Endo Recommendation: Hi there, I am on 50mg of... - Thyroid UK

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Endo Recommendation

Kipi profile image
Kipi
6 Replies

Hi there, I am on 50mg of Levo but my free T4 is decreasing is now 10 from 15 and I feel worse and worse, my endo not listening that the Levo is not working, can anyone please recommend a nice endo in London please? I’ve had to leave my job as no energy, thank you so much, Kipi

Please can you send any details through private messaging chat, thank you so much 🙏

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Kipi profile image
Kipi
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6 Replies
pennyannie profile image
pennyannie

Hello Kipi and welcome to the forum :

There is nothing on your Profile page -

If you care to share your blood test results and ranges with forum members we can try and help you with these and explain more fully your situation - we can help you -

this post may get ' closed ' and people will contact you through the Private Message service as we are not allowed to openly discuss any medical professional - your ' Chat ' icon will light up -

Thyroid UK - the charity who support this forum hold a list of Private / NHS thyroid specialists and endo's - just email - admin @ thyroiduk.org and ask for the patient to patient recommended list of thyroid specialists.

Kipi profile image
Kipi in reply topennyannie

Hi Thank you, is it best to start a new chat window to post my results?

SlowDragon profile image
SlowDragonAdministrator in reply toKipi

Yes please write a new post with your most recent thyroid and vitamin results

ALWAYS test early morning for highest TSH and essential to maintain GOOD vitamin D, folate, B12 and ferritin

Test vitamin levels at least annually

Please add results and say what vitamin supplements you are taking on your new post

Plus wether your hypothyroidism is autoimmune

greygoose profile image
greygoose

Hi Kipi, welcome to the forum. :)

It's not that the levo isn't 'working' - not a good idea to say something like that to a doctor - it's more that you're not taking enough of it.

50 mcg is just a starter dose, and should have been increased to 75 mcg six weeks after starting it. Your endo has been negligent, I'm afraid. I can't recommend a good one for you, but hope you find one soon. :)

Kipi profile image
Kipi in reply togreygoose

Thank you

helvella profile image
helvellaAdministrator

When someone asks for information about a specific doctor, or practice, or for suggestions of a good practitioner, that post will be closed to replies to ensure that our guidelines are not broken. The poster has not done anything wrong by asking!

It is fine for them to mention the name(s) a doctor, group of doctors, in their question - in neutral language.

For this reason, it is best to ask for information in a new and separate post so that turning off replying doesn’t terminate other discussions.

If you wish to help the person, send them a Private Message (also called Chat) with your information. (The poster might already have asked for Private Messages.)

This also applies if you want to name doctors or practices even when not specifically asked.

And it applies across all health professionals - including alternative practitioners, and all other forms of therapist.

Simply put, do NOT name doctors or other practitioners on the forum.

Guideline 30 applies:

30. Do not post information about specific endocrinologists or doctors on the main board without their permission as this may result in unwanted attention from certain areas of the medical profession. If you wish to discuss a particular endocrinologist or doctor, you may mention his/her name and location, providing that you ask for comments by private message only.

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