Sleep and Hashimoto's : Just wondering how many... - Thyroid UK

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Sleep and Hashimoto's

Capan24 profile image
12 Replies

Just wondering how many of you that have Hashimoto's, also have sleep apnea. Lately I have been having such fragmented sleep. I'm lucky if I get 6 hours sleep most nights. Sometimes when I wake up, I have difficulty going back to sleep. I've been sleeping with my Samsung Galaxy 7 watch on at night. I know this is not a medical grade device, so there might be some difference in the oxygen saturation. Over the last month, my oxygen saturation has been between 70% to 100%. It does indicate that my oxygen saturation does dip well below normal at times. I am not overweight, exercise regularly and consider myself physically fit, but have also been diagnosed with acid reflux. I am making sure I practice good sleep hygiene, no caffeinated beverages in the evening, no evening snacks, no TV or phone use before bed, and some meditative breathing. I did set up an appointment with my primary care doctor to ask for a referral to a sleep clinic. I know Hashimoto's wreaks havoc on your entire body. Is this another thing that Hashimoto's is doing to me?

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Capan24 profile image
Capan24
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12 Replies
SlowDragon profile image
SlowDragonAdministrator

yes increased risk of sleep apnea with Hashimoto’s

thyroidpharmacist.com/artic...

Get assessed at sleep clinic

Several members made great progress with CPAP machines

Posts that mention sleep apnea

healthunlocked.com/search/p...

Capan24 profile image
Capan24 in reply toSlowDragon

Thanks. The article was very helpful in understanding sleep apnea.

PRJ20 profile image
PRJ20 in reply toCapan24

Yes, me too. Thanks for your post, too: I've found it very helpful.

PRJ20 profile image
PRJ20 in reply toSlowDragon

Thanks for that link SD: I too found it very helpful.

Also, relevant for me (in an on-going battle to get my GP notes corrected before I finally move from the awdul practice I've been with for years) is that you stress the need to get assessed at a sleep clinic. The reason it's relevant for me is that, on recently being given [supposedly] full access (certainly fuller, eye-opening access) to my GP records, I found to my amazement that the former principal GP at this practice (retired in 2022) has put me down as having "[D] Sleep Apnoea Syndrome" in 2012, which he must have Dx himself as I've never reported any symptoms of sleep apnoea nor been seen in a sleep clinic! Oh! And I've no idea what the [D] stands for (yet!), other than I think it's part of the classification/read abbreviations [is it] of ?ICD.

Jaydee1507 profile image
Jaydee1507Administrator

Its a myth that you have to be overweight to have sleep apnoea. It might be the Hashi's but there are multiple causes for it so best just to get yourself to a sleep clinic to get it checked out.

What are your most recent thyroid & vitamin labs? What are you supplementing with?

Capan24 profile image
Capan24 in reply toJaydee1507

I'm not due for any labs until May of this year. Last Labs were all good and they have been stable. I am currently taking Synthroid 100 micrograms daily. I don't feel like my thyroid is off. About a week ago, I just started taking L-Theanine 250 mg at 8:00 p.m. It is an amino acid naturally found in green tea leaves. I have read that L-Theanine increases alpha brain wave activity, which is associated with a state of relaxation and mental clarity. Other supplements I take are at lunch time, Citrical maximum Plus and vitamin K2 for bone support. The more I'm reading about sleep apnea the more I'm finding out you don't have to be overweight.

Jaydee1507 profile image
Jaydee1507Administrator in reply toCapan24

The Citrical product only has 1,000iu vit D which isnt likely to be enough to get your level to optimal. Most people need a minimum of 3,000iu.

If you're not taking any B12 or folate then likely they are both low. Most people need a good methyl B complex.

For our bodies to be able to use the thyroid hormone we take we need good levels of all key vitamins.

Suggest you get ferritin, folate, B12 & d3 tested, start a new post when you have the results.

Capan24 profile image
Capan24 in reply toJaydee1507

Last time I had my vitamin b level checked it was way too high. So I stopped taking my supplement. My doctor is going to recheck my vitamin B12 with my May labs. I can ask her to check other labs. I just looked at the last time I had my vitamin D level checked. Normal range is 30-80 ng/ml and my level was 32, which is probably too low. So I will supplement with a 1000 units of vitamin D3 and ask to have that checked along with my other labs. I know I'll probably need to supplement with vitamin B12 at a lower dose than what I took before.

Jaydee1507 profile image
Jaydee1507Administrator in reply toCapan24

High B12 isnt an issue as any excess is lost via urine, its water based so not toxic.

Folate & ferritin also need testing & need to be optimal.

Suggest you add 2,000iu Vit D to what you are already taking.

helvella profile image
helvellaAdministrator in reply toCapan24

Is there a problem with having high B12?

While there are potential issues with almost every other vitamin in excess, there appear to be almost none with B12. Bear in mind the level people get to when injecting B12. And initial treatment for Pernicious Anaemia is 1000 micrograms every other day by injection. And treatment for cyanide poisoning is 5 grams by infusion. That is, 5 million micrograms.

Further, labs simply do not even measure high levels of B12. They reach their local high (typically 2000) and stop the process. You could have 4000 or higher. No-one would ever know. Still less would they care.

On top of all that, there is a limit on how much you can absorb.

To being with, if absorbing B12 by the action of Intrinsic Factor, you will not absorb more than the amount the IF your body makes will transport. For high dose B12 supplementation (sometimes regarded as 500, 750 or so micrograms orally) you might be absorbing some by diffusion. Even then, the amount from each dose is a tiny proportion.

The issue with high B12 is when it is found in a blood test in someone who is NOT supplementing B12. That could indicate another issue.

joydot profile image
joydot

had it after 3 yrs off my thyroid med (nz genuises). 100lb fluid on me, apnea stopped when fluid gone/ put on ndt. i was so off my head - its really terrible so you have my sympathy

Jr499 profile image
Jr499

My dad and I both have Hashimoto's and both have apnea. I am not overweight, although I am extremely fatigued and can sleep for really long amounts of time and still be exhausted, which sounds different from what you're experiencing, but I'd say that any kind of sleep disturbance is definitely worth checking out. I hope you find some answers and feel better!

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