I'm pleased to be able to get advice and support on here. I do you all are getting the help you need.

00001111 profile image
00001111 in reply to Njjan

I get like a shuddering in my head.more at night when im lied down or turning over in bed.dose feel weired sometimes.

Njjan profile image
Njjan in reply to 00001111

Thanks for your response. It's awful isn't it? I think I'm going to be stuck with this for a long time if not life because it's a small tumour. I doubt surgery will any time soon. Do you have any top tips on how to alleviate it?

Yes I have intermittent buzzing, crackling sounds as well an sensation of pulling in my eye and gritty feeling . I get terrible fatigue when I wiring in the day around late afternoon too. I have no idea when I’ll get treatment due to waiting for my next specialist appointment. Yes I am also Wondering if people have any tips on how they manage symptoms? As you say, we are stuck managing this without much advise or support ? Thanks

Sorry should say fatigue when working not wiring 😊

Njjan profile image
Njjan in reply to Kazgau

Morning Kazgau,

Thank you for your reply. I wear earplugs to try and soften noises because come mid afternoon my head hurts with any loud noise. I do hope your next appointment gives you the answers and treatment you need.

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