Hair loss

[amy1808]

Hi , my daughter has always had hair loss with the drugs she has to take but last night she was hysterical. Big lumps of hair were falling out. Nothing medication wise has change so I don’t get why . Can anyone advise a supplement

[HollyHeski]

Hi, how distressing- worth getting her B12 and ferritin levels checked?

That's what caused my hair loss.

[Graham49]

Suggest she discusses this with her nephrologist. With a suppressed immune system it could be an infection of the hair follicles, although I think this is rare.

[Dara3351]

Have her talk with her nephrologist! I’m taking biotin supplements, and shampoos that have biotin. My nephrologist also mentioned taking zinc. Any idea from what her blood tests might show?

[amy1808 in reply to Dara3351]

Hi all bloods are good , not lacking in anything 🤷‍♀️

[LisaSnow in reply to amy1808]

Thats great news. The medications she is on for the transplant do cause hair to fall out initially. However as the doctors adjust the dose and the body adjusting to the shock of the surgery and medications, the hair follicles will get healthy and grow hairs again. Please ask her to be patient and don't panic. We all experience the same symptoms as she did and we all got our hair back again. The most important thing is to know is that it is temporary!

[Damigi28 in reply to LisaSnow]

No, we all didn't get our hair back. It has been over 3 years and most of my hair is still gone. Same with some other transplant patients I know. We have tried everything.

[HSP1965 in reply to amy1808]

Hoi,Ik ben anderhalf jaar getransplanteerd en heb ook ernstige haaruitval.

Dermatoloog liet bloed prikken en zag dat ik zinktekort.

Nu 3 x per dag 200 mg zinksulfaat.

Hoop dat het gaat helpen.

[HSP1965 in reply to HSP1965]

Te weinig rode bloedcellen

[Santaponsa1]

Hi. I ost my hair following my kidney transplant and as someone else said on here, biotin tabs and shampoo with same content & zinc prevents further hair loss but she'll need to be consistent with aforementioned...I'm five years post opt and i never got back what i lost which was 1/2 of same, but using above stopped further loss which i'm happy with for i thought i was losing it all, so half a loaf better than none at all, however i also was very upset at first losing my hair as it's every womans worse nightmare. I sincerely hope she does'nt lose any more🙏 Strike whilst the irons hot to save what she's left...Good luck to her and god willing she's okay. She will get there bless her...Take Care x ps i know a lady who was devastated re above and following speaking toa nephologist they prescribed her with slow release prograf ( immunesupressant) which worked for her. Maybe also worth a try...

[amy1808 in reply to Santaponsa1]

Hi , hair loss a lot better thanks . Luckily she has always been on slow release prograf . 10 years since transplant 🎉🎉

[Santaponsa1 in reply to amy1808]

Aww thats lovely to hear..Upwards & onward..Big hugs x

[Pc3661]

I have recently started losing hair also. I am 5 months post transplant and only 66 years old. There's been a lot of back and forth raising and lowering of the Tacrolimus . After reading your question and the replies...I think I will give taking Biotin a try.