thyroidectomy : I really don't know what to do I... - Thyroid UK

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thyroidectomy

Lynnstez profile image
5 Replies

I really don't know what to do I have had one thyroid removed (mistaking)the thyroid that has the toxic nodule was left hence now they want to remove that due to undetectable tsh. I really don't know what to do. I feel like I'm jumping from the devil to the deep blue sea. Jumping from hyper to hypo. Btw I'm 67. Any advice grateful

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Lynnstez profile image
Lynnstez
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5 Replies
Jazzw profile image
Jazzw

Have I read that right—that they removed the wrong half of your thyroid?? :-o

Tinyowl99 profile image
Tinyowl99

Omg they call them self doctors we have got no hope. I feel for you i had hyperthyroidism and tablets was destroying my liver they told me RAI would sort me out and I would be 100% better i believed them with there duty of care, I'm 110% worse I have no faith in endocrinology at all why is it so hard to find someone who knows what they are doing. I hope you get sorted out bless you sorry I can't be of any help x

Kowbie profile image
Kowbie in reply toTinyowl99

Sounds about the same as me they told me having rai treatment would bring my thyroid back to normal ( liars)

PurpleNails profile image
PurpleNailsAdministrator

Are you in UK?

When was surgery?

Do you take antithyroid to treat toxic nodule?

Nodules are usually quite stable, levels jumping around suggest either very poor treatment management or autoimmune.

Low TSH can remain a long time after FT4 & FT3 are in range. Do you have full results?

Kowbie profile image
Kowbie

oh I’m so sorry that has happened to you , whatever did they say , to you , you ought to take it further and complain about that sending you a big hug

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