Private Consultants overprescribing weight loss... - Thyroid UK

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Private Consultants overprescribing weight loss injections (Ozempic/Mounjaro/Wegovy)

Wired123 profile image
39 Replies

hi all,

I’ve had a few bouts of viral illnesses and related symptoms for much of 2024 and have also been recently diagnosed with fatty liver on top of the Hypothyroidism I’ve had for 15 years or so.

I’ve seen a few different doctors of various specialities (including Liver, Heart, Endo and General Medicine) all privately. They all seem quite keen to give me a prescription for one of the weight loss jabs and talk about them being the best thing since sliced bread.

Yes I am in the obese category, have borderline high sugars and carry my fat predominantly in the belly area so I agree these are all high risk factors. However I am really surprised how quick they are to want to write up a prescription before even considering more conservative measures like the magical “eat less and move more” advice!

Am I being cynical or are these doctors getting some kind of commission or kick back from either the manufacturers or the pharmacists for issuing these prescriptions?

My concern is two of these doctors had a lot of belly fat/beer bellies themselves so I wonder why they don’t take the drug given they claim they are so effective!

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Wired123 profile image
Wired123
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39 Replies
greygoose profile image
greygoose

My concern is two of these doctors had a lot of belly fat/beer bellies themselves so I wonder why they don’t take the drug given they claim they are so effective!

Exactly! Try asking them if they've tried these jabs.

No, I don't think you're being cynical at all. There has to be something behind it, as with statins and anti-depressants. All far more lucrative than good old thyroid hormone replacement, if you catch my drift.

Wired123 profile image
Wired123 in reply to greygoose

Indeed, to be fair nobody has asked me to stop my T3 and T4 but all these additional suggestions privately could well end up breaking the bank!

greygoose profile image
greygoose in reply to Wired123

I fail to see why you should be fair to them. They're never very fair to us!

FallingInReverse profile image
FallingInReverse in reply to Wired123

Breaking the bank…

Exactly! You give your money to them. You break your bank, they get rich.

Whether it’s “commissions “ or whatever they call it, doctors nowadays are educated by drug company employees (in the US anyway) and they have incentive (not sure what form it takes, but follow the money) to prescribe big Pharma not off patent and unprofitable things.

I also learned that in the US, pharmacies actually lose money in some drugs because they can’t source them for what insurance will reimburse. Then there are certain drugs that make up for it. Everything is so upside down!!!

HealthStarDust profile image
HealthStarDust in reply to greygoose

Agree with this!

Also, as soon as the jabs were NHS approved the local NHS weight management clinic got in touch with me to explore options!

I am only overweight not obese, and at some point I hope I can lose the weight when the thyroid is better managed.

Madness!

Wired123 profile image
Wired123

just to add I’m quite cynical because a friend of my partner is a private consultant. I once complimented him on his lovely Mont Blanc pen worth about £400 and he told me it was a gift from a pharmacy where he sends a lot of business (ie, prescriptions).

greygoose profile image
greygoose in reply to Wired123

😮

FallingInReverse profile image
FallingInReverse in reply to Wired123

Right! Reading down this thread - there’s an example !!! Follow the money.

I’m not even sure how these things are regulated in the US. In business there is the UK Bribery Act and similar in the US and elsewhere where you couldn’t give a $400 pen to a client without it being flagged.

Where is the same with our health?!

Wired123 profile image
Wired123 in reply to FallingInReverse

how do you enforce it though? who is checking and how do you trace the origins of a pen? the pharmacy is probably privately owned and they can put whatever they like through their books or paid directly out of the owner's pocked (off the books!).

Zephyrbear profile image
Zephyrbear in reply to Wired123

I think Donald Trump recently found out about putting porkies through the books and he doesn’t seem to be too happy about it… a clear case of FAFO! 🤣

london81 profile image
london81

I can only speak from experience but taking these drugs is literally the only way I’ve lost weight having hashis. I’m currently paying out over £400 a month on ndt, private care & wegovy. No doubt there are some unscrupulous practises but for me the fact glp1 have helped me so much I’m on not in a position to criticise. One thing I’ve noticed is I seem to slim out even when the appetite suppression wears off, I think there is a great benefit from the drug. As we both have hashis I know you will have similar experiences to me- trying everything and living clean just to get puffy overnight. It’s certainly a challenge

Wired123 profile image
Wired123 in reply to london81

How long have you taken it and how much do you pay if you don't mind me asking?

It's amazing you are seeing such great results :)

london81 profile image
london81 in reply to Wired123

So I stared on it in 2021- the irony being I had started working with a personal trainer then.

I had lost about 2 stone when I started on NDT taking me down to 11stone anc a size 10, ideal for my height & build. But in 2020/21 I started to go through peri menopause and even with the PT my weight climbed up to 13st8 from 11st7,

I’m quite tall and I got a dexa scan around then which showed I had high muscle but also my fat was high ( 37 percent- mostly subtecaneous as opposed to visceral!). I had to stop weight training at that point and definitely lost some muscle too. Overall I’ve lost 2 stone & 5 percent fat by taking initially saxenda then onto ozempic now I’m on wegovy. Initially this was simply due to eating very low calories, but I suspect it does more than that as when I take it, even if I eat moderately normally I lose on the scales. I’m maintaining my weight now not losing anymore but still take it as advised it’s a life time commitment!

Having quite complex health, both hashis and peri menopause my case may be different to you, not least on gender! But I know you are good at tracking things so you could always try it and see how you find it- as I said I feel it works over and above appetite suppression but obviously that’s a big factor.

Currently I’m seeing a tele medicine doctor (he is listed on thyroid uk list) so I’m paying for that in relation to NDT & reports, it’s working out about £250 for tests, reports& medication- that’s around what I paid just on importing meds from America! I get my wegovy from an online pharmacy it’s £240 a month for 1.7mg dose, but that’s maintenance dose after being on it two years- you could get it for around £150 on starting dose. I tried coming off it and gained weight rapidly. It’s costing me all my spare money and I’ve not had a holiday or any luxuries for years but for me my weight was ruining my life so this feels worth it!

Hope it helps

Jazzw profile image
Jazzw

I think it’s interesting that there’s so much interest in getting us on these jabs. HRT too. But if you take enough thyroid hormone to lower your TSH beneath the bottom of their arbitrary reference range, that’s bad.

Not saying that Wegovy/Ozempic/HRT in the right circumstances are a bad thing. Just that it’s odd how there’s all these different rules about the hormones you can take and what’s considered to be perfectly ok and what isn’t.

Kickbacks from pharmaceutical companies have been a thing for a long time. It used to be ordinary pens and mugs with the Pharma logo on. You can tell how much money must be at stake if that now extends to Mont Blanc pens.

Wired123 profile image
Wired123 in reply to Jazzw

Indeed kickbacks have been going on. This pen example is actually from a pharmacy not the pharmaceutical manufacturer so clearly the little independent shops are also making a lot of money!

Bertwills profile image
Bertwills

I think I’d do a literature search. I did recently read that there have been some surprisingly good results with these diabetes drugs for health problems unconnected to diabetes & obesity.

I can’t remember anything more but given the chance it might be worth trying it.

The belly fat problem has so many detrimental effects on health that I’d love to get rid of mine. Nothing has helped so far. High T3 only, gluten & dairy free, low carb diet, loads of expensive supplements, acupuncture, etc nothing has worked. I don’t even eat or drink much!

I’m sick of being given the healthy eating talk. I think I probably know more about nutrition than most of them. Wegovy is apparently not pleasant for some people, nausea etc but it works. Maybe try it?

sparkly profile image
sparkly in reply to Bertwills

I'm like you apart from the gluten and dairy free bit.I would've jumped on a plane to Turkey for weight loss surgery if I thought it would work. But when things were at it's worst eating less than 900 calories most days and sometimes less. I felt surgery wouldn't work so why put myself through it. I feel same about ozempic but then thinking about it I feel taking berberine has helped me ever so slowly lose some weight and that was advertised as nature's ozempic.

Would be lovely to be able to lose 1lb a week instead of 1lb a month but I'm not complaining.

I know my metabolism is on the floor even with now exercising. It's cruel when you're doing everything right and just don't get the results

I think I will do some research too

Wired123 profile image
Wired123 in reply to sparkly

I know the feeling. I did 18 months of really good diet (literally protein shake, grilled meats, veg and salad) as well as 3 x weight training sessions a week plus some walking. I still did not lose much weight 😑

I’m due to try Berberine next, any tips?

sparkly profile image
sparkly in reply to Wired123

Carry on what your doing, increase calories if your on next to nothing and I started to eat carbs. Take one capsule before each meal. I stopped losing after about 4 months so stopped after 6 months. They say to cycle it to give body a rest. I started back on last month and noticed I lost 2lb like in 3 weeks.

I know the weight training will be main reason why my bloods are now in normal range but for me i feel the berberine has played a part. Basically having metabolic syndrome, this is what berberine is said to help with.

You can only try it, hope you see some results

Wired123 profile image
Wired123 in reply to sparkly

thanks - how many mg are your capsules and which brand?

sparkly profile image
sparkly in reply to Wired123

I take 5 greens brand as they are clean, no fillers. The capsules are 600mg.

sparkly profile image
sparkly in reply to Wired123

I never thought for a minute I'd get any benefits from taking it. Only when read they could give you tummy upset ( diarrhea) did I decide to take. Having chronic constipation I welcome anything that will clear me out, It didn't though 😂

Wired123 profile image
Wired123 in reply to sparkly

Lol, try beetroot and prunes - both work a charm. Eat the real pieces not their juices.

SlowDragon profile image
SlowDragonAdministrator

Recent investigative TV prog suggested weight goes back on even faster when you stop these fat jabs

Personally I have found optimal levels of Levo, T3 and all four vitamins essential plus especially dairy free diet all help keep weight in check

Gluten free I find essential, but didn’t seem to help as much weight wise as giving up the dairy did

Wired123 profile image
Wired123 in reply to SlowDragon

what show/channel was this? there's also a book called Magic Pill by Johann Hari which talking about these drugs. It's quite a thick book so I declined to buy it

tattybogle profile image
tattybogle in reply to Wired123

yes .. i saw that programme too.. can't remember what channel ... i got the distinct impression that it only works while you take it .... when you stop you'll very likely just go back up in weight. so yo-yo-ing could be a significant issue with it's use for weight loss.

personally if i was going to be stuck on something for life i'd sooner be on 'enough T4 and T3',,

.... but that's easy for me to say cos i seem to have been blessed with 'whatever effects this stuff has' for free presumably thanks to my genes... i'm rarely hungry or even particularly interested on food , and many days i have to force myself to eat properly / i stay feeling full after a very small meal / i don't have food cravings apart from sugar, i can eat 'all the donuts' without putting any weight on, and i don't even put significant body weight on when hypo , i just get a lumpy looking face. So i should probably shut up ... or everyone will hate me.

Sunflower64 profile image
Sunflower64 in reply to tattybogle

I was a member for a while of a group for users of these drugs, and the majority gained the weight back when these drugs were on backorder (which seems to be happening all the time).

SlowDragon profile image
SlowDragonAdministrator in reply to Wired123

Just looked it up

It was Channel 4 with Anna Richardson

The truth about the skinny jab

Wired123 profile image
Wired123 in reply to SlowDragon

thank you will watch!

in your opinion was it a PR piece for the manufacturer or was it a proper piece of balanced journalism?

SlowDragon profile image
SlowDragonAdministrator in reply to Wired123

I thought it was pretty balanced…..or anti using generally

Definitely showed it’s not a magic bullet

HealthStarDust profile image
HealthStarDust

How do they work? Are they meant to suppress appetite because if so, that can be achieved more healthily with a protein shake?

tattybogle profile image
tattybogle in reply to HealthStarDust

New Scientist article here, seems fairly thorough : newscientist.com/article/23... everything-you-need-to-know-about-semaglutide-weight-loss-drugs/

Wired123 profile image
Wired123 in reply to tattybogle

Nice article and thanks for sharing. I do always wonder how much "input" the drugs manufacturer had in the article and whether it's really a PR piece for the manufacturer and not a journalist's unbiased research.

Wired123 profile image
Wired123 in reply to HealthStarDust

I think it's multiple mechanisms including appetite suppression and reducing glucose resistance

Sunflower64 profile image
Sunflower64 in reply to HealthStarDust

They suppress appetite and increase insulin secretion to lower high blood sugar. They were, after all, diabetes 2 drugs to begin with (Victoza/Ozempic/Mounjaro) which were found to result in weight loss so are now sold as weight loss drugs (Saxenda/Wegovy/Zepbound) containing more of the active substance.

adin profile image
adin

From my experience, only t4-levo and t3 are not enough in the fight against weight loss, Mounjaro+( gastric sleeve) bariatric surgery in advanced obesity should be considered...

Sunflower64 profile image
Sunflower64

I think they are sometimes too quick to prescribe these drugs.

Even if they work for many, the latest research seems to suggest you need to stay on them indefinitely or gain most or all of the weight back. These drugs are not a quick fix!

They are now so popular that there is a global shortage. Many have to go on and off them and find them to work less well after a while. The price is incredible, I cannot believe what you have to pay for a month’s supply of Wegovy or Zepbound (Mounjaro for weight loss)…it seems some doctors prescribe Ozempic off label for weight loss as it is covered by health insurance in most countries, but this leaves many patients with diabetes 2 without medication.

I read that Novo Nordisk which makes Saxenda and Wegovy will invest billions to build new factories and ramp up production. That is likely to increase the cost of the drugs even more.

In my own experience, hypos face more challenges than overeating and not exercising enough, such as low T3 levels in cells, lower metabolism and water weight. These drugs reduce your appetite drastically, but eating less is not a good idea if your metabolism is already low.

arTistapple profile image
arTistapple

Whatever floats your boat Wired123. However I have history with amphetamines prescribed about 55 years ago for ‘unexplained’ weight gain. Just reading this post brings me out in a sweat. I would never touch anything again for weight loss.

Recently I saw a cardiologist of my choice. I did as much research as possible to find someone I thought would be sympathetic to my situation. However it has ‘back fired’. The list of heavy duty drugs is scary but I am not yet taking any of them because I am seeing an NHS endo shortly with a special interest in heart/thyroid.

I noticed semaglutide on my list. Even my GP was shocked and advised me not to embark on the list until investigations were complete and definitely not to start on them all at once!

Since then I watched the programme with Liz Carr (from Silent Witness) talking about “Assisted Dying”. There was a moment in that programme where she was interviewing a Canadian doctor carrying out this process with patients and asking why she was doing it, the doctor’s reply was very telling re: medics.

“Doctors like happy patients and my patients are all happy”. This is the patients from her special work.

Perhaps all doctors have this as their priority? That would explain why they seem to dislike us hypos so much. We are not happy and certainly not happy with our treatment.

Anyway I digress. Many doctors will be motivated by “happy patients” and so they prescribe (as hero doctors) completely over the top drug regimes.

My cardio was certainly suppressing her fury at my follow up appointment because I was not taking any of the drugs she prescribed. I got the feeling she was looking for good feedback (and appropriate gratefulness from me). She even had a student there to ‘witness’ the charade (I could be a bit over estimating with that comment).

It’s totally re-damaged my trust in the medical profession AGAIN!

How does the NHS do this? A drug aimed at Diabetes is prescribed by a cardiologist, whilst my diabetes markers still waver on the cusp (another blooming story). However no issues about thyroid could be taken into account. ONE isolated endocrinology decision (diabetes) can be made by a cardiologist and not another (hypothyroidism) when so much research around hypothyroidism is heart orientated!

Regular thyroid problems (hypothyroidism) are NOT a feature of medicine other than in ineffective endocrinology departments.

In my view it’s insane.

Wired123 profile image
Wired123 in reply to arTistapple

interesting theory re the happy patient syndrome doctors suffer from. Some of them have very fragile egos, hence needing the "Dr" before their name... getting a happy patient will give them their sense of self worth!

Always refer to a doctor by their first name, it totally throws them off their high horse!

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