New "Understanding Vasculitis" information l... - Vasculitis UK

Vasculitis UK

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New "Understanding Vasculitis" information leaflet now available

John_Mills profile image
John_MillsVolunteer
12 Replies

A simple vasculitis information leaflet to share with friends family and work colleagues to help them understand all about Vasculitis.

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John_Mills profile image
John_Mills
Volunteer
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12 Replies
deniseann profile image
deniseann

I would like a copy ,were can i get one please

Ziggy profile image
Ziggy

Do not seem to be able to find the leaflet?

JimL profile image
JimL

Ditto to the two replies.

John_Mills profile image
John_MillsVolunteer

if you send me an email I can post you the leaflet... sandjmills@btinternet.com if you would like more than one please tell me how many. Hopefully soon it will also be available on the new website as a pdf document.

Susan :-)

JontyW profile image
JontyW

Re .. "Hopefully soon it will also be available on the new website as a pdf document."

I have been trying to access an online version of "Understanding Vasculitis" leaflet .. but to no avail. I cannot find it either on the V-UK website or HealthUnlocked site.

Please would someone send me the link .. thank you.

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply to JontyW

I hope it will soon be available on the website too as a pdf document JontyW... :-) it would make it so much more accessible for so many people with Vasculitis and their families.

PatriciaAnn profile image
PatriciaAnn in reply to JontyW

Hi Jonty

Sorry I thought I'd replied before about this when the subject was raised before, but possibly I just thought I had. The current Understanding Vasculitis leaflet is not on any website. In its current format it does not lend itself to PDF-ing for downloading. You can obtain a copy/copies by e-mailing John Mills and he will post as many copies as you request.

PatriciaAnn

JontyW profile image
JontyW

This document is all you need to give to your work colleagues. Just email them this link ...

google.co.uk/url?sa=t&rct=j...

John_Mills profile image
John_MillsVolunteer in reply to JontyW

Thanks Jonty, ARUK asked me to review this booklet some time ago, before it was published. I thought it has several good features and gave it the OK. But it is not intended for the same "market" at all. The ARUK booklet is really aimed at newly diagnosed people who want a basic understanding. Our Understanding Vasculitis leaflet is a much cheaper double fold A4 leaflet intended to give those with no knowledge of vasculitis some concept of what the disease is about and how it affects people. It is very popular for showing to friends, family, work, colleagues, employers and for fund raising events and funerals. It is not readily downloadable due to the graphics.

ARUK is a large organisation with a large budget, a large office and quite a few employees. We are small, with no office and no employees. We don't pretend to compete.

cedric profile image
cedric in reply to John_Mills

hi john can you please send me a copy

mickt profile image
mickt

Hi John is it possible to get the understanding vasculitis booklet please ,I think you still have my details ,much appreciated.

John_Mills profile image
John_MillsVolunteer

Hi Mick - I probably have your details but I don't know how to identify them. Just send me your postal address to john.mills@vasculitis.org.uk and I will stick some in the post for you.

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