Hemithyroidectomy : I had a right... - Thyroid UK

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Hemithyroidectomy

jordanxo profile image
8 Replies

I had a right hemithyroidectomy in December for a suspicious nodule. I do have a nodule on the left side but apparently this is ok. I was taking 5mg Carbimazole prior and was advised to continue to take it after my surgery as my TSH was <0.008. I have since had my bloods repeated and my TSH is now 8.62. I have been told to stop taking my Carbimazole. The endocrine consultant seems to think that my the left side of my thyroid should be enough to function normally on its own without any medication.

I just wondered if anyone had any experience similar to myself. Me and my partner are also trying to conceive which we have found extremely difficult. I was hoping following my surgery that this may be possible. I fell pregnant prior to having known I had a thyroid issue but sadly suffered a miscarriage.

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8 Replies
SlowDragon profile image
SlowDragonAmbassador

welcome to the forum

Very sorry for your loss

Bloods should be retested 6-8 weeks after stopping Carbimazole

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 especially prior TTC

Low vitamin levels are extremely common with autoimmune thyroid disease

Essential to test vitamin D, folate, ferritin and B12

What vitamin supplements are you taking

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

jordanxo profile image
jordanxo in reply toSlowDragon

Thank you! I have had all my vitamin levels checked and everything has come back within normal ranges.

I did have a thyroid peroxidase antibody test and that came back at 130. I did have another antibody test completed before that which was low/normal I did discuss this with my consultant and he said they were different antibodies. He did seem to think that thyroid peroxidase antibody was raised due to inflammation.

SlowDragon profile image
SlowDragonAmbassador in reply tojordanxo

all my vitamin levels checked and everything has come back within normal ranges.

What were actual results

jordanxo profile image
jordanxo in reply toSlowDragon

Vit b12 - 66Folate - >20

Ferritin - 151

Vit D - 60

SlowDragon profile image
SlowDragonAmbassador in reply tojordanxo

Yes they look pretty good

Ideally Active B12 over 70

Vitamin D nearer 80

What vitamin supplements are you taking

jordanxo profile image
jordanxo in reply toSlowDragon

I don't currently take any supplements. I do take 5mg folic acid daily as recommended by my diabetes nurse.

pennyannie profile image
pennyannie in reply tojordanxo

Hello Jordanxo and welcome to the forum :

Having had a hemi thyroidectomy there will be some inflammation and disturbance within but with over range TPO antibodies this is indicative of having a thyroid Auto Immune Disease - commonly referred to as Hashimoto's :

Can you please share the actual antibodies tested TPO / TgAB / TRab / TSI and share the results and ranges so we have an idea what 2 different antibodies have been identified.

Do you have an inflammation marker - probably written as a CR-P - and result / range?

It is very important to ask for copies of all your blood test results / ranges -

Normal means ' in the range ' and therefore no NHS action -

it does not mean ' optimal ' which is where we should all be aiming to be especially after recovering from surgery and wanting the best of health going forward -

and especially when some NHS ranges are too wide to even be sensible -

Good thyroid health and function is very much about maintaining optimal levels of thyroid hormones - Free T3 and Free T4 results and ranges alongside those of the core strength vitamins and minerals - ferritin, folate, B12 and vitamin D -

so if you care to share with forum members we can help and support you through to optimal thyroid hormone function / and thyroid hormone replacement should it become necessary and all the necessary co-factors as detailed.

SlowDragon profile image
SlowDragonAmbassador

Pregnancy guidelines

thyroiduk.org/having-a-baby/

NICE guidelines that if hypothyroid or subclinical you should see endocrinologist BEFORE TTC

cks.nice.org.uk/topics/hypo...

Important See pages 7&8 if eventually on replacement thyroid hormones

btf-thyroid.org/Handlers/Do...

Also here - dose increase in levothyroxine as soon as pregnancy test confirms conception

cuh.nhs.uk/patient-informat...

thyroidpharmacist.com/artic...

Low ferritin, low thyroid levels and miscarriage

preventmiscarriage.com/iron...

Low iron and hypothyroid

endocrineweb.com/news/thyro...

Folate and B12 and Neural tube defects and autism

healthunlocked.com/thyroidu...

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