Hi, : Hi Everyone, I recently started getting... - Tinnitus UK

Tinnitus UK

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Hi,

Gill_81 profile image
18 Replies

Hi Everyone,

I recently started getting Tinnitus. Its not been easy i have gone through all the emotions/anxiety probably the worst thing for Tinnitus but its not easy. I just wanted to ask this community any help you have would be so appreciated like Vitamins, Sleep Help, Can i still listen to my wireless headphones, Some forums on FB can be very confronting and i don't think that helps in the long run. so anything i would be grateful

Gill x

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18 Replies
SB7516 profile image
SB7516

Hi Gill,

I recently started getting T too. I read that Iron tablets could help so I’ve started to take them as I can’t see why it would hurt anyway. I’m also confused if I can wear my wireless AirPods but I assume that if you can wear hearing devices that transmit white noise etc then it’s ok as long as the volume is not loud? Sorry I cannot be more help x

Gill_81 profile image
Gill_81 in reply to SB7516

No thats great thankyou its been such a shock to my system this and i am trying to calm my nervous system but hearing other stories helps so much i might try iron too xx thankyou xx

Footballer58 profile image
Footballer58

Hi Gill

Huge empathy

Mine began in February both ears and 24/7

Read some books on the topic T understand the need for mindfulness as self help.

I couldn’t live without something in my ears to sleep. I have a sleep mask with inbuilt speakers and a brilliant white noise app - i use crashing waves bit you can also do talking books on a timer which helps.

Get help if you can - not easy

Best wishes

J

Gill_81 profile image
Gill_81 in reply to Footballer58

thankyou i was looking at the sleep pillow myself i have been using my tablet on white noise or a air purifier, but that sounds good what you use i am getting some extra therapy s to try and relax but its hard isn't it thanks so much for the reply x

Pamlemur profile image
Pamlemur

Hi Gill,

I have had Tinnitus for 4 years now, I have progressive hearing loss and wear 2 hearing aids. I was referred to see a hearing therapist as the Tinnitus was affecting my mental health. It is at times very loud and I have 2 different sounds, worse when stressed or tired and sleeping through the night was problematic. At times it seems to fill my whole head. These are my coping strategies: Mindfulness-doing anything that I can just concentrate on such as colouring, baking, origami, crochet. I took up Tai-chi which is relaxing, there are some very good clips to follow on You Tube. I use a sound therapy unit at night, playing brown noise, it is important to set the volume below the level of the tinnitus otherwise the Tinnitus sound will increase and compete with it. I was very sceptical about using this at night but it is about retraining the brain, it took a few weeks for it to work for me and also to get the right sound. There are sound apps that you can download on a phone so no need to buy a special unit. I hope some of this may help you, unfortunately there is no magic cure and it is a case of finding out what works for you. x

Gill_81 profile image
Gill_81 in reply to Pamlemur

no this is brilliant, everything you said is right i found some apps that help and i have them on i tend to have it low cos i was worried bout making the t worse but it has got better to sleep but its just i used to love chilling and that is what i cant seem to do but i have to stay positive otherwise its all i think about. thankyou for your kind words it really does help x

Finnitus profile image
Finnitus

Tinnitus is not an affliction, but a sonar messaging from the galaxies and only those with a higher intelligence quota are detecting it. We are the chosen ones, what we need to do is reason with these resonances, decipher, decode and ultimately translate what is equivalent to a hieroglyphical metaphor in a scale of extreme octaves which are becoming more prevalent since the advent of a lessening in aviation due to Corona Virus restrictions.

Gill_81 profile image
Gill_81 in reply to Finnitus

well i never thought of it like this. x

Susmag profile image
Susmag in reply to Finnitus

Love your reply!

Finnitus profile image
Finnitus

Thank you Gill, both Morse and Louis Braille had Tinnitus, look what they achieved.

Gill_81 profile image
Gill_81 in reply to Finnitus

i never knew that x maybe i am not going slowly mad then

Finnitus profile image
Finnitus in reply to Gill_81

Pavlov's dog didn't have Tinnitus, but just as Quasi Modo, he developed an affection for jingling bells.

TinnitusUKPat profile image
TinnitusUKPatPartner

Hi Gill. Thank you for joining our community and for reaching out for support with your tinnitus. The folks here are friendly and we try to ensure that nobody seeking information or sharing their story feels threatened or belittled - I know that isn't the same situation on other online support services.

I would encourage you to take a look at some of the advice on our main website - tinnitus.org.uk - and make use of our support channels if you need to:

Helpline- 0800 018 052

E-mail - helpline@tinnitus.org.uk

Web chat - click on the 'Chat with Us' button on any page of our main site.

Direct support is available Monday to Friday, 9am to 5pm.

With best wishes

Pat

Tinnitus Support Team

British Tinnitus Association

Gill_81 profile image
Gill_81 in reply to TinnitusUKPat

thankyou xx

Finnitus profile image
Finnitus

Learn The Brook by Tennyson, recite yourself to sleep while imagining the content of this wonderful noisy poem which is ideal to mask Tinnitus.

Finnitus profile image
Finnitus

Rough Sleepers.

I wish I could invent a

memory because those in

my possession have been over

used and lost their potency.

I need something to counter

balance those vivid nocturnal

hauntings that are akin to

tinnitus televised.

A souvenir of something

more dynamic than those

I have failed to erase.

There is no vaccine

for misdeeds no amnesia

pill, no noise quietner,

insomnia is the only refuge

for rough sleepers

Finnitus profile image
Finnitus

Vincent Van Gogh had Schizophrenia and Tinnitus.

Chall11 profile image
Chall11 in reply to Finnitus

It’s good to see a psychologist to know what our diagnosis is that goes along with our tinnitus.

I know my diagnosis now and it’s helped me a lot

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