help with results: Hi, can I get some help with... - Thyroid UK

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help with results

Bigfraz76 profile image
33 Replies

Hi, can I get some help with understanding my results and any advice with tweaking dose and vitamin levels. I’m currently taking 3 grains of Thyroid-s 60mg x3

My symptoms of tiredness and coldness have gone but my digestive symptoms persist, burning stomach, reflux, pale stools, etc. As advised, my last dose was night day before bloods were drawn and biotin supplementation was stopped for 5 days.

Thanks Colin

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Bigfraz76
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Bigfraz76 profile image
Bigfraz76

I can’t figure out how to post two photos so I’ll add the other here

Results
helvella profile image
helvellaAdministrator in reply toBigfraz76

You can't post two photos on one post or reply.

You can type them!

Bigfraz76 profile image
Bigfraz76 in reply tohelvella

Ok

helvella profile image
helvellaAdministrator in reply toBigfraz76

Sorry, just realised I missed "can" - not an order to type them, but pointing out that you can!

pennyannie profile image
pennyannie

Hey there again :

Looking back several months - are we again - looking at a false low blood test result and after around a 20 hour gap from last dose to blood draw ?

and actually these results look remarkable similar to those posted previously :

I think the issue is one of your gut and absorption issues as detailed previously -

Have you ever had any internal investigations into stomach/gut issues ?

Are you now totally gluten free ?

What are you supplementing ?

Your Hashimoto's antibodies are very high -

Inflammation appears low -

Your serum B12 is slightly over range - though I now aim for around 500++ :

folate looks ok -

Your Ferritin looks high ?

and for vitamin D I now aim for around 125 - so this likely needs some attention.

You can find all your previous posts and all your replies by pressing the Profile icon - it appears top right on this screen alongside My Hub - Chat - Post - Alerts Menu bar and there you will find all your posts and all your replies - if you get lost - just press Profile - and it takes you back to all you have ever written of this forum.

Bigfraz76 profile image
Bigfraz76 in reply topennyannie

Hi, thanks for your reply. The only reason I retested there is because my shipment of thyroid-s was delayed coming from Thailand and the private clinic I attend wouldn’t give me a knew script for armour thyroid without first retesting. My Shippment arrived but I’d already done the test so posted the results here. My family Doctor has done scopes, scans and all the bloods. Been told everything is fine. Just said I had functional dyspepsia, which to me is a just a bogus diagnosis for we don’t know what’s up with you. I was only on 50mcg of thyroxine for years even though my doctor tested my thyroid levels every 6 months. It wasn’t until I went to the private clinic over a year ago now with bad symptoms of cold and tiredness that my dose was doubled overnight after testing. These symptoms disappeared but my digestive symptoms remained. I’ve gone gluten and dairy free for over six months with no change in symptoms so I’ve added it back into my diet as my diet is restricted as it is as I’m also on a low oxalate diet as I’m an endogenous oxalate producer, also struggling to digest meat.. I will up my vitamin d intake. Why would ferritin be high? Is there something I can do? I supplement a b complex, magnesium , Ttfd, biotin, b6 p5p , riboflavin 5 phosphate and msm. I take these as I have been advised they will help stop my exogenous oxalate production. Why would my antibiotics be so high. Is there anything I can do to get them down. I also suspect low stomach acid from HTMA test and symptoms. Would this be why my absorption is poor. Was so hopeful that addressing my thyroid medication would help my gut issues but no change

Thanks Colin

pennyannie profile image
pennyannie in reply toBigfraz76

Ok - so - when hypothyroid and even if optimally medicated you may well find that you still need to supplement vitamins and minerals as your body is not producing enough stomach acid to breakdown and absorb the nutrients in your food - no matter how clean and well you eat -

There is a ' burp test ' you can do at home to test for low stomach acid - and you can read what and how to do on several Youtube websites -

The solution is to take digestive enzymes or a teaspoon of Apple Cider Vinegar( with the mother - viz - the enzymes - with Bragg Organic probably being the most well known brand ) - in a glass of warm water before eating your main protein meal of the day .

This may help you with bloating and digestion - your diet is quite restrictive - and I don't pretend to understand your own diagnosed stomach health issue - can you manage minced down meats - are fish better digested for you ?

Your ferritin can be a high due to inflammation but I think your Crp reading was low and well in the range - so if not eating liver rich foods or supplementing - I'm not sure I know why - but you are in the NHS range so doubt your doctor is allowed to run an iron panel.

Thyroid antibodies are high showing your thyroid under attack from your immune system - and trying to ascertain what triggers your immune system the 64 million $ question -

Do we have any blood tests from after the 6 months experiment of no dairy and gluten - if so - what were your antibody readings then ?

The NDT seems to have improved some symptoms - and it's just the stomach and gut issues remaining which you have had extensive investigations for - but with no resolve -

Just another thought - some Hashimoto's patients can't tolerate the fillers in the tablets - irrespective of which treatment option they choose - whether it be in T3/T4 or NDT ?

Thyroid S is said to contain ' the most fillers ' - with Efra NDT - the least - though this will mean going back to a UK prescription for same or sourcing from the States ?

Bigfraz76 profile image
Bigfraz76 in reply topennyannie

Thank you

pennyannie profile image
pennyannie in reply toBigfraz76

I can't remember if you have had this link before - many forum members find and follow the research and suggestions of Dr Izabella Wentz who writes as

thyroidpharmacist.com

Bigfraz76 profile image
Bigfraz76 in reply topennyannie

Hi, Pennyannie. They look remarkably similar because they are in fact the same results. 🫢Sorry, everyone that’s tried to help me. My head is all over the place. These results are actually my newest results and I can see some improvement if I’m correct, yet my symptoms remain the same

Results
Bigfraz76 profile image
Bigfraz76 in reply toBigfraz76

Results

Results
pennyannie profile image
pennyannie in reply toBigfraz76

Yes - I did try saying something but didn't want to labour the point - as I sensed you were a bit all over the place -

all credit to you for owning up in print - in public - have you thought of being an MP ?

So - your T3 is actually 5.80 with a T4 at 16 -

and not a T3 at 3.90 with a T4 at 14.90 -

OK - so there is some build and progress with the NDT as one would expect and didn't you say you felt improved but for the gut and digestive issues.

TPO antibodies are around 50% lower - so that should lead to less AI ' upset ' -

Your B12 has almost doubled ?? and you were over range last time - what is going on ??

I know you are taking many supplements including biotin for the stomach and digestive issues which I don't pretend to understand - and just hope you stopped them all a week before the blood test.

I'm not sure but think excess B12 is simply urinated out !!

Bigfraz76 profile image
Bigfraz76 in reply topennyannie

🤣 No point in lying. Not here to nurse my ego. Here to hopefully fix my symptoms

What do you mean with AI upset?

The b12 is in my b complex. I’ve been told not to worry about it. As you say will just urinate out.

Going by my results do you think I can up my dose to see if symptoms improve and retest in a couple of months. On the first tests I posted I was on 2.5 grains whereas on the latest results I’ve been taking 3 grains and if pushed I’d need to say that my digestion has improved slightly.

Thanks again for your help

pennyannie profile image
pennyannie in reply toBigfraz76

Antibodies are found in the blood stream and clean up the blood after there has been an attack from your immune system and for Hashimoto's - the antibodies are named TPO - Thyroid Peroxidase Proteins / Enzymes.

With an AI disease your immune system is systematically trying to disable your thyroid and with every attack ' fragments of thyroid proteins ' are found in the blood stream and the anti - bodies come along and hover them up - as they shouldn't be there.

Certain food stuffs especially gluten, dairy and wheat are known to upset digestion and trigger immune system attacks for those who are dealing with Hashimoto's and why its suggested to check for certain food stuffs - and likely abstain from certain food stuffs -

and if you can reduce whatever it is that triggers your immune system - your symptoms should be somewhat alleviated.

So - the less the antibodies = the less the destruction of your thyroid - so maybe those months of food restriction have had a bearing on your lower TPO antibodies ?

Bigfraz76 - just realised I hadn't answered the question - you can try increasing the NDT - just go with a 1/4 grain increments and wait a week orso and see if it makes any difference - guessing your splitting your dose ?

I monitored myself on blood pressure, pulse and temperature AM & PM when finding my best dose of NDT - the first 2 clinical symptoms remained constant but was able to track my temperature increase from 35.4 to 36.6 where tends to still hover some 6 years later.

I've also rewritten this reply a bit as I think it now reads better from the top ?

Bigfraz76 profile image
Bigfraz76 in reply topennyannie

Thank you

Cornwaller profile image
Cornwaller

Your b12 is "over" range but assuming you're supplementing it is fine - many people recommend to keep it over 500. I am not medically trained.

Sleepman profile image
Sleepman

Vit D has improved since last test though. Sounds like thyroid symptoms are a bit better.

Thyroid results look low.

You took last dose night before as per forum guidelines so valid.

About 30% of range on T4

About 20% of range on T3.

These are low for most people.

TSH is low as T3 in the dose so can be ignored.

Someone more experienced might build on this and advise on an increase.

Gut issues,what does doctor advise? It was a year wait to get seen by consultant for me. They scanned and stool tested and put cameras in. I was cleared up by then but it was a relief to know nothing was found.

Gluten recovery takes many months. It makes me tired as well as problems with my gut. Is it worth trying again? It does not always show up on bloods.

If they are going to do a camera/endoscopy then needs several weeks on gluten before.

I think my logic during covid was I knew I was a bit better without gluten. NHS was a year wait. Private test was a month and £2000. My Mum is GF and hashi.

There is a strong link between them.

One at a time ... but Lactose is one that is often an issue as well.

Bigfraz76 profile image
Bigfraz76 in reply toSleepman

Thanks for your reply. Done all the tests. Was told everything was fine. Went gluten and dairy free for 7 months with no change in gut symptoms, Gut symptoms, reflux, burning stomach have always been my most debilitating symptoms, but can’t seem to improve them at all

SlowDragon profile image
SlowDragonAdministrator in reply toBigfraz76

I’m currently taking 3 grains of Thyroid-s 60mg x3

Your results suggest you are not on high enough dose

Gut symptoms, reflux, burning stomach have always been my most debilitating symptoms

These are hypo symptoms

Do any of your vitamin supplements contain iron?

Ferritin is high but within range

suggest you do full iron panel test to check if iron is high

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

Bigfraz76 profile image
Bigfraz76 in reply toSlowDragon

The reason I went to a private clinic is because I suspected my digestive issues were because I was being under medicated. The clinic doubled my dose after testing and all of my other symptoms went away, but the digestive issues which plague me by far the most remain. It’s relentless. So going by my results do you think I should up my dose and test again in a couple of months to see where I’m at. And if so by how much should I raise it.

Thanks for your reply

SlowDragon profile image
SlowDragonAdministrator in reply toBigfraz76

I don’t have any experience of NDT

Usual advice is to increase by 1/4 grain

Retest in 6-8 weeks time

Gut issues

Have you been tested for H Pylori and SIBO

Bigfraz76 profile image
Bigfraz76 in reply toSlowDragon

Yes, had all the tests. Thanks

Bigfraz76 profile image
Bigfraz76 in reply toSlowDragon

Posted wrong results, sorry. Reposted correct results. Any new advice would be greatly appreciated. Markers have improved but as I said yesterday digestive symptoms remain

SlowDragon profile image
SlowDragonAdministrator in reply toBigfraz76

Free T4 (fT4) 16 pmol/L (12 - 22) 40.0%

Free T3 (fT3) 5.8 pmol/L (3.1 - 6.8) 73.0%

Went gluten and dairy free for 7 months with no change in gut symptoms, Gut symptoms, reflux, burning stomach have always been my most debilitating symptoms,

TPO 161

Previously TPO 340

So significant reduction

Sometimes the ONLY sign that gluten free is helping is reducing TPO antibodies

Bigfraz76 profile image
Bigfraz76 in reply toSlowDragon

Thank you for reply. I was gluten and dairy free before the last test not this one. I don’t eat a lot of wheat or dairy. Just a couple of slices of sourdough with butter and milk in my tea. I had a Fecal Matter Transplant for dysbiosis. Could that be why my TPO has come down?

Would you still recommend upping my dose and retesting in a couple of months. The first results I posted yesterday I was taking 2.5 grains at the time which I upped to 3 grains around 5 werks ago so the extra half a grain seems to have made a difference in my recent results. I will also get my vitamin d up as recommended.

Thanks

SlowDragon profile image
SlowDragonAdministrator in reply toBigfraz76

Would you still recommend upping my dose and retesting in a couple of months

Perhaps try adding small dose levothyroxine to improve lower Ft4

Bigfraz76 profile image
Bigfraz76 in reply toSlowDragon

Ok

Sleepman profile image
Sleepman

Ouch, sorry for you.Get Thyroid levels up then you can count that out. That will be slow too to heal you if that is part of gut issues.

Bigfraz76 profile image
Bigfraz76 in reply toSleepman

How do you get the thyroid levels up?

Sleepman profile image
Sleepman

As per slowdragon up the dose of thyroid S.

Sorry do not know about amounts

Brightness14 profile image
Brightness14

Hi I only know that the NDT Thyroid s has changed. I took 2.25 grains and before that 2.5 grains for years with no Thyroid Gland. I felt very well all the time.

I am now on 2.75 grains of this years batch and feel ill, tired and back to 2016 when I first started the journey.

Your FT4 and FT3 are to low to feel well. I don't know anything about the Gut I have never had any problems with mine at all.

You on 3 grains should have higher results. I am taking a blood test this week and will know for sure whether these new pills work or not.

I am sorry that I cannot help you futher.

Bigfraz76 profile image
Bigfraz76 in reply toBrightness14

Thank you. Can you let me know how you get on. My wife was taking two grains of armour and when she started taking thyroid s her symptoms began to creep back so she upped her dose to 2.5 and her symptoms went away again. I’ve heard others say also that it’s not as strong

Brightness14 profile image
Brightness14

Yes and it varies too a bit of a lottery. Best to start a new bottle way before the old one runs out just in case.

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