Well it's been almost a year since first hemotologist appointment.
I have bee told I'm a working progress,and that due to wbc count high and going up and down.
Have been told more blood tests required and may be a full body ct scan.
Been told if I don't get hospital appointment for blood tests to contact my hemotologist secretary.
It would be a month on Friday since last telephone conversation.
If I don't get appointment.What should I do?
Just really fed up with it all.
Have you tried your Haematologist's medical secretary? Sometimes being a bit of a "pest" can work! Also have you looked on Vasculitis UK's website, you might find an answer on there or at least someone you can contact.
Sally
Newly diagnosed GPA without renal involvement. Sorry it’s long. 
Seeking vasculitus consultant North Wales
GPs Practices - Return to Normal? not convinced!
Advice on prevention of pneumonia having recently lost our father (wegeners) 
How was you diagnosed? My bloods are normal , I don’t feel normal and the doctors seem baffled. 
