Hashimoto's fluctuations? : I was watching a... - Thyroid UK

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Hashimoto's fluctuations?

Obsdian profile image
9 Replies

I was watching a video on YouTube about hashimoto's flare ups and that Doctor was saying Hashimoto's fluctuates from hypo to hyper like a roller-coaster.

Does it? I never get anything but hypo symptoms.

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Obsdian profile image
Obsdian
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9 Replies
Buddy195 profile image
Buddy195Administrator

People experience different symptoms Obsidian. With hypothyroidism some members report more ‘hyper like’ symptoms. I’m one of these people… during flares I experience weight loss, tremor, palpitations etc. I also have TED, which is more commonly (although not exclusively) linked to hyperthyroidism/ Graves.

I found this post by humanbean fascinating

healthunlocked.com/thyroidu...

Obsdian profile image
Obsdian in reply to Buddy195

What is TED?

Buddy195 profile image
Buddy195Administrator in reply to Obsdian

Thyroid Eye Disease

SlowDragon profile image
SlowDragonAdministrator

Pre diagnosis 30 years ago

I also never had any obvious hyper phase, though did inexplicably loose weight 6 months before rapidly gaining weight…and then getting diagnosed with Hashimoto’s …..so I guess that was my only “hyper” phase ….but never felt unwell at that stage

I also have TED …..I think it’s just not often diagnosed as such with Hashimoto’s patients

teenarocks profile image
teenarocks

I definitely had the ups and downs with Hashimotos. I would feel great, lots of energy, no brainfog, go get a job and nine months later I was exhausted, achey, couldn't think staight, quit my job. This cycle went on for all of my adult life. Now at 77 and over 30 years into treatment things have finally settled down, ostensibly because my thyroid is basically dead at this point and I get a stable amount of hormone from my pills.

Tuesday28 profile image
Tuesday28 in reply to teenarocks

Did you find that working made your symptoms worse ?

teenarocks profile image
teenarocks in reply to Tuesday28

I don't think working had anything to do with it. But I would always quit my job and basically wait around for about another 9 months till I cycled and felt better and then I would go get another job and start all over again. It was a roller coaster ride for many years.

Jefner profile image
Jefner in reply to teenarocks

i am 62 and still trying to get my thyroid meds stable and have been for years. How the heck you manage that with Hashi's?

teenarocks profile image
teenarocks in reply to Jefner

only because the Hashis finally killed my thyroid. And because I have an endo who agrees to give me T3 as well as T4. Life is still not perfect but it’s 100% better than it was 40 years ago.

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