Pins and needles in fingers: Hi all, am i right... - Thyroid UK

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Pins and needles in fingers

catpurple7 profile image
10 Replies

Hi all, am i right in thinking that people with thyroid problems suffer with cold hands and feet? I have always been the opposite until about a month ago, but in the last week or so i've been waking up in the night with very very painful pins and needles in my fingers which last a good few hours after i've got up. I put it down to the weather getting colder but thought i'd ask on here if anyone knows what could be causing it.

Thanks in advance for any help 😁

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catpurple7
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10 Replies
SlowDragon profile image
SlowDragonAdministrator

looking at previous post….have you recently reduced your dose of levothyroxine

Could be that …..and it might settle

Wait 8 weeks before retesting including vitamin levels

catpurple7 profile image
catpurple7 in reply toSlowDragon

Hi SlowDragon, yes i've reduced to 100mcg

Buddy195 profile image
Buddy195Administrator

Have you retested thyroid levels recently? We recommend you do this 6-8 weeks after being on a consistent dose.

I also experience pins and needles when my B vitamins are not optimal. Have you tested B12 and folate levels?

catpurple7 profile image
catpurple7 in reply toBuddy195

The Dr said to retest thyroid levels in January. In Feb my B12 was 1388 ng/L 180-900 and folate was 8.2 microg but they wouldn't test anything other than thyroid last time. I have the Betteryou B12 spray and just do 4 sprays on a Sunday.

SlowDragon profile image
SlowDragonAdministrator in reply tocatpurple7

In Feb my B12 was 1388 ng/L 180-900 and folate was 8.2 microg but they wouldn't test anything other than thyroid last time. I have the Betteryou B12 spray and just do 4 sprays on a Sunday.

Folate low

Rather than just B12 far better to take a daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help maintain B12 levels

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need separate methyl folate couple times a week

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

catpurple7 profile image
catpurple7 in reply toSlowDragon

I take the Igennus super B complex 1 tablet a day and i stop it a week before my bloodtest but don't take a seperate folate supplement

SlowDragon profile image
SlowDragonAdministrator in reply tocatpurple7

So that’s perfect

Ideally add a folate supplement in the week you stop B complex

Come back with new post once you get results 8-10 weeks after a dose reduction

Buddy195 profile image
Buddy195Administrator

January seems too long for a retest…. I would do this sooner.

SlowDragon profile image
SlowDragonAdministrator

When were vitamin D and ferritin levels last tested

Get FULL thyroid and vitamin testing 8-10 weeks after reducing dose Levo

Do you always get same brand levothyroxine at each prescription

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Monitor My Health (NHS private test service) offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65

(Doesn’t include thyroid antibodies)

monitormyhealth.org.uk/full...

10% off code here

thyroiduk.org/testing/priva...

catpurple7 profile image
catpurple7

I always get the same brand of levo and follow protocol on bloodtest. Everything was tested in Feb this year but when i went in Oct the nurse would only retest thyroid, this is febs results

TSH 0.01 mU/L 0.30-4.20

FT4 22.1 pmol/L 9.0-19.0

FT3 6.2 pmol/L 3-5.4

B12 1388 ng/L 180-900

Vit D 189 nmol/L 50-250

Transferrin Sat Index 46% 16-50

Serrum Transferrin 2.24 g/L 1.8-3.6

Serum Iron 25.6 micromol/L 11-30

Folate 8.2 microg/L 3.0-20.0

Ferritin 165.0 microg/L 30-336

I might send a letter to my Dr and ask for a retest after 8 weeks and ask if she'll retest all my vitamins aswell as i'm supplementing.

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