new results : Hi everyone Would love advice on... - Thyroid UK

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jacobite33 profile image
9 Replies

Hi everyone

Would love advice on these new results please

Taking 125mcg Levo five days a week and 100mcgs two days a week.Also 6.5mcgs Tiromel daily

Took my test on Tuesday morning 8.20am with my last dose Tiromel at 8pm Monday evening.Last dose of Levo was 100mcg at 6am Monday morning

Currently only taking 3000iu Vit D

Thanks 🙏

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SlowDragon profile image
SlowDragonAmbassador

How do you feel

Ft4 is a touch high

Suggest you try 100mcg 3 days and 125mcg 4 days a week

Folate on low side

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need 2 per day and/or may need separate methyl folate couple times a week

Post discussing different B complex

healthunlocked.com/thyroidu...

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-6 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)

jacobite33 profile image
jacobite33 in reply toSlowDragon

Hi SlowDragon hope your well! Once again thank you very much for replying!

I do feel better but still have anxiety and chronic insomnia.Thats about a month strict gluten free (although some places I’ve been for food are very lax) and was feeling better there with less anxiety last week.Had a bad day yesterday though just felt as if I was pulsing (strange to explain) with sensations in my throat and neck like throbbing and being more agitated.I had been off caffeine the past two weeks and then had a coffee and another after.Assuming it was that that made me feel worse.Really chuffed my cortisol isn’t high this time around either think that’s only twice in all my private bloods.Im sure the last time I was wanting to add more T3 because of it 😩 crazy! 😂

Just my luck doing a private test on Tuesday there as I finally received a letter to attend an endocrinologist on the 9th March on the Monday morning the day before.Its only took them four years! I’m just going to print off my blood tests and tell them what I’m doing as the only thing I want from them is to hopefully have them change my prescription to 125mcg per day as I’m still on 100 with the doctors no matter what I try and say.Far easier than quartering tablets everyday

Noticed my free T4 was higher than the last test and was thinking of doing a third day on 100mcg.I haven’t been doing anything different except reduce my T3.Will get back on the vit b complex as well as I forgot all about that.Insomnia and the cogs of memory recall!

So there’s still tweaking to do and that’s a big help mentally as there’s hope I can’t get back to sleeping yet 😴

SlowDragon once again thank you!

SlowDragon profile image
SlowDragonAmbassador in reply tojacobite33

Gluten free may be improving your absorption of Levo too

Insomnia may be high Ft4

Do you always get same brand of levothyroxine?

Ideally looking for Ft4 and Ft3 in balance….roughly 70% through range

Currently

Free T4 (fT4) 21.6 pmol/L (12 - 22)

Ft4 is  96.0% through range

Free T3 (fT3) 5.5 pmol/L (3.1 - 6.8)

Ft3 64.9% through range

If you get Ft4 lower ……you may find you might need to tweak T3 up a smidge

Be great if endo prescribed T3 as 10mcg ……then you could cut into 1/4’s and take 3 x 1/4 - 7.5mcg per day

well done on cutting gluten out

Personally I found going gluten free dramatically reduced anxiety

Gluten can affect cortisol so cutting gluten may have improved your cortisol levels

jacobite33 profile image
jacobite33 in reply toSlowDragon

Hi SlowDragon

I’m not holding out on any help from the endo to be truthful going by the past experiences of the others on here and no doubt yourself as well

I have stuck with Aristo for a long time now and also recently I have been getting Vencamil so the brand shouldn’t be a problem

I have just bought some B complex and also another 1000iu of vit D to take me in to treble figures so hoping that can be a wee help too

Will definitely keep off the gluten

Can I ask another wee quick question.Can high ft4 affect your bladder?

Go far to often during the day to the wee boys room and during the night also

SlowDragon profile image
SlowDragonAmbassador in reply tojacobite33

Can I ask another wee quick question.Can high ft4 affect your bladder?

Go far to often during the day to the wee boys room and during the night also

Yes I think it can …..well it could be a mix of high Ft4 and slightly lower Ft3

Obviously if you’re wide always because of insomnia that doesn’t help either

Improving B vitamins may help too

And magnesium can help improve sleep

Are you taking a daily magnesium

Magnesium best taken in evening, must be four hours away from levothyroxine

Or take magnesium late afternoon if you take Levothyroxine at bedtime

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

jacobite33 profile image
jacobite33 in reply toSlowDragon

Will need to start taking magnesium again as I felt it eased the restless legs.Would take it at night as I take Levo first thing at 6am

I was worse with the toilet when it on 12.5mcg T3 last year.Could be a connection

Thanks SlowDragon 🙏

SlowDragon profile image
SlowDragonAmbassador in reply tojacobite33

I have stuck with Aristo for a long time now and also recently I have been getting Vencamil so the brand shouldn’t be a problem

Aristo renamed as Vencamil

Many of us find Vencamil the best

Vencamil is lactose free and mannitol free. originally only available as 100mcg only, but 25mcg, 50mcg and 75mcg tablets became available Sept 2024

Posts discussing Vencamil

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu....

I’m not holding out on any help from the endo to be truthful going by the past experiences of the others on here and no doubt yourself as well

I get my T3 on NHS ……after jumping a lot of hoops

jacobite33 profile image
jacobite33 in reply toSlowDragon

Asking myself now is it because I’ve just finished eight weeks of Vencamil that my ft4 is better? Got another eight weeks supply of Vencamil yesterday so nothing will change at present

I’m going to attend the endo with the frame of mind that there not going to administer T3 to me so I won’t be disappointed.Im just going to focus on trying to get the 125mcg of Levo prescription per day and ask them to listen to how I am feeling now from where I have come from that the doctor won’t acknowledge.If they do and test my T3 and it does get prescribed then that’s a major bonus!

SlowDragon profile image
SlowDragonAmbassador in reply tojacobite33

Presumably you are in Scotland looking at your forum name

Figures here for number of NHS prescriptions in last year for T3 in England……67,500 and rising

openprescribing.net/analyse...

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