I wake up vibrating most mornings and it is getting worse. I just had bloods done and I am not converting enough T3 from the results, I do have an appointment with an Endo this week from The Thyroid Clinic but is this something I should mention - is it something I should expect? Is it a result of low T3? or something else?
Regarding Vit D I am commencing 8,000IU for 8 weeks, 6,000IU for 8 weeks, 4,000IU for 8 weeks and then 2,000IU as per the above clinic recommendations.
Was test early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
How much levothyroxine are you taking
Do you always get same brand levothyroxine at each prescription
What’s the range on B12 …..if it’s a serum test it’s very low
Was this Serum B12 NHS test?
Or Active B12 private test
Hi there - the test was 9am 24 hours after last dose and no food prior.
Test was done privately via Thyroid Clinic UK (thethyroidclinic.co.uk/) They did not provide ranges but I have asked for them.
I am taking 100ug Levo, brand is Euthyrox by Merck (I moved to UK from UAE and still on same medicines). I have not taken any other brand.
I am not sure what B12 test they did, I have asked them to clarify
I did an Active B12 in May as part of my wellbeing check up and it was 103pmol/L (range 25.1 - 165.0). However those bloods were taken as part of a wider check up and not 24 hours after lost dose.
Pity folate haemolysed
Is it being retested
I am speaking to the clinic on Wednesday and will ask.
I did folate as part of my wellness check-up too. It was 4.7ug/L and ideal is >2.9 but also perhaps not at the ideal time.
That’s low
B12 is most likely serum B12 …so also low
Ideally you should have test for Pernicious Anaemia before starting on B12 …..but it’s an expensive test
Low B12 symptoms
b12deficiency.info/signs-an...
methyl-life.com/blogs/defic...
NICE guidelines on B12 and testing
healthunlocked.com/redirect...
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
A week later add a separate vitamin B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Highly effective B12 drops
natureprovides.com/products...
Or
B12 sublingual lozenges
uk.iherb.com/pr/jarrow-form...
cytoplan.co.uk/shop-by-prod...
In-depth article on different forms of B12
perniciousanemia.org/b12/fo...
B12 range in U.K. is too wide
Interesting that in this research B12 below 400 is considered inadequate
healthunlocked.com/thyroidu...
perniciousanemia.org/b12/le...
And why aiming to keep B12 over 500 recommended
perniciousanemia.org/b12/le...
Low folate
supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)
This can help keep all B vitamins in balance and will help improve B12 levels too
Difference between folate and folic acid
healthline.com/nutrition/fo...
Many thyroid patients have MTHFR gene variation and can have trouble processing folic acid supplements
thyroidpharmacist.com/artic...
B vitamins best taken after breakfast
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need separate methyl folate couple times a week
Post discussing different B complex
healthunlocked.com/thyroidu...
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 until over 500
Post discussing how biotin can affect test results
Hey there again :
Can I refer you back to my reply a year ago - as that pretty much details all the treatment options you may be able to consider going forward with this endocrinologist on Wednesday.
Did you ever get your T3/T4 thyroid blood test results - pre- thyroidectomy - so have an idea where in the ranges your T3 / T4 need to be sitting for you to be feeling well ?
Your T3 is too low for you to function well - this in turn means you are not metabolising and likely struggling to extract key nutrients from your food, irrespective of how clean and well you eat -
and low levels of key nutrients - ferritin, folate B12 and vitamin D can compound your ill health further -
your ferritin looks ok - is B12 active / serum ?? - vitamin D low and we have no folate reading.
For reference as a woman - I aim to maintain my ferritin at around 100 - folate 20 - active B12 around 125 ( serum B12 500++ ) and vitamin D at around 125.
and which are also needed to be maintained at optimal levels for any thyroid hormone replacement to work well and be utilised and converted into T3 in the body.
If you press on your Profile icon - which sits alongside My Hub - Chat - Post - Alerts and Menu sections on this page - top right facing me on my lap top - this will take you back to all you have posted and all your replies since joining the forum.
Elderly Hypothyroid Mum in hospital. Takes T3 but been told all CCGs and Local NHS Hospital told not to use T3 and Guidelines Formulated
Help with test results please: T3 only, why is TSH not higher if FT3 and FT4 below range?
T3 or Not T3
Big wake up call
well and truly fed up :(
