somatic tinnitus : I wonder if anyone has... - Tinnitus UK

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somatic tinnitus

Silenceseeker421 profile image
8 Replies

I wonder if anyone has experienced the same symptoms as me. About four years ago, I’ll began to get hissing in my ears, both sides.

Applying pressure behind my jaw makes it quiet. Or stretching my jaw wide open for a few seconds. I can get a few moments of relative silence.

I have had MRI scans and x-rays and no one can find anything wrong.

I have even tried Botox, but with no results.

I would be very interested to know if anyone else out there has suffered in the same way.

Or if that anything that can help.

Some days it feels desperately loud. Still searching for treatment four years on.

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Silenceseeker421
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8 Replies

Hi, yes i have somatic T its basically related to movement..its a sub type of T and very annoying, i also have droning and ringing, the hissing is when i move my jaw etc and sometimes worse on some days, i understand all T is a stress response from the body, when we are stressed or tense or have some trauma to the ear we can get T as a result, personally i feel its muscle tension and stress overload as to why i have it, so i discovered Julian Cowan Hill on You Tube who explains exactly what T is, including somatic T, he helps us understand how we can take practical steps to alleviate it, he had T for 20 years and found a way that helped him and now he doesn't have it, he has gone on to help many others.,,sadly on the internet you wont find positivity on T so i encourage you to seek him out.

TinnitusUKPat profile image
TinnitusUKPatPartner in reply to

I respect what you're saying, Seabob. I would maybe disagree that you won't find positivity on tinnitus on the internet.

If you frequent a lot of social media groups or other forums, you can find negative ideas and viewpoints, sure - it may seem like an circular echo chamber of people discussing how much worse their tinnitus is than the previous person who posted that their tinnitus was bad. Human nature in a granular view, perhaps.

I'd always cite our tinnitus.org.uk, support groups and this forum as places where you can read a more balanced perspective. We're gearing up to relaunch our Take on Tinnitus self-help website soon and that's a resource dedicated to explaining tinnitus and helping people to manage it.

There are also people like Julian Cowan-Hill (juliancowanhill.co.uk/), Outring Tinnitus (outringtinnitus.com), Treble Health (treblehealth.com/) and any number of local audiologists, counsellors and all round good eggs out there who can help a lot with tinnitus.

What the internet does, hopefully, is bring us closer to those folks when we need their help.

in reply toTinnitusUKPat

Thank you i always reference Julian Cowan Hill as he is the only person i have found who is positive and doesnt hold to the usual negative responses on websites where they suggest CBT etc etc,

TinnitusUKPat profile image
TinnitusUKPatPartner in reply to

Just to clarify, Seabob, you feel that CBT is itself a negative suggestion or that sites you've visited haven't suggested using this type of treatment?

in reply toTinnitusUKPat

CBT is helpful but what i found far more helpful from JCH was an explanation of what Tinnitus actually is - and learning that its a symptom and people do recover from it - its not an illness - CBT and other techniques can be very helpful but for me personally knowledge about T helped me go forward, people need to be aware that there are things we can do to help alleviate it, it's not false hope.

TinnitusUKPat profile image
TinnitusUKPatPartner

I think that's what CBT also offers - it helps people who are convinced that tinnitus is incapable of getting better and stuck in 'fight or flight' mode to see that their fears are often driving their distress, rather than the tinnitus itself.

Biased here, I admit, but I think we would tell you what tinnitus is and what it isn't - and what we hope is that people feel able to take those ideas on board and manage their tinnitus rather than be looking for cures where there are none.

in reply toTinnitusUKPat

Quite saddened to see on Tinnitus Uk website they don't recommend things like acupuncture etc...what a shame...this can really help calm the nervous system, it may not be a cure but it can help you calm and that will help the T..I speak from my own experience,

TinnitusUKPat profile image
TinnitusUKPatPartner in reply to

Acupuncture isn't recommended currently as the evidence base isn't there for it as a tinnitus treatment - relaxation is a slightly different proposition. It would be difficult to come away from a chat with us or a visit to our website and not get the idea that relaxation and stress reduction are big helps for tinnitus distress.

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