Tinnitus on four day cycle. : I have had... - Tinnitus UK

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Tinnitus on four day cycle.

Ivan_the_Terrible profile image

I have had tinnitus in largely in one ear since having my second Astra Zeneca injection. It has tended to come and go on a four day cycle. At it's worst it is quite painful, and cause headaches, the tinnitus seems then to go through my head from ear to ear, like an electric current. I think it may been aggravated by Hawthorn tea (leaf and flower) which has in the past been beneficial for my heart. Does anyone have any suggestions as what could lie behind the cyclical nature? I did decline a brain scan recently because I was concerned about possible reactions to red dye, perhaps that was unwise. I'm currently abroad until end of March so arranging another scan will take time. Thanks for any help.

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Ivan_the_Terrible
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39 Replies
Sadie2022 profile image
Sadie2022

Hi Ivan. Also have developed tinnitus after third Pfizer although this may be a complete coincidence :. I had an MRI as the T was predominately in one ear which apparently means they would want to check for specific causes - although I’m told often there is no cause. My first MRI was without dye and was only with dye if needed ie they’ve picked something up. I had both and had no issues with either procedure. Hopefully you can arrange a scan for when you return. Good luck

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toSadie2022

Thanks Sadie. My guess is that in some people vaccines act as triggers for long term tinnitus. As, I recall my tinnitus came on within a day or two of the vaccine, which I had last May. I think it will be a long time, if ever, before the medical profession admit any link as it would expose them to claims. Thus is the progress of medical science arrested.

Philip6 profile image
Philip6

I’ve taken hawthorn extract capsules for years, for blood pressure, they have no effect on my ears whatsoever. The MRI is nothing to worry about, they don’t use dye.

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toPhilip6

Which part of the Hawthorn tree do you take? Packets often show berries but the contents may be leaf and flower.When I went for my scan they wanted to use dye.

Philip6 profile image
Philip6 in reply toIvan_the_Terrible

The hawthorn capsules are based on the leaves and flowers.

Yogachamp profile image
Yogachamp

Hi Yes this happened also for me after my 2nd Vaccination & yes doctor just dismisses this when I mention it . Had bothersome Tinnitus since May , some days it’s quieter but I’m always aware of it . Now I have a wedding in Australia in December which is looking like I won’t be able to attend as I’m scared to have the booster .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

I mentioned it to my GP and a few days later he announced his retirement!

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

The 'right to be believed' may apply if you are reporting sexual assault but when it comes to reporting things to the doctor which might expose them to a claim for liability it most definitely does not apply. You are more likely to removed from their list.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

Yes Your right Ivan , although I do not wish to make a claim , I just wanted some help & understanding from them , which I never got as they don’t know anything about it that’s why .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

They did refer me to hospital for tinnitus, maybe because I made a fuss. No prospect of suing them, but I don't think the MHRA are in a hurry to acknowledge any side-effects because of liability.I'd have thought that tinnitus from exposure to some foreign substance is more likely to be reversible than that through exposure to noise. At present I'm trying acupuncture and Chinese herbs which are for me affordable at Russian prices.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

HiYes if only there was a drug to reverse it but sadly not ,let me know how you get on with acupuncture & herbs , I have paid out for CBT & now coaching with a guy who has it himself & coaches people to manage it better . I find when I am busy it doesn’t bother me as much but I like to relax in the quiet & that is when it’s difficult . Everyone says it gets better in time & you just learn to live with it so let’s hope that day comes soon .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

I think that stopping taking certain drugs may reverse it. It's been particularly bad this week but that's since I started taking a blood thinner, since I stopped it's abating. So if you're on any regular meds or supplements they may be implicated. We have to be our own doctors.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

I’m not on any medication , only vitamins , it has started to go into the background on certain days so I’m praying it will go further back in time Good luck on your journey to recovery

Laney

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

And good luck to you too, Peter

Flints1955 profile image
Flints1955 in reply toYogachamp

This mirrors my own experience.after second vaccination kept asking my wife if she was hearing those birds. Now taking betahistine which I'm too frightened to stop.

Yogachamp profile image
Yogachamp in reply toFlints1955

HiI can’t believe how many people affected by this it’s terrible . I was going to try Betahistine had it helped you .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

Suggest you read today's issue of the Daily Sceptic, particularly the letter from the lady resigning from the NHS. I rather fear these posts will disappear as anything which questions the benefits of the vaccines is classed as 'misinformation'.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

Thank you Ivan I will & yes nobody believes me they think I’m making it up

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

Insist on the right to be believed, as a female this might be easier than for a male. Point to the number of reports of tinnitus on the MHRA website. I myself never had a problem being believed: I had a T-shirt made saying I regretted having the vaccine and generally made a lot of noise. I should have kept my bills for acupuncture and Chinese herbs, the fact that I am spending money would be evidence for anyone who questioned it.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

YesI too have spent over £500 & would pay anything to be rid of it but now know it’s not possible , but do curse the day I had the vaccine , yes so many people don’t believe me but that’s up to them I have to live with this now .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

What did you spend your money on? I feel I may have got something for my money. I think tinnitus from a foreign substance is more likely to be reversible than that from exposure to loud noise.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

Well I hope your rightIt’s actually more like £800 or more I have spent . I have had private CBT therapy , Cranial Massage therapy sessions still having them & a guy from Berlin who has Tinnitus himself I Am having Coaching online sessions how to manage it & live with it .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

For info about Chinese herbs Google 'Peter Popham Tinnitus + independent'. Acupuncture you must have heard about, at the acupuncture clinic I was recommended to brush teeth with salt and treat any decayed teeth. Turns out I had a tooth with a decayed root right next to the infected ear. Guess you have to try anything and everything, but keep looking for triggers. In my case nobody else asked about my medications.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

Yes I have a dentist check up next week so guess I will find out then if any teeth issues

Do you feel the acupuncture & Chinese medicine is helping .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

I try not to give myself false hopes. The pattern of the tinnitus, two days inaudible two days audible with a peak every fourth day was beginning to break up a bit before the acupuncture/massage and broke up much more during it. I started the herbs three days ago. A few days ago I had one cup of Hawthorn tea and then restarted taking some blood thinners and then had an awful attack, the worst it's ever been, I needed to take barbiturate and alcohol to sleep. I twigged about the blood thinners and stopped taking them and it seems much better. As far as I can tell both Hawthorn and the blood thinner in question promote blood flow to the brain. I took the blood thinners for a few weeks in the autumn and think they may have perpetuated the tinnitus. I'll need a few weeks to judge whether the treatments have helped and because I tried a few things at once if there is improvement won't know quite what helped. But in my case I think Hawthorn and blood thinner may have been a particular trigger in combination. Unless the level of tinnitus is constant it may be helpful to search for aggravating factors and these may be a combination of things. BTW pine needle tea has been recommended as an antidote to the effects of vaccines.

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toFlints1955

Please see my reply to Yogachamp.

Yogachamp profile image
Yogachamp in reply toIvan_the_Terrible

Wish I knew what causes the fluctuation I can have a few days of it in the background then a really loud day . I can sleep even if it’s loud I drink chamomile tea before I go to bed & do some deep breathing exercises to relax & generally sleep fine , I do try & stay active as much as I can to tire myself out .

I am a bit scared of trying medication so have just been using vitamins .

I might try the pine needle tea that sounds quite safe .

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toYogachamp

I wasn't recommending any medication. The barbs, which you can get over the counter in Russia, were an extreme measure. Better try to sleep as we're 3 hours ahead of UK.

Hi there Ivan and anyone, July21 - second dose of AZ and Tinnitus onset after about 10 days.

I would rate it at about 4 level - persistent but capable of being ignored during day and nighttime if needed a dose of white noise and rain enough to distract.

Last night NEW experience after 7 months. High pitch noise in right ear - only one ear , I would rate it an 8. Played white noise close to head for hours and dropped off to sleep. This a.m …gone. So weird.

Lucky to have a 4 normally but that took me by surprise - anyone else had this happen ?

Mike

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toBurntorangeheresy

Did you do or take anything out of the ordinary which might have triggered this spike? Are you on any meds?

XyZed profile image
XyZed

Very interesting. After reading your post I just looked back and it seems my Pulsatile Tinnitus started within a week of having my Covid booster jab. I would think it's most likely coincidence though. If you think about it almost everyone in the country has been having their COVID jabs, so with people developing Tinnitus all the time there are forced to be many people who notice them both happening at roughly the same time. This is similar to the explanation of lots of children developing ADHD after the MMR jabs.

You never know though..

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toXyZed

That's how the MHRA and mist doctors would like us to think. Onset of ADHD is I would imagine gradual, onset of tinnitus in both our cases has been sudden. I'd look for triggers, the vaccine is an obvious potential trigger. You will surely have a better chance of reversing or ameliorating it if you are aware of, or at least as a starting point can form a hypothesis as to what may have triggered it.

XyZed profile image
XyZed in reply toIvan_the_Terrible

Hi there. Yes I agree that it could be a trigger and should not be dismissed. I'm just speculating that on balance it could very easily just be coincidence.

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toXyZed

If I take some substance which I've never taken before and within hours get a strong reaction such as I've never experienced before then on a very strong balance of probabilities the reaction is caused by the substance. If a number of other people have the same experience then this might even pass the threshold of reasonable doubt. The MHRA have plenty of reports to enable them to test this, they haven't got back to me for more details and I haven't heard of them getting back to anyone else reporting tinnitus. Maybe they are short-staffed, in which case they might ask Bill Gates for another million, or they don't want to establish a link. I find your reaction to developing tinnitus so soon after the vaccination surprising, I wouldn't expect anyone in your position to want to play down the possibility of a link.

XyZed profile image
XyZed in reply toIvan_the_Terrible

Hi. Yes, again I agree. If you'd have initially said it happened "within hours of the jab" I would have interpreted it differently. Mine came on "after" the booster jab, but it was possibly a few days or more after. Unfortunately I didn't take note of the exact day it started so for me the link is much more tenuous.

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toXyZed

If you'd had two jabs without problem then more reason to doubt a link. Was the booster a different vaccine? I don't know about pulsatile tinnitus, I think the booster if a different vaccine is a suspect but I agree there are other possible causes.

XyZed profile image
XyZed in reply toIvan_the_Terrible

Aye, first two were the Astra Zenica and the booster was Pfizer

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toXyZed

cureus.com/articles/78862-t...

Ivan_the_Terrible profile image
Ivan_the_Terrible in reply toXyZed

healio.com/news/primary-car...

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