Advice appreciated please: Hello all,These are my... - Thyroid UK

Thyroid UK

141,188 members166,426 posts

Advice appreciated please

Sheltie1 profile image
9 Replies

Hello all,These are my latest results (TSH range 0.27-4.2).

I have been on a reduced amount of levothyroxine for approx 10 weeks now.

I previously posted as had been on 150 mg and my Free T4 ( range 10.0-22) was 34.8 and TSH was 0.1 ( same range as above I assume as same lab).

This latest result is based on 75mg levothyroxine per day now.

Should I continue on 75mg ?

Gp seems to think so.

The nurse at my practice recommends however I be retested around Christmas time just to make sure.

As ever any advice appreciated regards interpretation of results.

I'm feeling well again.

Thank you

Written by
Sheltie1 profile image
Sheltie1
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Your GP reduced your dose by half which is a massive decrease.

How do you feel now?

FT4 only 37% of range, needs to be in upper quarter, FT3 38% of range, again needs to be around 70%.

Suggest you increase by 12.5 or 25mcgs Levo.

Did you get vit D, folate & ferritin tested? What were the results?

We need optimal vitasmin levels for our thyroid hormone to work well.

Sheltie1 profile image
Sheltie1 in reply toJaydee1507

Thank you very much for your reply.I will speak with the Gp regards an increase .

I did think this myself, so is good to be able to discuss percentages and where I want to be within the ranges.

Folate and ferritin both low also so this needs discussed too.

I'm not sure regards vit d although I supplement this myself.

Results
Jaydee1507 profile image
Jaydee1507Administrator in reply toSheltie1

How much vit D are you taking?

Vitamin D should be around 100 - 150. Buy one that includes vit K2 to help it go to your bones. Some are available in oil or you can take it with an oily meal for better absorption. Many members like the ‘Better You’ range of mouth sprays that contain both bit D & K2. Use this calculator to work out how much to take to get your level to 100-150. Most people need a minimum of 3,000iu per day.grassrootshealth.net/projec...

Gp isnt likely to offer a supplement unless completely below range or under 30 for ferritin.

Ferritin should be around 90 - 100 for best use of thyroid hormone. Suggest increasing iron rich foods in diet and eating them often. Chicken livers, pate, red meat etc

Link with ideas for dietary iron:

dailyiron.net/

For folate I'd suggest a good methyl B complex to balance out all the B vitamins. This is also a recomemndation if having B12 injections.

B complex suggestions: Slightly cheaper options with inactive B6:

amazon.co.uk/Liposomal-Soft...

Contains B6 as P5P an active form:

bigvits.co.uk/thorne-resear...

healf.com/products/basic-b-...

Explanation about the different forms of B6:

helvella.blogspot.com/p/hel...

B complex comparison spreadsheet:

healthunlocked.com/thyroidu...

Sheltie1 profile image
Sheltie1 in reply toJaydee1507

Great to know.I use the "Better You" spray brand for vit D already.

Thanks again.

Jefner profile image
Jefner in reply toSheltie1

why go for an increase in T4 if you feel well where you are, it's more about how you feel on a particular dose rather than where people feel you should be in the range?

Sheltie1 profile image
Sheltie1 in reply toJefner

I suppose I asked the question regards my results to assist me to have an informed conversation with Gp.Whilst I feel a whole lot better and much more myself after the horrendous symptoms I experienced ,I do feel I am slightly symptomatic due to the reduction..So I need to ascertain what Ievethyroxine levels I need.I don't want to wait until I am potentially more symptomatic and then try and work it out.

If after the next blood test, assuming Gp agrees to an increase now I will know 75mg is an appropriate dose or not.

I have had Hashi since I was 31 and am now 55.Have always taken around 125mg levothyroxine but unfortunately last Sept was increased ,after a blood test, to 150mg .In August this year I went to gp with awful symptoms (which I didnt even related to thyroid rather was thinking menopause) that the over range T4 was discovered.

My Gp only tests yearly.

This episode has frightened me as previously I had many years of doing well on levothyroxine with stable levels, so much so that I didnt ever really think much about it.

So I needed some information to affirm my own suspicions.

So not asking for an increase based on where others feel I should be at all.

If my Gp agrees and I increase I will monitor my symptoms.Believe me I will know if the increase is too much.

Perhaps I should have said I feel much better rather than I feel well ,in my original post.

I don't feel unwell any longer if that makes sense but thats not to say I don't have any symptoms, just feeling a whole load better now than I was a few months ago.

Tina_Maria profile image
Tina_Maria

I agree with Jaydee, a reduction of 75mcg is a massive amount and can be a shock to the system. Reductions of 25mcg are usual, some people only tolerate changes of 12.5 mcg at a time. Yes, your free T4 was over range, but still, the reduction should have been more gradual.

How do you feel on this dose? Yes, the results are in the 'normal' range, but with both FT4 and FT3 in the lower third of the range now, I suspect you will become symptomatic over time, if not already. A typical replacement dose for levothyroxine is 1.6mcg per kg of body weight, so if a person weighs 63 kg, they would need around 100mcg levothyroxine. This is documented in the prescribing information of the NICE guidelines

cks.nice.org.uk/topics/hypo...

If you are symptomatic or do not feel right on that dose, I would insist on an increase in your dose, so both your T4 and T3 can go at least above 60% of the range.

Sheltie1 profile image
Sheltie1 in reply toTina_Maria

Thank you very much for your reply.The NICE guidelines are good to know.I will remind Gp of them!

My weight would indicate also that I require an increase .

My symptoms when I was over T4 range were pretty bad. I am feeling better because they have subsided although as I said in above post I am likely symptomatic due to the reduction. I suspect I would feel better on the optimal range, rather than current lower range, so I appreciate both yourself and Jaydee's replies and will have this discussion with the Gp, armed with this information.

Tina_Maria profile image
Tina_Maria in reply toSheltie1

Yes, your T4 was very much over-range, and I am glad that you are feeling better now. It begs the question why did the GP increase your dose to that amount in the first place - seems strange? Usually they are very hesitant to increase a dose once the results are somewhere in the lower range and many people have to really fight to get their doses increased...

Those NICE guidelines are quite handy to have, if they throw you attitude that your results are 'normal' and that you would not need an increase.... good to beat them at their own game! It is very important to be at the right dose, so stand firm, otherwise you will go the other way again and start feeling not so good. Good luck!

Not what you're looking for?

You may also like...

Reduce medication?

These are my latest results taking 100mg levothyroxine one day and 75mg the next. My GP said she’ll...
Ireness profile image

Results advice please

Good morning, I would really welcome some advice from this amazing community about my latest...
Flamingo60 profile image

Advice please

I would like some advice please. Last year I went to the doctors as I was completely exhausted and...
Hattii profile image

Advice Re. Test Results Please?

Hello, my latest results are as follows: TSH 0.23 ( 0.35-4.94) FT4 11.3 (9.01-19.05) FT3 3.9...
dashi2208 profile image

Advice please - not sure what's happening with my test results

Hello, I was diagnosed with an underscore thyroid about 4 years ago following a bit of a battle...

Moderation team

See all
Buddy195 profile image
Buddy195Administrator
RedApple profile image
RedAppleAdministrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.