Not worth the £3 parking charge.

[jbradford42]

Been to say the audiologist today about my T lovely young girl. Knows all about hearing aids but T is way out of her league. My T really gets to me sometimes I have come to the conclusion that the only option left is to pray someone, somewhere, somehow, comes up with a miracle. I won’t ever give up that’s because I just cannot let my family down. But believe me if they were not here god only knows. So back to the drawing board waiting and hoping for the journey. Ps.

this is my personal journey not all Tinnitus is the same so what happens to me doesn’t necessarily mean this is the same for you. Good luck guys I wish each and every one of you the very best.

[Ruud1boy]

To be fair to your lovely young girl of an audiologist, my guy is supposedly the local NHS tinnitus expert and he's as much use as Anne Frank's drumkit. His general schtick re T is if you don't let it bother you, it won't bother you - if you're having a bad day, just look out of the window and think 'I wonder where he's going, ooh look, there's a bird etc'.

I've been in to the audiology centre this week and they've got a big promotional banner in the reception trumpeting that they offer, amongst other things, 'tinnitus management clinics' and 'specialist clinics for complex needs'. I've virtually begged this guy for help on a number of occasions over the last 18mths and he's stonewalled me every time - his opinion is that by continuing to seek help, I'm keeping the tinnitus going. It gives the clear indication that the fancy banner they have is just window-dressing - if they turn away people seeking help, their clinics must be fairly empty.

[jbradford42 in reply to Ruud1boy]

So sad, yet so true Ruudboy1 the only thing I got offered yesterday was counselling and that was from the Royal Bolton hospital. No mino hospital by no means and the very best they could do for me was counselling so sad

[Ingrid-p]

I know how you feel. When I first got my all singing all dancing new aids I really thought brilliant. But day by day the t is fighting to be heard over the masking noises. I know you have to hear it to help habituation, but it seems to be getting louder, although that’s probably as I’m focused on it all my waking hours! I’m so lucky I sleep all night, which is a bonus. I’m seeing a private ENT consultant soon who specialises in tinnitus treatment, we shall see. I’m seeing my hearing therapist as well who has helped me considerably in the past. I also regularly see my homeopath.

Just after Christmas I remember hearing my t so loud, but I can honestly say I never gave it a second thought, hoping I can get back to that state of mind. Really hate thinking this is it now for the rest of my life 😭😭😭

Take care xx

[jbradford42 in reply to Ingrid-p]

Hang on in there lad we’ll get there.

[drumcraw]

hi. that's shame but I know how you feel with T. mine is really loud most of the time and my aids don't help to blank it out, like you if I was on my own don't know what id dom with all this talk from government about mental health surely TINNITUS comes under that heading???????????? as it drives people crazy but where is the help and support for it?????? and if your in England you have much better facilities than in Scotland! MORE NEEDS TO BE DONE and its abouttime the NHS channelled more funding into T, as im sure there will be more cases in future! meanwhile weve all just got to suffer in silence take care and keep distracted , drumcraw.

[Jimmuck in reply to drumcraw]

I agree with you 100% Craw. Severe tinnitus could drive a person to the verge of insanity but there seems to be very little provision made for it within the NHS in Scotland. The mantra of " no cure for it" permeates the vocabulary of staff from GP's and ENT consultants to audiologists and as a result, they pay lip service to the condition and not much else.

[Freddy17]

I know what you mean they really don't know nothing about t. The only thing they want to do is cell you hearing aids to mask your noise.

[Freddy17]

Here in the United States there's no hope. The only support groups are the ones that are online or in the UK.

[Ruud1boy in reply to Freddy17]

I can't believe that Freddy - there was one of your American brethren on this forum last week and someone gave him contact details for about half a dozen support groups in the Florida area. The benefit of these groups is marginal at best I appreciate, but there will be some support groups somewhere I'm sure - in fact, here you go, from the ATA website;

ata.org/managing-your-tinni...