So to follow on from yesterday I woke up feeling better this morning and my overall resting heart had gone down a notch - I did usual routine and even went out on my motorcycle but since 13:00 I can’t get my heart rate back down sitting in mid 90s up in the low 100s now so I’m now 100% convinced something has gone haywire with Graves….
Looks like I’ll have to start all over again now that’s if something serious doesn’t happen overnight … I just don’t understand it, no digestive issues that I can pinpoint, no weight loss, no cramps (used to get them bad when hyper), no hand tremors or uncontrollable hunger, hair seems to be falling out less, no rage issues, yet this heart rate???
I’ve wanted to give up a lot but I really am at the end of what I can deal with with this peice sh!t disease! Even writing this it’s sat at 105bpm 🤷♀️ and I’m just sat here. Just want it to take me and be done with it 😡😖
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My own heart rate a minute ago was 107, and has ranged 48 to 146 today. With resting heart rate usually hovering around 90.
And it has at times been above 190.
But between about a year ago and now, my heart rate has generally been slightly more stable, and hasn't peaked as high. That vaguely aligns with changing dose of levothyroxine from 112.5 to 125.
The reason I am replying is to suggest that while heart rates are important, and they are affected by thyroid hormones, the story often isn't at all clear.
I have a private blood test I could do on Tuesday see if it’s that … just went for a walk to the shop and initially I rocketed to 167bpm - never ever seen it that high then quickly came down to my normal walking pace of 120bpm and now it’s at 76bpm 🤷♀️😂😱😭
I have been on a hospital bed watching the ECG going between 80 and 180 (or around that) within seconds. And back.
Part of me is lucky that I hardly notice it at all. On the other hand, that can be more worrying.
But seeing it can make it worse. If, for example, I can seen those sorts of results on my Apple Watch before seeing it on a proper ECG, I would be every so much more concerned.
Yeah I only know through my Fitbit as although feeling a bit weird I’d not know I had jumped up that high … I can’t ever really feel my own heart beating and really struggle to find my pulse .. 😕
I’ve not a damn clue I wish I had something but nope I just went for a walk to the local shop and it rocketed then came back down to normal walking pace of 120bpm now in the 70s - I give up I have no clue what’s happening to me 😂🤷♀️😖
Is your condition permanent must be awful I’m sorry you’re dealing with that 😞 I wish I had better words for you … but sending a virtual hug x
With anxiety, my heart rate can remain high for several hours. As I’ve said before (in previous posts), checking/ rechecking heart rate (or other adverse symptoms) can actually make things worse. It can send you into a spiral of ‘catastophising’ (ie thinking the worst possible outcome). Sending you best wishes 🦋
Thanks buddy I was completely relaxed when I checked it so it was weird then tried to have a nap to catch up on myself after a busy morning and nope it just wouldn’t come down enough to do it - usually when poorly a nap is my go to for sorting things out 🤷♀️
It’s very well known on the heart forums that constantly monitoring your rate with a Fitbit or similar is a major cause of stress which sends it even higher, many people buy the gizmos and they end up in the bin for that reason !
Last time my heart rate went totally berserk was in 2021 when I had fractured my sacrum and was prescribed Naproxen along with omeprazole as a ‘tummy protector’.
My heat rate went up well over 100 and stayed there. It feels really horrible - completely different to your heartbeat going up on exercise. Anyway my GP said to stop the naproxen and double up on the omeprazole which I did by that time I had the diarrhoea to end all diarrhoea which didn’t stop until I stopped the omeprazole too.
I’ve got an Apple Watch but I’m not sure looking at that was the cause - just kind of confirmed what I knew anyway. Still using my Apple Watch though. My relaxation thing is to breathe in for 6 hold the breathe for 6, breathe out for 6 and hold for six before starting again, I find it’s great for sending me to sleep if I wake up in the night.
Whenever I try the breathing thing it goes down for a few seconds then goes worse than it did before I've yet to find a method that works for me - apart from what appears to be exercise - but that does make any sense at all 😭
I was diagnosed with Graves in 2009 and had radio-iodine treatment in 2010. I was VERY hyperthyroid (literally off the scale) because I thought I was menopausal and didn't go to the GP quickly enough. All in all it took three years of treatment before I was settled on Levo, but I've been on 125mcg for 12 years and everything has been stable. You need to have blood tests to find out exactly what's going on. Then you need whatever treatment is required. It's a long and, sometimes, depressing road, but you will get there with perseverance and the right medical support. Don't lose heart.
Yeah unfortunately I've been on this journey for a while now - and had tests just under two weeks ago TSH 0.94 (within range) T4 15 (just under middle of range) but I think in that time I have somehow rocketed - unless I have something else?! My joints have started aching this evening and I've become quite tired - I wasn't stressed in the slightest after my ride out so I can only assume that I have rocketed back to hyper again - although feeling quite stressed now knowing I'll have to up my dose of this vile medication that makes me so ill
Personally I wouldn't be able to consider RAI and have told the Consultant that - as I have pretty much 90% chance of breast cancer, and although they've found no gene, the obliteration of the female population in our family states they either haven't found it yet, or we're exceptionally unlucky. I can't have the contraceptive pill or HRT when the time comes. Although Consultants say it's inconclusive regarding the RAI and breast cancer link - none have felt confident enough to want to sign an agreement stating I can sue them personally should I get it within five years of treatment ahahaha
I am devastated that I spent so much time and effort trying to get well and I appear to be right back where I started two years ago - feels pointless now tbh.
Anyway I'll take myself off to bed and hibernate for a few days and contemplate what I'm supposed to do next I guess
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I've yet to find a method that works for me - apart from what appears to be exercise - but that does make any sense at all 😭
Graves lack of appetite & feeling very low. 
Graves 
Could my level be dropping on my TSH level to graves with a rapid heart beat or is it the food I ate.
Graves Disease - latest results
