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[NikkiFlack]

I was diagnosed with GPA Vasculitis in May 2017 after suffering from various symptoms for 2 years previously. Had 6 treatments of cyclophosphamide and am now on 125mg daily of Azathioprine and am doing ok. I seem to be suffering from joint pain and what also feels like pain in my muscles in the tops of my arms also suffer from attacks of dizziness. I also have a lot of pain seemingly at the top of my rib cage and right side. Anyone any tips of dealing with this?

[Dineshbothra123]

These are side effects of drugs Ur taking ,,my doctor said to suppress the disease it's necessary I hope I'll get well soon

[ZiggyDiego]

I've had cyclophosphamide and azathioprine for my GPA. I associate the muscle/joint problems with prednisolone. But I'd get the rib cage/right side pain checked out. It could be your liver. I had a similar problem and had to change from azathioprine to mycophenolate.

[KirstyW1999]

I was also on the medication you are taking.. I also suffered rib pain and had muscle cramps and fatigue nausea and more. They changed the azathioprine to mycophenolate which helped alot

Wishing you better

[NikkiFlack]

Thanks for all your responses. I am due to see my consultant again on 18 June so will raise all these things with her.

[cpierce1016]

I was diagnosed with Vasculitis GPA in March 2017. It destroyed both of my kidneys. I have about 10% kidney function left. I was 50 when I was diagnosed. Up until that day, I was 100% healthy and did not have to take any medicine for anything. Just my 1 per day women's vitamin. I was on hemodialysis from March 2017 to September 2017 for 3 days per week and 4 hours per session. A living nightmare, especially when I had to go back to work full-time in May 2017. Since September 2017, I do in home dialysis CCPD every night while I sleep and I love it! I use 1 5,000 ml bag of solution per night and I have 3 exchanges per night. An exchange is drain, fill, and dwell. It keeps my creatinine around 3.25 and my BUM around 60. I have restless legs really bad and a lot of joint pain. Once I am up and walking I am fine but the initial getting up after sitting and first trying to walk is dreadful. I am curious to know more about you and how you are doing this far.

I am currently on the waiting list and I have a pretty promising living donor in the testing period. I am praying the same to be true for you. Get well hugs and prayers

Cathy Pierce in Caledonia, MI (USA)

[cpierce1016]

Did your Vasculitis GPA attack your lungs, kidneys, or sinuses?