Exasperated by using all the things in my tinn... - Tinnitus UK

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Exasperated by using all the things in my tinnitus toolbox

Tinnitus2709 profile image
10 Replies

I feel as though i need a little help in the form of medication yet my Drs are extremely reluctant to give me anything even though at least twice a week or more my T flairs up and i am going mad. It also can't be good for my brain(stress, mental anguish , too much thinking usually negative thoughts). I know for a fact that just a few benzos a week would save me from this pain/ordeal yet they won't entertain me. I think it'll take a breakdown or worse before they listen. Has anyone got any advice on how i can get the relief i so desperately desire??? Thanks

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Tinnitus2709 profile image
Tinnitus2709
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10 Replies
surviveT profile image
surviveT

I have debilitating tinnitus which has got worse recently . You would need the ENT or Psychiatry to authorise GP to prescribe Benzos - and they would only prescribe for short term only ( if u are desperate you could get these for longer)

I am trying L Theanine at present which does take the edge of the T - link below to a good one as has no additives . It is a natural supplement

amazon.co.uk/REDWELLS-Thean...

doglover1973 profile image
doglover1973

Hi there. I'm sorry you're suffering. My T is spiking at the moment too. On top of the high pitch hiss I feel like I'm in a windy tunnel. It's very uncomfortable. I don't know what to suggest. I'm just doing what I always do. Relaxation, sound therapy, challenging negative thoughts. It's not easy. I suggest you say to your GP what you've written in your profile. It might spur them into action.

surviveT profile image
surviveT in reply to doglover1973

do have these sounds on both sides? How does yr T respond to sound therapy as i have problem with this - thanks

doglover1973 profile image
doglover1973 in reply to surviveT

Hi   surviveT I remember you have a problem with sound therapy. That's tricky. I have a hiss on both sides and the windy tunnel in my better ear . I keep sound therapy very low so I can easily hear the T . That way it's not a surprise when I turn the sound off during the day or at night. Good news about the L - Theanine .

Tinnitus2709 profile image
Tinnitus2709 in reply to doglover1973

I have been shouting from the rooftops to all health carers for decades. Ive came to the conclusion that they know feck all and its down to me to deal. The best thing i do to get some (well quite a lot actually) is go on long bus or train journeys. The rumble of the bus and the passing scenery seems to take me away from it all. Its a bugger aint it. The advantages of having it for me is that im always the calm one when theres mayhem around. Cause im in my own wee world, I just don't give a shit about other people's minor crisis. I think "at least you dont have a broken radio in yer head 24/7! Give me a broken limb or whatever ailment rather than T any day of the week. Need to get on with it, nothing else for it! Itll get better maybe or ill just need to get more beer 😁good luck all.

ETHEL103 profile image
ETHEL103 in reply to Tinnitus2709

Well said.

Ravks profile image
Ravks

Hi,

I hope your T flare up settles. I don't have much advice to give as my journey has recently started with T and trying to find a coping mechanism. My consultant told me yesterday to ignore T I said easier said then done.

At the moment to help sleep I will listen to guided meditation or flowing stream.

I was all T sufferers lots of love and prayers 🙏🏽💜

Mac-beats profile image
Mac-beats

As a fellow sufferer I am not belittling your issue, it’s a hard thing to deal with. But what I have found is by NOT desperately seeking relief and letting it be, it doesn’t stress me as much.

My attitude now is ‘ this is a pain in the butt, but I can live with it’ OR ‘ I’d rather not have this but I know it’s not dangerous, just annoying’.

Maybe come up with your own words or phrases and it may help. Definitely worth a try IMHO.

Best of luck and sincerely wish you well.

Tinnitus2709 profile image
Tinnitus2709 in reply to Mac-beats

We all have different strains. Glad you can cope. My toolbox is full and i still struggle everyday and dispair every week so each to thier own!

Persevere99 profile image
Persevere99

Hi

If interested read my own T post where I describe how I came off the clonazepam that I had been taking for 10 years to get to sleep with the T.

No clonazepam now for the past 5 years.

Persevere99

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