Centre treating rare Behçet’s Disease opens ... - Vasculitis UK

Vasculitis UK

7,779 members6,751 posts

Centre treating rare Behçet’s Disease opens at Royal London Hospital Friday November 30th

John_Mills profile image
John_MillsVolunteer
1 Reply

I wish the government would include all types of Vasculitis in these Centre's for treating Behcets they keep opening..... cannot understand why only patients with Behcets are treated in these clinics...and not people with other types of Vasculitis..

Susan

eastlondonadvertiser.co.uk/...

Written by
John_Mills profile image
John_Mills
Volunteer
To view profiles and participate in discussions please or .
1 Reply
Zebra profile image
Zebra

The funding and campaigning for the 3 Centres of Excellence was all done by the Behcet's Syndrome Society which spent years getting them approved and which helps manage them. Perhaps there's something that can be done to link in. In fact, at least 2 of them were pre-existing clinics that have been rebadged and now supported by the support worker funded by the Society - Prof Moots' Clinic in Liverpool and Prof Fortune's in London. There are only a few clinic sessions a month. But it is a big step forward for those with vasculitis, be it Behcet's or another form.

You may also like...

UK's NICE Gives the Green Light to Rituximab

(MabThera) in treating the two most common types of ANCA vasculitis...

Ileostomy and Behcets

there is anyone on here that has Behcets and an ileostomy, or vasculitis and how do you cope.

Vasculitis in the brain

time,my GP was treating her for vertigo,Has anyone any experience of this type of vasculitis?Im...

Vasculitis Education Day December 4th

Small Vessel Vasculitis John Mills - A Patient's Experience Prof Robert Moot - Behcets Disease...

Vasculitis and Cancer

diagnosed with Vasculitis and then maybe a few years later been diagnosed with cancer? If so what...