Secondary Hypothyroidism: Hi all, I had tests... - Thyroid UK

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Secondary Hypothyroidism

Lottielou7 profile image
11 Replies

Hi all,

I had tests on my thyroid last year which showed my T4 as slightly low on 3 different tests. My GP told me there wasn't anything to worry, nothing to follow up.

Fast forward to now when my GP has referred me to a specialist for something else and listed in my medical history 'Secondary Hypothyroidism' ???

I am completely confused. Can anyone tell me what this means? Obviously I will go to my GP ask for an explanation, but just wanted to get some info from the experts on here first if possible.

Thanks in advance x

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Lottielou7
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11 Replies
Lottielou7 profile image
Lottielou7

There were my results end of August 2023.

These were my results from the private test recommended on here last August.
greygoose profile image
greygoose

Secondary hypo is when the problem is with the pituitary rather than the thyroid itself.

With Primary Hypo, where the thyroid itself is failing, you will have: low FT4/3 and high TSH.

TSH is a pituitary hormone. So, if the pituitary isn't functioning correctly, you will have low-in-range TSH but also low FT4/3. Because the thyroid cannot make hormone without the stimulation of the TSH. And we call that Secondary Hypo.

I think the question you need to ask him is: if he knows you have Secondary Hypo - which it certainly looks like you do - your FT4 is under-range! - why isn't he treating it? That is negligence.

Jazzw profile image
Jazzw

Hopefully he’s also investigated you for anaemia too? Your ferritin levels were woeful!

Jazzw profile image
Jazzw

Also noticed you’ve posted recently about having COPD? Low thyroid function can be related to COPD.

Do you have any more recent thyroid function blood test results? A year is a long time in thyroid health…

Lottielou7 profile image
Lottielou7 in reply toJazzw

Nope. GP hasn't had any more tests done and I haven't followed it having been told it was all ok.

Jazzw profile image
Jazzw in reply toLottielou7

I’m sorry. It’s not good enough. 😢

SlowDragon profile image
SlowDragonAdministrator

your extremely low ferritin needs investigation and treatment

Are you vegetarian or vegan

Or

Heavy periods

Extremely low ferritin tends to reduce TSH

Folate is also deficient

Have you been prescribed folic acid

Low vitamin levels can be cause of low thyroid levels

Low thyroid levels will cause low vitamin levels

Are you taking any vitamin D supplements

Are you taking any medication for COPD

Lottielou7 profile image
Lottielou7 in reply toSlowDragon

Hi, I'm not vegetarian or vegan and periods erratic as peri-menopause. I was prescribed a course of folic acid at the beginning of this year which I realise now GP was due to review but never did (my fault, I didn't chase them). I take Vit D supplements off my own back and no treatment yet for COPD as waiting to see a specialist beg of Oct.

SlowDragon profile image
SlowDragonAdministrator in reply toLottielou7

Then it’s more likely your anaemia is because you are hypothyroid rather than anaemia causing low thyroid levels

Have you finished folic acid prescription

Have you retested vitamin levels since folic acid prescription

If not I suggest you do so

If folate remains low and/or low B12 as well now

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement

A week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

In-depth article on different forms of B12

perniciousanemia.org/b12/fo...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

perniciousanemia.org/b12/le...

And why aiming to keep B12 over 500 recommended

perniciousanemia.org/b12/le...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

SlowDragon profile image
SlowDragonAdministrator

GP should be doing full iron panel test including ferritin for anaemia

come back with new post once you get up to date results

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Lottielou7 profile image
Lottielou7 in reply toSlowDragon

Thank you. I appreciate the depth of your reply.

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