Hello you lovely people and thank you for all the help you have already given me.
My parcel just arrived and as I have such difficulty sleeping I am wondering if you could tell me if you do better taking it in the morning or at night ( or even half the dose and split)
I appreciate that this will be just your personal experience and not a suggestion of what I should do and I will take responsibility for my own actions, but I thought your experiences might help guide me in my journey of discovery.
Thanking you in advance
I am eternally grateful
Written by
totallyFrustrated
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Have you posted your latest thyroid blood results and are all key vitamins at optimal levels?
Low vitamin levels can cause intolerance of T3.
Its suggested to start low and slow with T3 to allow time for the body to get used to it. Going too fast can result in unpleasant symptoms.
Suggest you quarter your tablet and take 1/4 in the morning for a few weeks, assess how you feel before adding a further 1/4 in the afternoon. Retest in 6-8 weeks and post results here.
Thank you Glowcoach. Sadly I have no way of getting tested. my GP is totally uninterested, and they are not even willing to draw my blood so I can send it to a private laboratory.
I was guided by my doctor in Europe ( via e-mail ) in the past, ( he was the prescribing GP) but since his passing 10 month ago I went cold turkey when I ran out of T3, and this is a different brand, but same strenth. I felt after so long without I was going to start with a quarter tablet and slowly build up to my previous dose....
I am in UK and when first diagnosed they put me on levo which made me worse. I stuck with ever increasing doses ( as GP said I was feeling worse because we haven't got the dosage right) If you read my previous post, you will see what happened. I get howhere with GPs in this country, and now that I am on a state pension I cannot afford to go private
I need high dose T3-only (Tiromel) to function and I take my full dose at bedtime (100mcg)....keeps it well away from food and drinks.
I don't have any problems with that, but as you say we are all different.....it can be trial and error until you find your therapeutic dose
How much levo do you take?
You need to test your hormone levels before introducing T3
Have you considered doing a finger prick test to find your hormone levels
An example...
Monitor My Health (MMH) tests are carried out at the Royal Devon University Healthcare NHS Foundation Trust laboratory. They provide an easily accessible, safe, regulated service that promotes disease prevention and wellness.
This basic test costs £32 but more advanced tests are available...see info in the link
thank you so much for replying. I am already S/I EOD with B12, so all the relevant D3K2, folate, Mg, Iron, Zn etc already part of my daily breakfast. It looks like I will have to change my time table to fit it all in if I cannot take all sorts at the same time anymore. How many hours before and after T3 do I have to fast? And I will have to save upfor te tests, so then I will need to work out how long I need to go without T3 in order not to squew the test result. I am so greatful for this site and their support, why do we all have to reinvent the wheel and learn this stuff, when GP's allegedly go to uni to learn this and help us with it? All over europe and the states thyroid patients are given T3. Ok, in the states people have to pay, but here in UK we paid into it out of our taxes, in order to get help at the point of need. Seems to work only in theory..... I would make a fuss if I wasn't so bloody exhausted all the time
T3 isn't so fussy as T4 so I just take it about 11pm after dinner about 6.30/7pm.
Leave a gap of 12 hours between last T3 dose and testing and for T4, a 24 hr gap.
Thyroid diagnosis and treatment is a complete disaster....a total scandal. It has been made to be so complicated by people who are clueless,
as this forum proves.
I had to self medicate to be able to function!! All in my bio.
T3 is perfectly safe if used correctly....like other medications, but med students are taught it is dangerous. My GP thought I would kill myself but now leaves me in charge of my medication!!
I am so used to GP's total and utter ignorance, as you will find me on the B12 forum. That has been a lifesaver already, and I was fine so long as I had B12 + T3 and all my supplements. But not working anymore the entire thing becames scarily tight. On says when I feel really bad I feel we shopuld just discharge all GP's and tell them to get another job. Maybe become rubbish bin collectors, at least can cannot do serious harm there....but that is just me and my sleep deprivation talking. I am sure there are some doctors out there who still do their work dilligently and responsibly. If only I could find one of them...
Please help my brain out a little here, I am supposed to take T3 as 3 doses, so if I take the first at 05:00 hours, when can I take my painmeds, Magnesium, B12 injection, etc in order to take my second T3 dose near midday, and then a 3rd when ever and still eat and take my iron on an emp[ty stomach at night, as I just cannot do all that in the morning.....
I think with all these meds and supplements I need a 48 hour day as standard... 😉🤣🤣🤣🤣🤣
I followed the late Dr John Lowe's advice...he took his T3 in a single dose in the early morning
I don't think there is any need to become a martyr to medication timing....
Take your pain meds at breakfast time, your T3 in a single dose either early morning or bedtime and your iron....
You should take your iron supplements on an empty stomach (preferably one hour before a meal) with a drink containing vitamin C, such as a glass of orange juice or another juice drink with added vitamin C. New evidence has shown that taking iron supplements every other day may increase their effectiveness. ex NHS paper
It's all very personal so make it work to suit your individual situation
I took mine split upon waking and at bed time for a long time; then split through the afternoon when I found I was napping too much mid day, and now my overall levels are better and I uncomplicate things by taking it all at once mid morning.
I am combo Levo and t3 and arguably not sure if that’s even relevant to you, but that’s what I’ve done.
It is very individual obviously! Also, I hope one day you can get a thyroid blood test, I know you know this, but reading health info from the internet is one thing, but when people who reply don’t know anything about your unique situation, and your situation is so out of the norm, it makes it even harder to glean actionable insight.
I've tried T3 morning and evening. I couldn't sleep taking T3 in the evening so I take it as soon as I wake up. If I wake up anytime from about 4am onwards I'll take my T3 early. But usually it is when I wake up, get up, and stay up.
I did split dose when I first started taking T3 over 10 years ago. Over time I amalgamated doses until I was only taking it once a day.
My biggest problem with thyroid hormones is that I have tachycardia (fast heart rate) which is treated with beta blockers, and if I get my timing wrong I can get a fast heart rate at any time. I can't sleep with my heart hammering away over 100 beats a minute. (My record is 170 beats per minute).
If I stick to morning dosing I don't have a problem with my heart rate and T3. I'd love to be able to take T3 at night because so many people say it helps with their sleep, but sadly it isn't to be for me.
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