NHS hearing aid driving me mad !!!: Had tinnutus... - Tinnitus UK

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NHS hearing aid driving me mad !!!

dcb58 profile image
11 Replies

Had tinnutus in 1 ear at least 10+ years and lately have struggled with hearting in that ear so took the plunge and went to NHS for a hearing aid

Finally had the appointment 7 months later after me chasing them up

She told me it will feel strange at 1st but i need to perservere with it as its just my ear getting used to noise again

She did also adjust the volume down

Really !!! after hospital i walked home but all the time i could hear loud rustling noise when i moved or a car went by

When i was texting on my phone i could even hear the keyboard clicking away

Microwave just ended but was ringing in my ear

Was so glad to take it out before bedtime as it was driving me insain

Has anybody else experience this at 1st ?? and does it get better in time ??

Someone has told me to go private and get a digital one but see they are £3,,500 and as im unemployed cant afford that sort of money

Any help would be so much appeciated as it was this week i had a woman i known for 30 yrs said to me have i upset you so told her no why she said she spoke the other day and i ignored her so had to tell her well if you spoke it must of been in my left ear then as i cant hear much in that ear

Also have noticed last 4 months if i blow my nose i lose my balance if i walk straight away so can this to be to do with Tinnitus ??

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dcb58 profile image
dcb58
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11 Replies
Xene profile image
Xene

Yay dcb58, all I can say is that when I got my hearing aid nhs a couple of years ago (I only have one hearing ear) I was amazed at all the sounds I hadn’t noticed that I didn’t hear any more. Try to persevere with it or maybe go back and get the volume readjusted? It didn’t do anything for my T but I’ve had that 30 years so didn’t expect any miracles 😂

Good Luck

Xene

dcb58 profile image
dcb58 in reply to Xene

Well they did adjust the volume when I was there but doesnt matter what noise around me it makes such a noise and cant cope with it

Today I not even bothered trying it in as i know it would drive me mad

Tony75 profile image
Tony75

I still remember the 1st time I got mine, I experienced the exact same thing you described, but, luckily, my audiologist was able to correct. It may not be easy but you need to describe the sound to them, and hope they're educated enough. Mine listened to me as I described how I could hear the crinkle of paper, rubbing my hands against my jeans sounded like sandpaper, everything was so loud I even lowered my voice to a whisper! From what I could recall, she said something about compression, not exactly sound output! Anyway, over the years, as I went through several, I learned that every time, they will start off with the wrong program and it was due to the hearing test! My hearing loss was very gradual but it was due to tinnitus, and I explained to any audiologist who would listen. When testing, it appears my loss is severe but that's not true and that might be what you're experiencing too. I couldn't tell the difference from the test tone and my own ringing, especially when I start hearing it after the test begin. Like phantom tones thus I wasn't sure when I hear it or not. I suggest you do a little research yourself but don't wear these until you really need to, like when listening to someone. I only wear mine when I need to, and I only wear 1 side too!

dcb58 profile image
dcb58 in reply to Tony75

Ok well yes mine does sounds the same as what you 1st had

Today no way I could put it back in so will see if I can get another appointment and get something sorted out

PARVEZKHAN1003 profile image
PARVEZKHAN1003

I do share ur feelings with NHS hearing aid,simply waste of time .I just have to learn to live with Pulsatile Tinnitus.

dcb58 profile image
dcb58 in reply to PARVEZKHAN1003

Glad you too think NHS hearing aid is a waste of time..well I dont think I will bother using it

meggiemog profile image
meggiemog

You need at least 6 weeks of wearing before your brain adjusts. But it might still be wrong. I have had my first hearing aid changed for another one that I can adjust the volume on. It still doesn't work for me as my hearing is damaged to the point of hearing distorted sound - but I still am wearing this as it helps me hear my mobile phone ring - and that's about it. I am waiting for more tests as I had to get a second opinion. They will take you more seriously if you try to wear the aids regularly. Hope you get sorted out soon.

dcb58 profile image
dcb58 in reply to meggiemog

Thanks for your reply back to me and yes I do understand I need to wear it constantly for my brain to adjust but all this extra noise going on all the time certainly is not right

I can hear my phone ringing just when I am out and in a crowded place I cant hear what people are saying

Lynne-H profile image
Lynne-H

Is there a volume control on your hearing aid. When I had my first hearing aids NHS (5 years ago) I couldn`t wear mine - they made my tinnitus sound much worse at a time when I was in a bad way with my tinnitus.

So I didn`t wear them for a long time - then one day when I was feeling a bit better I just happened to be looking through the booklet that came with the aids and noticed a volume button so I gave it a try - turned them down and from then started to wear them every day. You do have to turn them down every time you put them in as they always go back to default. But it might help you until you go back to audiology.

I don`t think all aids have this facility - I have private ones now which are self adjusting. Just thought it might be worth a try if you are able to do this.

Lynne

dcb58 profile image
dcb58

Thanks for reply but I am not able to adjust the volume myself as she lowered it when I was at hospital through her computer screen

meggiemog profile image
meggiemog in reply to dcb58

You do need to go back and see them then - my first hearing aid had no volume control - the air con at my work would drown out any sound I could hear! They can tweak them. I have had the t loop removed on mine as I couldn't tell whether it was on or off!

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