Putting our experience and knowledge in one place...

[matt]

Hello and welcome to Tourette's Action on HealthUnlocked!

It's brand new and there is nothing else quite like this in the world of Tourette's at the moment. The goal is simple: a secure area dedicated to TS where we share our problems, successes and tips. We want you to post, comment and experiment with the development of this website as much as possible. We want input from other people with Tourette's, friends and family and clinicians. Please spread the word.

You're currently looking at what will shortly evolve into a proper group blog made up of different people within the TS community. Blogs are great ways to tell your story or journey in instalments. Or they can be used to make observations or comment on news or developments within the world of TS. You might even think about writing a blog yourself. (If so you can request to become a blogger at the top of this page).

The Helpvine is like an online helpline in which you will be able to find questions and answers to a whole host of different issues raised by people like you. Previous questions will be 'tagged' to make it easier for you search and find answers. If you can't find an answer then feel free to ask your question. A panel of different volunteers will receive the question and hopefully be able to provide an answer.

The 'Big Question' is where we can all find out some home truths about key questions in TS. We all provide a response to the question and can see what the group feels as a whole. We love this feature - democracy in action!

We have the potential to really find out more about what really goes on with TS in peoples lives with this new website.

Please join and try engaging and participating in the system. You will help others with your knowledge as others will hopefully help you.

Here is a little video from HealthUnlocked explaining the point of the system. youtube.com/watch?v=a3Q4htk...(Not working as expected?)

There's also a little green tab on the right hand side of the page. Try pressing it. You then select to feed back a question, a problem, a suggestion or (even) just praise!

Please watch this space for blogs that will be appearing here soon.

[Rachowl]

Love the idea in itself and am sure it is a very positive step in the right direction.

Having watched and listened to that video clip though, I have to say I cringed and winced every time the word illness was mentioned.

Really dont want to sound negative and critical but in all honesty I disliked it. Sorry.

[gobstar]

I have to agree with Rachowl, surely 'condition' would have been a better word than illness!

[Nomad]

Hi Rach and Gobstar

It was a funny little video but near the start in one of the speech bubbles it says: 'always listening' only it's misspelt and it actually says: 'listeni6'

I kept thinking it was going to break into an innocent smoothie ad or the music video from Nizlopi's The JCB Song

Anyways, I don't have a problem about using the term 'illness' because a lot of people using the site will indeed have chronic illnesses and some will even have life-threatening and life-limiting illness

The site seems a good idea but when they interviewed the British doctor he looked like someone from The Usual Suspects standing against that wall and why they held the interview in a busy and very noisy restaurant with all those dishes clattering about in the background is a mystery. I had to switch it off after about a minute

[Hidden]

hello Nomad not heard your name for a long time regards, Charlie's Dad.