Why are docs afraid of the big bad web?

Why insist on diagnosis by blood test only and treatment only by synthetic hormone? Smells fishy to me.

news.bbc.co.uk/1/hi/health/...

My guess is 2% of population would make someone a pretty penny.

[nanniejan]

HI Spareribs

Its funny how you read this ,yet still we suffer even if we are seeing the NHS doctor,is it that they are not keeping up with the latest research or is there any !!! Why do we continue to feel unwell ?

I'm now sick of being sick ,just wish someone would tell me WHY !!!!!

I did try to talk to you via conversations with no luck ?

[thyriodpest in reply to nanniejan]

Hi Spareribs,

totally agree with what you say about Doctors not keeping up with the latest research.I live in Italy and here if you have money you can get the best Doctors...have done so many times paying large amounts just to realize that I myself know more than the Doctor...you see I am always studying and keeping up with the new treatments ect...and as I am a nurse often they give you that sort of smile..as if you think that you know everything...try to be very humble in my approach and never mention the internet...they hate to think that we the 'patients' also have a 'brain' half the time my own brain is living in mental fog....full of pain and other problems..trying to help myself and it is now one year since i'm on armour thyroid...thanks to a good Doctor friend who is also a 'HAEMATOLOGIST' she keeps my bloods under control and gives me the tests for a good price. Sorry if this is a little long...but would like to say a big 'thank you' to all the people who are trying to help us and thanks to all the bloggers telling their own stories..only wish this blog site had been founded sooner!Bye for now assuring all the 'bloggers' of my prayers and wishing 'well' to all of you, its the least that we can ask for.

Thyroidpest

[LouiseRoberts in reply to nanniejan]

Hi Jan - If this a tech problem? If so, please can you report it using the feeback button. Thanks. xxx

[nanniejan in reply to nanniejan]

I really don't know why as i have been able to have other conversation ??

[Hidden in reply to nanniejan]

Yes I tried to chat with you but it didn't work - it was probably me, I can't see how to PM. I'll try again before I find the feedback button. x

[nanniejan in reply to nanniejan]

I tried to do feedback but dident work ,under spareribs name the start a conversation is not there so is that why !!!

[waveylines]

Oh wow spareibs -what a shocking article -but sadly i am not surprised. I have to say it is just because of those 'expert' doctors that i remained ill for so long!!!! These 'experts' erroneously gave me the label of ME & then blamed all my health problems on that diagnosis! How come no-one holds them to account when people don't get better under their 'safe synthetic' treatments but get better under private doctors who are prepared to look out side the 'box!' I feel really angry about this article because it smacks of dogma, not good doctoring -people are dying because of this dogma or like me remain ill for years.

I have just recovered my health -having found the combination of adrenal support, dessicated thyroid and vitamin D being the keys to unlocking my illness. I of course still have to remove the 3stone I acquired, regain all the muscle I lost due to lack of vitamin D & inabillity to exercise.....and that will take time! When I suddenly broke my leg without knowing why, my GP tried to scare me by saying it was because I was over prescirbed on Armour and it had weakened my bones. Infact a bone scan said that I had better than normal bones for my age and the NHS consultant found it was infact due to extremely low vitamin D -I have severe Vitiligo which means my body doesn't cope with sun -the GP's knew this but the consequence did not occur to them, despite my enquiry to them. Has the GP apologised to me.....of course not!!!!!

Sorry to go on but I am furious! I am geting well because of my own persistance and because I have educated my self not because of dogma struck 'experts'!

[sarahellen in reply to waveylines]

Hi Waveylines, just starting out on this have onle been given Levothyroxine and am unaware of any other options can you tell me about this natural thyroxine and how i can get it. Also why does it effect vitamin D, i alos cannot cope in the sun? cheers sarah

[waveylines in reply to waveylines]

Hi Sarah,

Vitamin D is now regarded as more of a hormone -it helps indirectly with the uptake of T3 into the tissues. T3 is the the useable part of your thyroid hormones (bit like glucose is to sugar) -if your tissues cannot absorb it then your body can't use it. I found correcting my low vitamin D level made a hugh difference. Your GP can test your Vitamin D levels -it's a blood test. The website called The vitamin D Council gives lots of useful info about its effect on your body. Low vitamin D causes fatigue, loss of muscle , poor memory, poor sleep, increases blood pressure, pins and needles, cramp, aches & pains....which are smiliar to some of the Hypothyroid symptoms.

Re dessicate thyroid - brand names such as Armour, Westhroid etc.. I went to see Dr Peatfield privately and he recommended this approach to me. I have to pay for them but it's really worth it as I can now work fulltime. I wouldn't transfer across without advice & guidance from someone like Dr P.

I hope this helps.

Ange

[jugemvicsar]

Hello spare ribs

Thank you for posting this article, it just goes to prove that we have to keep on keeping on and spreading the word about the inaccuracy of NHS blood test results.

Also to thank Lyn Mynott again for her hard dedicated work in bringing us all together, together we will go far and the word will be spread.

Wellwisher

[shaws Administrator]

It was interesting to read this article.

Dr John Lowe of Thyroid Science wrote a rebuttal letter to the BTA in 2009 - which was never acknowledged by them.

He wrote again in March of this year and, as far as I know, it has again been ignored.

If the treatment of hypo pateints was perfect in Britain we sufferers would not have to try to regain our health by ourselves. You instinctively know your own body and I had additional symptoms after thyroxine. Why wont they let us trial something other than thyroxine?

It is not wonder we feel resentful.

thyroidscience.com/Criticis...

<b>Updated on Nov 22 2010 3:03PM:</b> The following is Dr Lowe's emails to the BTA

thyroidscience.com/letters/...

[Hidden in reply to shaws]

Thanks for your comments, I admit the article annoyed me.

It's as though we are viewed as stupid, hypopchrondiacs and it's just in our heads.

(guess I haven't found the right doc yet!)

Wavy - GP thinks I too may have ME (my recent partial thyroidectomy must be a co-incidence) grr!

Anyway, keep fighting for answers folks!

All the best, Jane x