I am the past Chair of Vasculitis Ireland Awareness - a support group for those affected by Vasculitis in the island of Ireland. As you know, we all work together to help improve care no matter where we live.
With Trinity College Dublin, we are looking at how to make the patientMpower app more meaningful for us, so please send on suggestions and indicate if you would be willing to volunteer to help in this project (focus group involvement, interview(s) either in person or by phone, online feedback on changes).
Two questions we have are
1. What are you missing? and
2. What would you like to see on it?
It would be really good to get feedback from people using the app, no matter where you live. Thank you in advance.