has anyone took more levo than docs said to? and i so how was it?

[sandyslug]

[DeniseR]

Hi

Yes I did. I think it is different for everyone, depending on what their issues are. In my case it made my hypo symptoms worse, which led to my endo thinking I may have a Reverse T3 issue, so prescribed T3 for me. This has had varying results but I'm definitely better than I was.

Like I said, it depends on what is making you hypo I think, so not for everyone and needs careful consideration if it's what you're thinking of doing.

Good luck

[babycatcher7572]

Hi

Yes I did... I got very fed up of waiting 8 weeks between blood tests, then I'd have the test, then wait a week for results , then next docs appt? Oh 2 weeks! Grrr. I put my dose up to 100 mcg Levo . I told my GP what I'd done... She didn't seem to mind and changed my script. But I wud imagine some docs wud get the hump about it.

K x

[sandyslug in reply to babycatcher7572]

Ha ha oh yeah my doc wud deffo get the hump! Lol

[charliecooper]

Yeah, i'd upped my levo from 75 to 100 as i'd said it was not working for me and there was an article in Pulse medical doc from expert that said to try this before going onto T3. It made me really tired and hubby had to wake me up as i was still asleep at 12 noon. I am now on T3.

[KLR22]

I vary my thyroxine dose and take more in the Winter. You have to do what's best for you and your health. I was on 50 mcg for five years with the doctor never telling me that I might be undermedicated (I was at the bottom end of the range for T4). I was very ill before I realised that I wasn't on enough thyroxine so, since then, I've taken more responsibility for my health and make sure I'm on the correct dose for me. Doctors don't have much idea about the optimal dose.

Karen

[Mistral]

Hello

Yes I have, because some years ago after being in a terrible physical state for a very long time being told there was nothing wrong with me (a size 20 at 5ft tall and physically an utter wreck) I was prescribed (reluctantly) levothryroxine 100mcg because the blood test results (whether I was on 100mcg Thyroxine or not came back normal Indicating that the blood test to say the very least was suspect. I have times when I am 'poorly' aching, depressed and in a terrible state, so I bought a pill splitter. I take a tablet and cut it into 4 pieces (and take more or less 25 mcg,extra which seems to help) my GPs just ignore any problems I have so I self medicate (so bad as far as the medical fraternity is concerned) however, it begs the question are they concerned, not really.

[Duchy82]

Yes i have and pushed for increases as a result, i now can take up to 200mcg a day as i need to but i have a wonderful gp that treats me on symptoms instead of just blood test results

[Polaris in reply to Duchy82]

My doctor is very good too but I had to gradually up the dose myself until I felt better on 150 mcg. It seems this is the only recourse we have until the test results are broadened. It breaks my heart to read of the suffering of so many people simply because the tests are so rigidly adhered to. I agree with Karen about taking responsibility for your own health. The consequence of insufficient thyroxine in the body is too important to worry about whether the doctor is going to get the hump. If you start to feel better, it would seem unreasonable not to prescribe the higher dose.

[Duchy82 in reply to Polaris]

I agree it has been a slow process first finding the right gp at the surgery (which i nearly lost as our surgery is splitting into 2 and they nearly moved us to the one my preferred gp isnt at). Then building a relationship with her and trying not to step on toes making small suggestions etc. But then last time she said after i told her i have a degree in biology with endocrinology/ immunology specialisation that i would prob know more that her about it but it resulted in some freedom with my medication.

[sandyslug]

Mine used to but now goes of blood tests its so frustrating!