Well it's been almost a year since first hemotologist appointment.

I have bee told I'm a working progress,and that due to wbc count high and going up and down.

Have been told more blood tests required and may be a full body ct scan.

Been told if I don't get hospital appointment for blood tests to contact my hemotologist secretary.

It would be a month on Friday since last telephone conversation.

If I don't get appointment.What should I do?

Just really fed up with it all.

2 Replies

  • Have you tried your Haematologist's medical secretary? Sometimes being a bit of a "pest" can work! Also have you looked on Vasculitis UK's website, you might find an answer on there or at least someone you can contact.


  • Thank you for your reply Sally.

    Think I need to get tuff.

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