adrenal

visited the doc this morning a new gp to the practice and has totally agreed with me its highly possible i haven't m.e i have something to do wth my adrenal and cortisol they are fast tracking me to endocrinology, i was terrified when i walked into the doc now i feel at last i've managed to start my fight again . a big thanks to you all xxxxxxxxxxxxxxxxx

[Poppy03]

So glad, and well done. Let's hope that you get somewhere soon with this.

[Hidden]

Well done sha39 - you give me hope too, it's frustrating when the doc labels you with ME & you think, hang on there's just something wrong with my thyroid. I live with this pain every day and it wears you down 'cos you just can't do the stuff that everyone expects, big thanx to you xxx

[Hidden]

hiya spareribs xxxxxx

thankyou, i've always questioned the m.e and they just tell me to learn to live with it and its condescending lets hope now they sort me out and i can drop the label of m.e, do you know i'm starting to wonder if all these poor people are labelled cos like me they don't bother really really doing all the tests you need first before they can say you have an invisible illness. i'm starting to think we are invisible to the docs and thats why its called "invisible" xxxxxxxxxxxx

[Angel54]

really good news, hope you soon start to feel well. best wishes angie xxxxxxxxxx

[ChristinaGasparri]

Be careful once you get to endocrinologist. They will give you an adrenal blood test which name escapes me at the moment and that may still be normal. It happened to me. I had private saliva test at the same time and that came not normal. Consultant at hospital will not recognise this test however. He did not in my case despite telling him about saliva test and he did not want to know. NHS does not recognise saliva test only blood test. Best to consult Dr Peatfield if you can afford it. He is our only hope.

[Susanne in reply to ChristinaGasparri]

Hello Christina, I think I may have met you briefly a few years ago. I've just joined. Did you used to take the appointments for Dr Peatfield's Clinic in Totnes? I think I dropped the questionnaire in to you at your house. I am wanting to know who does this now for him. I see he will be coming to S Devon early Dec - but where does he see people now? One of the sites gives an e-mail contact down here as [e-mail], but my enquiry to this was sent back as an error. Like you my saliva test for adrenals was (very) abnormal, but was discounted by the Endocrinologist at Torbay and a blood test he did came back normal. Who would give me a prescription for Adrenal gland extract? I understand from Dr P that one should treat the adrenals first before going on to the Thyroid. Can Dr P? Ironically, I've found myself just too tired, after seeing to the responsibilities in my life, to push on with more tests. How are you in terms of progress with your health?

Best Wishes, Susanne

[Hidden]

hi

i can't afford private both me and my husband are disabled and on benefits so i'm just hanging out for them to help me . xx

[snowstorm]

I did saliva test (privately) which showed low cortisol & progesterone & aldosterone. This test was unaccepted by the first endocrinologist I saw. What I got was "Well if you have to go down that route. Your cortisol was fine last year when we checked it" My side effects of T4 were completely ignored.

Because am intolerant to T4 (36 side effects in total some of which are horrendous) and was referred to a different endo for second opinion because of this sensitivity. This time told:

"We do the saliva tests on children". My question - if it is acceptable and accurate for children why is it not for adults? It either is or it isn't. I do not know why have decided to come onto this site because I have not been diagnosed with adrenal insufficiency by the NHS but by myself and a very good nutritionalist. Also, yes, my B12 is low - by how much no idea - but again no diagnosis as such on NHS therefore no treatment. Am going to put myself on sublingual B12 because of the symptoms I have namely ----- fatigue, poor memory, mood swings, irritability, brain fog ( inability to think clearly). Also, B12 very important as prevention aid to degeneration of spinal cord, alzheimers and MS.

What else am I to do. Saw my GP who was supposed to have received the last lot of blood results which the Hospital Dr asked to be sent. Were they - no.

Have discovered recently the cortisol "steals" thyroid hormone", presumably when there is a problem - from this I read that is why even synatchen test do not show anything.

Anyway, so sorry for the moaning. Oh by the way, the Dr who took last bloods did say that monotherapy (T4 alone) in the main was not that successsful. Combination therapy ie T4 with T3 was much better for the patients. Also, that adrenals should be supported whilst on Thyroid medication and this support, ideally should commence before going on the medication.