Have I made the right decision? - Acoustic Neuroma ...

Acoustic Neuroma Support

2,691 members899 posts

Have I made the right decision?

keithzx12r profile image
7 Replies

So, I've been on here many times before but the short story is I had three AN's removed by surgery from my left ear in Sept 1987. Obviously all the following years I have put up with the after effects. So now I have swooshing in my right ear at night. The doc gave Amytriptilin tablets which work ok if I take two when I go to bed. My balance has deteriorated too. So I pressured the doc to send me to ENT. He wasn't keen but did it. Now after a CT scan the consultant tells me I have a glomus (benign) tumour in my right middle ear. Being as I am 82 next month we decided to leave it alone because of the risk of losing hearing on that side too making me stone deaf. Also I am carer to my wife who has osteoporosis and is in constant pain. Did I make the right decision - time will tell!

Written by
keithzx12r profile image
keithzx12r
To view profiles and participate in discussions please or .
Read more about...
7 Replies
drdeanbellavia profile image
drdeanbellavia

Keith:

It is probably the right decision as long as the benign tumor isn't expected to grow much larger.

I also get swooshing in my AN affected left ear from time to time, but it naturally goes away without drugs. Does the swooshing keep you awake? If not, why do you need the pills.

Balance-wise, have you tried doing any cerebellum-resetting exercises to improve your balance and overall somatosensory system? If not go to this link and give it a try:

thebioengineeringco.com/ind...

Dean

keithzx12r profile image
keithzx12r in reply to drdeanbellavia

I've been trying some vestibular rehab exercises but so far not much improvement. I'll try leaving the pills off again but at the moment I'm sleeping well. Thanks for your reply.

drdeanbellavia profile image
drdeanbellavia in reply to keithzx12r

Some of the "vastibular rehab exercises" (VRE) are similar to my "cerebellum resetting exercises" (CRE) that I created back in 2002 to regain my balance. I think that VRE is not as effective as my exercises for somatosensory problems. A client of mine had a 36 mm AN and tried my exercises and found them effective. He also tried one VRE exercises to improve his tennis game and found it helpful. Try the link above and see for yourself how CRE can help you.

keithzx12r profile image
keithzx12r in reply to drdeanbellavia

Sorry Dean, can't see the link!

keithzx12r profile image
keithzx12r in reply to drdeanbellavia

Doh! Got it thanks

Kristyll profile image
Kristyll

What a dilemma but as long as you have made the right choice for you and yours let’s hope anyway. We can only make our informed decisions. Good luck x

SJa2020 profile image
SJa2020

All the v best Keith. I’m sure it was the best decision as allows you to hear & you need can it especially as a cater too. Main thing is it’s benign so it’s ok. But any changes to that (God forbid) would make it different. I’m sure Drs will have looked at the best option too. Take care all the v best.

You may also like...

Radiotherapy at Guys hospital anyone? I need to make a decision!

Guys? How was it, and how were the after affects? I know I have to make up my own mind but any...

Wondering if I have AN🤔

suctioned. It didn't really make a difference, in fact it's made it worse. One ear still feels...

Complete loss of hearing in 2 days.

the hearing in my right ear (the side of my AN), it seemed to come back on Sunday after I had been...

Just been told…I have a Brain Tumour

and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer...

Does anyone else have a dent behind their ear post op?

I have a scar behind my ear after surgery with a dent that keeps changing (getting deeper). When...