So just got up (8:30am) and have discovered a new sound in the same ear. It is a low hum. Not super loud but it is there like a shaker low hum to go along with the ringing. Any idea why? I did go to the cinema on Friday but the sound came about Saturday afternoon and I don’t think the cinema has courses it.
Could the low hum be hearing loss? Any informed guesses? Because this hum is gonna be a pain to get passed. It’s like a hum but shakes if that makes sense. It does have this strange sensation when I talk like I can hear less I can describe it properly because I can’t think of the words lol. Stick your finger in your ear and it’s that blood flow sort of noise yeah I think that’s the best way to describe it. It’s like I can hear the blood flow.
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Have you checked about Pulsatile tinnitus? Honestly i can t really tell what has caused it either. My T keeps changing constantly throughout the day but lately I discovered about PT so check that out and maybe pay a visit to your GP or ENT
Thanks. Gonna ring up for an appointment tomorrow (docs is closed today) and see what they think. It could be PT but it was a sudden change yesterday. I blame the cinema because I didn’t realise how loud it was and the t has been a high pitch or ringing sound since I got it. It’s like I have my finger in my ear when I talk or even hum. I have ent next month so plan to ask then.
I can’t be sure but I’m positive some hearing has gone because of the muffled sound. I’m super ticked at myself for going to the cinema to see Avengers Endgame (good film) but had no clue it would be that loud.
Ah well after this reaction I doubt I’ll be visiting a cinema again the worst part is this past visit was the fourth time I’ve ever been (33yrs old). To scared to fly (don’t understand how a tube stays in the air lol) but I get what you mean lol thanks.
Gosh I still get new sounds after fifteen years .... but I wonder if your low hum is because you are dehydrated. I've certainly experienced that and I don't think it is to do with the carotid artery being very near the hearing system. If it persists it will just bed down with the lovely ringing ..... I just have a loud gas-fire hiss, sometimes in both ears - accompanied occasionally with long high whistles. Get outside and listen to the birds!!!
I’m white knuckling it right now. Honestly I’m fighting to keep myself calm but it’s failing. I’ve just rung the doctors and got an emergency appointment for 10:50 and going to tell them I’m struggling. I just can’t hear anything out of that ear using the phone I tried to see if I could hear the waiting music and had to push it right close to my ear (for a few seconds). I really can’t see me dealing with this.
I just tried the walk thing and that didn’t help. I used that trick with the ringing but the left ear just didn’t hear anything. Screaming inside. I didn’t react this bad when the ringing started. Just trying to hold on at the minute.
I wonder if the ear canal is bunged up with wax - which would certainly lock in the head noise. Also have you tried making your ears pop by pinching your nose and blowing hard against the fingers? I feel for you - and know so well that panic. Quite horrid.
Kalms (containing valerian) and CBD oil may help keep you more calm ...all good wishes
Thanks for the advice. I don’t think the ears are bunged up. It doesn’t feel that way. It’s just sound really. I can only hear if I push things super close to my ear. I had a short conversation with my brother outside and with my back to him I heard nothing in that ear. Got Doctors at 10:50 so I’m holding on until then and see what they say have no idea why it’s suddenly gone like this not being able to hear out of that ear and the worst part is it was only days ago maybe a week that I managed to get used to the ringing.
White knuckling is the only way I can describe it but thank god it’s only in one ear both and I’d have done something stupid by now. I was in tears just booking the appointment.
Been and gone and basically told there wasn’t much he could do and that I had to just hold on to what I can and try with everything I have to ignore or accept that it’s there. He said that Tinnitus is from to much noise not to little, which my ent has said isn’t how it works that Tinnitus is like phantom pains trying to fill the sound that’s missing. I’m strong enough to say that I got a bit emotional and while I’m sure it’s normal for some I always mock myself later because I’m a 6ft plus bloke who weighs sixteen and a half stone (relaxed muscle lol) so always think it would be funny to see me let my guard down.
He said to just wait until the 4th of June and see what ent can do. I mean I have no choice in that but I’m now walking around with an ear phone playing podcasts about science fiction conspiracies etc (I’m a nerd lol) to try cover the noise and it holding on. Hopefully the ent appointment will be able to help more.
Thanks for replying to my ramblings it helps to vent.
Ah, I just saw your post from the middle of the night as well as this one. I do hope you have enough scifi conspiracy podcasts to keep you going until 4 June. When I first got tinnitus the only respite I got was if I could focus on something else. But it's so tiring, I know. This will subside, like it did before. If it doesn't you will habituate. And just think - if it can suddenly appear, it can suddenly disappear too. A few weeks ago an extra noise appeared for me, above the ringing, it was worse than the ringing. Higher and louder. then I woke one morning and it was gone. I do kind of live in fear of more noises coming again, but then I read the twitter feed of a woman whose tinnitus was a whole symphony of sounds at one point, she had to go on anti depressants, but now it is manageable and she is moving forward in her life. Good luck, report back on how it goes ...
Yh I’ve been struggling. I’ve lived in fear of the noise change since I first got T and had done a ton of reading, very few positive ones until stumbling across this site and it having an app made it even better. I never thought of it like that (appearing suddenly) and you’re probably right. I’ve read many bad ones that made me thankful for just being able to cope. And trust me I think I’m now loaded up with a days worth and have some ready on a podcast app lol.
I will definitely report back because this place and you guys are the support that I lean on. Family and friends seem to think it’s just a noise and apparently reminding me or pointing out that “at least it isn’t fatal” helps.
Thanks for the information. My usual doctor isn’t a fan of giving me anything for my T and has said to speak to the ent first so they can say what they think might help first. I will write down your suggestion on my piece of paper that I’m taking and see what the ent doc says.
I’m coping currently by having a podcast playing in my ear constantly. It’s on a low volume just enough that I can hear it but low enough that if I’m doing something or taking I can hear the conversation so I’m doing okay with it today thank the stars.
It wouldn't surprise me that tinnitus for me the noise change all the time sometime as loud sometimes I hear two ringing at the same time for me from time to time some time is super loud sometime and just enough to get by. I think we all know what you're going through.
That’s why I came here to share. People around me don’t have it or do but haven’t mentioned it (but for a work friend whose father has had it for decades and doesn’t notice it anymore. He calls his life soundtrack says it’s a soft whistle with the occasional spike every now and then but wears a sound amplifier in his ear when it’s to much) so I know that when I’m on here complaining and breaking down it’s to people who know how bad it can be and what the bad times feel like.
I’m super thankful that I found this place and to my surprise there are actually people out there willing to listen (technically read lol) and give helpful comments rather than my Facebook group experience which never went well.
That's why I'm on this app. I give my advice my experience. And also take advice from other people that are suffering with tinnitus. Maybe someday they'll come with a cure. Good luck to you.
Quick(ish) update for your guys and it’s basically I had a better day today (it’s now 2am) listening to podcasts helped distract from this new sound. It’s still there a roaring sort of noise but I’m hopeful the fact that it has lessened and even been either super quiet or I’ve been distracted enough that it seemingly stopped for a while. The emotional breakdowns have stopped and I’m less stressed over it because I’m praying it’s only a spike and will go.
Having you guys on here to help has been a godsend and without it I don’t know how I would’ve coped. I owe you guys big thanks. I’ll update of any changes in the morning.
Loud again. Like my head is vibrating. I’ve had a nice easier time today but after almost 2 hrs of sleep this bloody thing has woken me up. Trying to remain calm. Trying to keep calm but I’m struggling again. Feels like my head is vibrating. The side of my face right near my ear feels strange as well now like it’s a little numb or tingles in an odd way.
😡 trying to remain calm. Trying to remain calm. Let’s see if I can get back to sleep 😐.
I’m trying to keep calm. Trying to be smart and easy about this but I just want to scream. I tried to reach out to my OCD mental health advisor today but was told that I had to just try to hold on that it should pass (we’ve never dealt with the T) I’m holding still almost. I had such an easier day today I actually thought it was going or at least calming down but NO!😡 here it is ringing in the morning. My hearing in the left ear has gone funny again I can close my ear and there is no level difference at all.
Starting to check off a list of “it’s your fault” in my head second is the doctor who came next and just have me drops to help clear the infection which didn’t work😡 and more and more not forgetting me for getting the infection in the first place and for going cinema this past week.
Struggling now. Left ears hearing has gone again. Ringing mixed with low hum. Head feels strange on the left side like I describe a tingling that is in my left cheek and under my eye. I’m shivering but not cold (I’m under my blanket). I’m trying to relax listening to podcasts in my right ear low volume like I did today but it’s not helping. Near tears and want to take a long walk off of a short pier.
Hating life right now. Please stop. For the love of all creation shut up! And I know ringing doctors will be pointless tomorrow because they seem to have little interest at all over it or have no idea what to do. June 4th needs to hurry up so I can ask the ent what to do or if there’s anything they can do. After a good day thinking it was easing off and going to sleep with no problem I’m woken by this!
Hi I've had it 38 years and at the moment its super loud in both ears. You have to try and relax, hard I know, but eventually you'll get through this stage. My husband has it as well and yesterday we both had a bad day. But we carry on. We're on holiday at the moment which really helps. Hubby says I fixate on mine, which I probably do, but it's so hard when its constant. I'm lucky as I sleep really well.
Hope you have a better day. Keep busy and remember it will seem to get better. You'll hear the noise but give it no attention. That's habituation. Don't keep looking at the forum either. I only log in occasionally as it doesn't help to read posts that are full of doom and gloom.
I come on here to vent my frustration. If I keep it in I’ll explode or do something stupid that’s why I posted on here so much last night. If I put it on social media I’m mocked usually so this is the only place I can think of.
Last night was very hard. It wasn’t about fixating on it. It was the inability to get passed it or even falling asleep. I know others have suffered it but I’ve never experienced it like this. The ringing is one thing but this new roaring one is the hardest one and add the vibration I just couldn’t cope.
It’s either on here be read and understood and hopefully given advice, on social media and be mocked or sit and have a break down.
Vent away. It's a complete life changer when the noises are bad. Mine is very loud all the time at the moment. I just try and carry on as normal. It's difficult, but what else can we do? I've been at the bottom of a black hole many times, but somehow I get through it.
I'm not belittling how you feel just trying to help as I'm a long term sufferer. Are you on medication? I take amitriptyline and 3 drops 2000mg 20% CBD oil. I think the CBD really helps with the anxiety for me. I also wear 2 hearing aids with markers in built. To be fair I don't use the masking facility all the time as it's just another noise in my head. It might help you tho. Hearing aids definitely lower the noise a bit as I'm very hard of hearing now.
No medication. They offered me antidepressants recently but they said they would rather wait until I’d seen the ent and let them decide what to have and then they’d sort out repeat prescriptions and I can understand the black hole part seems like I’ve fallen into one (sucked into one?) recently.
I’m honesty trying my best I am. Daytime I tend to ignore it by playing podcasts just slightly above the noise (read online not to completely cover the noise) and keeping myself busy and most of last night it was fine but it woke me up and was bad and I reacted like crazy.
I’m hoping they’ll give me hearing aids with maskers. It’s the NHS so I’m not sure if they’ll say yes. Last ent appointment I was told my left ear (Tinnitus one) was weaker than the other but they said it was because it was still infected. I’m willing to beg then just to let me try some to see if they help even if it can get me back to the ringing.
Even a small hearing loss with tinnitus can be helped by hearing aids. Mine are on the NHS and are very good. I tried some from Specsavers, but at £1500 they really weren’t as good.
I personally would try antidepressants ASAP as they will stop you getting further into that black hole. I’m not a doctor, but can only advise what I’ve done in the past.
If you’re coping during the day that’s good. At my worse I’ve literally stayed in bed all day until I knew hubby was due in! I sleep well however loud it is which is definitely a blessing.
Thanks for the part about the hearing aids. I think I’ve already written that the doc said I had a weaker left ear so hopefully they will say yes to hearing aids I’m happy with nhs ones to be honest and £1500 is way out of my price range.
I may end up trying antidepressants but I’m trying to wait until after the ent appointment to get any advice they can. The new noise isn’t really there in the day mostly at night and clearly I have been struggling lol.
I meant to ask how much hearing loss have you got/lost? Like I said I was told be the audiologist that my left ear (the t effect ear) was weaker than the right and put it down to the infection but now with the new sound and the occasional muffled hearing I’m thinking it’s a little more than before.
I know you’re not an ent doctor of anything lol I just have been wondering how to try to push for hearing aids at least as a trial period to see if they help at all. Sorry to keep commenting just trying to work out the best way to ask my ent doc and oh have spoken to my gp about the antidepressants and he agreed to prescribe them but as asked me to hold off until seeing the ent. Oh and my worst over the last two days is silently screaming and even wondering how long term “long term” would be.
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