Private endocrinologist? I’m so tired of this. - Thyroid UK

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Private endocrinologist? I’m so tired of this.

Dshadzz07 profile image
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I’m getting tired of this and how I’ve been treated by my GP for my hypothyroidism. It’s been disheartening for me. I just want help.

Has anyone got any names for private endos in the Portsmouth or Hampshire area? I just need to see someone who will hopefully listen to my concerns.

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Dshadzz07
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SlowDragon profile image
SlowDragonAdministrator

Results from 6 months ago

TSH: 4.1 (0.3-4.4)

T4 15.1(11-22)

T3 wasn’t tested but is usually in a good range for thyroid.

Vitamin D 24nmol/L (50-300)

Folate 0.8mg/dl (4-22)

Vitamin B12 311nmol/L (150-800)

IRON panel

Iron 13.4 umol/L (10-30)

TIBC 81umol/L (35-81)

UIBC 68umol/L ( 13-45)

Transferritin saturation 17% (25-45%)

Ferritin 80ug/l (40-300)

Young and male

On only 100mcg Levo

Shows you are on inadequate dose Levo

As direct result

Deficient in vitamin D and folate

Inadequate B12

Low iron

What vitamin supplements are you currently taking

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking

VERY important to test TSH, Ft4 and Ft3 together and retest vitamin levels

BEFORE seeing any endocrinologist, especially privately you need to get FULL Thyroid and vitamin testing

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine or significantly improving low vitamin levels

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease or when on inadequate dose Levo

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Just TSH, Ft4 and Ft3 test - £32

monitormyhealth.org.uk/thyr...

10% off code here

thyroiduk.org/testing/priva...

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65

(Doesn’t include thyroid antibodies)

monitormyhealth.org.uk/full...

10% off code here

thyroiduk.org/testing/priva...

Come back with new post once you get results

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

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