My tinnitus is not loud enough to hear during the daytime. But it is so clear during the sleeping time. I am terrified the every night when all my children and husband and my mom are sleeping, I will be in the biggest fear that I will be suffering again with very small amount sleep and worried my life in almost end with no enjoyment at all.
Anyone who is positive tell me that how to conquer the fear of T, not only the noise itself, but also the change of the life causes the truly enjoyment anymore since the T is always the background of your life
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Annajiang
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I am a mother of three, the youngest is only six months. My GP says I am in depression and the symptoms of tinnitus May caused by depression. But the tinnitus is now the biggest causes of depression,so it is a bad cycle. Who can help me and any advice to break the cycle.
I have been in a similar position since February. Although t started during 3 month sinus infection last September. I am on low dose sleeping tablets to help me get off to sleep and continue to use relaxation tracks and mindfulness apps in the early morning. I had to push for an individual audiologist consult - and will be reviewed in a year. I was given a book recommendation - living with tinnitus (sold by British tinnitus association) - have read and found approach a bit irritating. However I did recognise some of the patterns I had slipped into. Saw audiology a month ago -they want me off medication - so now having a similar battle again with withdrawing sleeping tablets and tearful nights. I have balance issues with tinnitus - I have found falling asleep on the floor easier than in bed. mindfulness seems to be the best thing for calming system down. White noise does not seem to help with sleep side but helps concentration while at work. I use a small fan at home to help with concentration on hobbies. I find tinnitus more manageable outside, in a car or on a train - so I ensure I am not spending long periods inside to make life more manageable. I have not kept my struggle to myself and this has meant others have shared their experiences and what has helped.
Just seen your second post - insist on a referral to ENT where you will be referred to an Audiologist. My biggest fear also was getting to sleep , indeed for weeks I had very poor sleep indeed which affects everything. During the day although aware of the noise it did not bother me as much as being able to get to sleep. My GP ( when I went because initially I was hoping it would just go away ) sent me to ENT and turns out I had hearing loss at high frequency of 25% ( which explained a few other things over the last 5 years) but tinnitus only since January this year. He also prescribed sleeping tablets which were a life saver. I now have tiny hearing aids - resting behind my ears with the smallest tube into my ear - like a newsreader 😊 - I’ve apologised to my grown up son whom I had been asking for years to stop mumbling - wasn’t him it was me 😂 but most importantly my hearing aids also feed tinnitus sound therapy ( in my case pink noise) Had them 3 weeks and my tinnitus is calming right down ( wear them and play the sound all the time, the idea is the brain learns to ignore the tinnitus. So I am now weaning myself off the tablets - life is sooo much better. I tell my story only as an example of progress. I too though life as I knew it was over. It was not - just different now in small ways but am enjoying life to the full. Insist on medical help , hearing tests, consultations etc. You are entitled to insist on a referral. Good luck Annjiing, don’t give up - your enjoyment will return and fear will recede( they can help you with the fear as well which can be more debilitating than the tinnitus itself) Please let us all now how you get on.
Hi. Not sure I can be much help to you. I have had T for several years. And sometimes it can be very loud. I have tried several different sounds and still haven't been able to tune it out. So the only thing I can do is accept it is there and just carry on.
I think the biggest problem with sleeping is in fact the fear that your sleep will be disturbed by your T.
Like I said, mine can be very loud at times. But as yet it hasn't disturbed my sleep.
So, rather than being fearful of it. Try accepting it if you can.
I feel just as you do , normally I cope with everything life has thrown at me but I cant cope with something attacking me from the inside, and the lack of sleep dries me demented , also the whole continual head/face pain the blocked uncomfortable feeling in both ears [ was one for 3 years now its both] makes me feel life has nothing good left to offer me, in the 21st century you would think a solution could be found but its just;oh well you just have to live with it; and what happens when you cant???
I've passed through the same vicious cycle a few years ago when my tinnitus started. Your family is great support but to me what really helped was doing psychotherapy and following the "meditations" on a mindfulness book. I wish you all the best, is not easy and you have to have predisposition. In the end to me helped me a lot more than pre tinnitus. Stay strong, I know it is annoying that everyone says you will get used to it, and that is the truth. I am almost a friend to tinnitus now although of course I wish someone finds a cure.
I've had t for a year, and at the start I felt very scared of it. Many things contributed to the fear - the suddenness of it, the fact I didn't know what was causing it, the uncertainty about the future. I couldn't say exactly how it happened, but somewhere around 9 or 10 months in, the fear faded away. It's still a nuisance, but I have found a kind of peace with it. I am used to the sounds now, they're 'my sounds.' I have realized that i can still do the things I love, perhaps not as effectively, but well enough to make me happy. I check for research updates every day, which helps me see that people are trying to help. I have talked about it with friends and family and even learned that some of them have t too, though I never knew before! I now think that t is even more common than the BTA's recent estimation of 1 in 8 adults.
My feeling is that many people can make peace with t, and get used to it. If there were a pill to cure it, they'd take it in a heartbeat, but for now they're quite content. I don't think actively 'trying to find a way' to get used to it is necessary, because I think if it is going to happen it will happen naturally with time - maybe therapy will speed it up, but it will happen eventually. I feel that if your t is quiet enough that you don't hear it during the day, this will probably happen for you, but I know how awful it is when you're trapped in fear.
Thank you for sharing the experience which makes me feel a little relief. I will get out from the fear zone sooner or later I know that, and I will fight to get my normal life back ASAP.
I know what you going through I’m the same , but the noise hearing can’t use when I take out I’m nearly deaf, mine plays whites noise what a horrible noise also,
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