Carbimazole help please

[Bert01]

Hi,I am Autistic and I have an extreme medication phobia.

Its taken me ages but I finally managed to start Carbimazole. I only take between1/4 and 1/2 a tablet but it's working and my numbers are coming down, endo happy with progress.

However, the brand of carbimazole I was taking was Manx but they don't make it any longer.

I started the brand Flamingo this morning, I took a very small amount as I am extremely sensitive and it's made me feel weird and have palpitations.

Does anyone take carbimazole by the brand Manx, or know a good comparison?

I have looked at the ingredients list and the brand Manx and Flamingo do have a couple of the same ingredients but obviously it's not exactly the same.

I just don't know what to do. I am currently waiting for the endo team to get back to me for some advice.

[pennyannie]

A year ago you wrote your 1 st post on here and shared your thyroid blood test result - and your T3 and T4 were only just over the range.

Did you start the Anti Thyroid and have been on Carbimazole about a year now ?

Did you get a diagnosis of Graves Disease ?

I do not know about different brands of Carbimazole - and you were right to let the endo team know you have a problem -

Maybe ask the pharmacist from where you pick up your medication - to check for the preferred brand for you ?

[PurpleNails Administrator]

I take different strengths & often get different brands.

Been fine with flamingo, not had Manx.

It’s a good step to keep record of brand changes & comparing ingredients.

I couldn't find a patient leaflet for Manx, but I see them still listed on the NHS British National formulary, which list all the different carbimazole available to NHS.

bnf.nice.org.uk/drugs/carbi...

Unfortunately it’s only a list & you’d have to look up each brand & ingredients individually.

Pill reactions do tend to be either stomach problem's, including, feeling sick & also skin rashes whereas thyroid hormones or other health issues including those worsened by thyroid, tend to cause palpitations. It is possible you are very sensitive to a certain ingredient, but my guess it that would settle too.

It were me, I’d persevere on a quarter dose for a little longer and put the palpitations down to thyroid levels which will settle.

What is your half or quarter dose?