My journey and what I am doing now - Kidney Transplant...

Kidney Transplant Patient Support

1,324 members391 posts

My journey and what I am doing now

badblood profile image
1 Reply

Hi all,

My name is Pete and here's my story.

Next Juneish My buddy and Me will be tackling the 7 Stanes in 7 Days to raise money for Cash 4 Kids and the Polycystic Kidney Disease Charity.

'another Charity ride' I hear you say.

Yes, but I have Polycystic Kidney disease and so do both of my daughters

POLYCYSTIC KIDNEY DISEASE is the world’s most common inherited life-threatening condition, in which fluid-filled cysts develop in both kidneys. Between 1 in 800 and 1 in 1000 people worldwide suffer from ADPKD. Over half of those affected will have kidney failure by the time they are 60 years old. If someone has ADPKD, there is a 50% likelihood that the disease will pass to each child.

I have done Dialysis and those of you that know me know I have struggled with cycling throughout all of this.

I was lucky enough to get a Kidney transplant 18 months ago this very day.

Over the last week my eldest daughter (14) has been in hospital after a water infection and now has high blood pressure which incidentally is how I was diagnosed. So we are very worried that she is starting on that slippery slope

I DO NOT WANT MY CHILDREN TO GO THROUGH THE HELL THAT IS KIDNEY FAILURE AND DIALYSIS AND THEN TRANSPLANT AS I HAVE DONE.

So please, please click on the following links, sign the donor register and sponsor me via my just giving page, even if it is just a pound - every bit helps.

Facebook page: facebook.com/teamknightrider

Just Giving:

justgiving.com/teamkrcharid...

Organ donation: organdonation.nhs.uk/ukt/de...

Written by
badblood profile image
badblood
To view profiles and participate in discussions please or .
Read more about...
1 Reply
richardgere profile image
richardgere

Ahh that is very sad Pete, I really hope your daughter is ok, I will look forward to hearing that your daughter is ok, keep us posted x

Not what you're looking for?

You may also like...

Terrified of Transplant

Hi all, I was diagnosed with PKD at 22 and am due to need a transplant in approximately 2 years...

Sharing my kidney story and much more! Tedx talk! Enjoy.

Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I...

Mental health issues

Well it’s almost 2 years ago since my transplant. With everything that went wrong afterwards I am...

DEATH BY REJECTION

I had a kidney transplant in 2014. I'm suffering with anxiety, depression, and reclusiveness. My...

4 Months Post Kidney Transplant

40 year old female, 4 months post transplant .. just looking for a support team who undergone the...