Why did my skin biopsy show mast cell activation and my blood test was normal ?

[Artwise]

Hi l am new here and would like to know more about MCAS.

l am on a low histamine diet and take antihistamines when needed.

My symptoms affect my sleep my skin and eyes painful muscles

upper and lower respiratory system insect bites overreaction

perfumes cleaning products petrol fumes &chemicals upset my body

l am lactose intolerant and have latex allergy. My skin can turn brownish when irritated. Wine Tomatoes make my skin flush.

[JW50]

Hi, I experience vision problems and you're the first other person ive come across who reports the same. I get double vision, visual snow and oscillopsia (bouncing vision) when MCAS flares up. My vision improved massively when I started taking Sodium Cromoglicate (Nalcrom). What vision problems do you experience?

[Artwise in reply to JW50]

Hi thanks for getting in touch .My vision is affected by burning watery eyes that can come out of the blue .The rims of my eyelids become red. Pollens, perfumes ,chemicals are suspect.it doesn't usually last long but it can be a nuisance if you are shopping or getting on a bus

for example. l am glad your vision has improved.

[Garnet67 in reply to Artwise]

Hi I find Opticrom eye drops very helpful for night time eye grittiness/ sensation of sand in eyes. If outside in windy weather my eyes blurr and water instantly, use wrap round sunglasses to help. My H1 antihistamine and Nalcrom, zaditen have helped with blurred vision but I still get that deficit in vision when symptoms flared.

[Artwise in reply to Garnet67]

Hi thanks for getting in touch will get a pair of wraparound sunglasses . l use Boots Hay fever Eye Drops when l am gardening (l do suffer from Hay fever )l have to ration going out because its not only plant pollens its fragrances from neighbours washing hanging out side perfumed outdoor candles burning.

[Garnet67 in reply to Artwise]

Yes it is a problem when others are using chemicals even everyday types. I have taken a note of the Boots Hay fever eye drops as they may help outside in spring summer. Thanks.

[Bilka in reply to Artwise]

Hi, just found your post , i can see it is two years old, so I hope your feeling better? by now. Me too experiencing problems on exposure to chemicals/parfums/ washing detergents and many more inhalants.

Would you please share what helped you to overcome this and did you get diagnosed with MCAS?, Iam struggling to get diagnosis.

Thank you in advance.