New to hypothyroidism : Hi, new to this, been... - Thyroid UK

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New to hypothyroidism

Animallover73 profile image
13 Replies

Hi, new to this, been diagnosed with clinical hypothyroidism as well as going through the menopause.Sypmtons are massive lack of energy, all joints ache and have read up that symptoms can include choking fits, which I've been having for about 10 years now, but no Dr has ever said anything about a possible connection.

Been on 50microgrames of levothyroxine which I've been on for 16 days and feel no difference at all.

Anyone had similar or anyone new to this too.

Regards

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Animallover73
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13 Replies
SlowDragon profile image
SlowDragonAdministrator

welcome to the forum

Do you know your actual results from diagnosis?

It takes 6-8 weeks for each dose Levo to slowly build up

50mcg is only the standard STARTER dose

You will have further increases in dose over coming months

which brand of levothyroxine have you been started on

And were thyroid antibodies and vitamin levels tested

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Animallover73 profile image
Animallover73 in reply toSlowDragon

Had a look on my medical info results areFoliate 5.7

B12- 328

T4- 12.3

Thyroid function - 5.6

Brand of levo- accord

SlowDragon profile image
SlowDragonAdministrator in reply toAnimallover73

What’s the range on Ft4 (figures in brackets after result)

Different labs have different ranges

B12 and folate low

No vitamin D or ferritin?

Or thyroid antibodies…..usually listed as TPO antibodies

Animallover73 profile image
Animallover73 in reply toSlowDragon

Can only findT4 - 12.3 (9.0-19.0)

Thyroid function 5.6 (0.35-4.94)

Can't find TPO antibodies, or vit D or ferritin

Animallover73 profile image
Animallover73 in reply toAnimallover73

Ferritin 131 (15-200)

SlowDragon profile image
SlowDragonAdministrator in reply toAnimallover73

Ferritin is good

Tinkerbell_84 profile image
Tinkerbell_84 in reply toSlowDragon

Hi slow dragon

I've just read what you said and just wondered if I coukd ask. I've taken the advice and I've booked a private test with medichecks. And having blood taken with superdrug as they are closest to me . They only take bloods from 9am is this to late I've booked the 9 am. Also mine is a Wednesday. I did see you said make sure it's Monday or tuesday can I ask why if this is ok as I don't want to mess my test up. It just means I'll have to wait 2 weeks to get it done that's all.

Many thanks 😊

SlowDragon profile image
SlowDragonAdministrator in reply toTinkerbell_84

Just pay extra at post office for guaranteed 24 hours delivery if doing test Wednesday

9am ok

Tinkerbell_84 profile image
Tinkerbell_84 in reply toSlowDragon

Oh thank you so much I think the medicheck is 24hrs I think but if its not I'll pay extra thanks so much 😊 xx

Bluesadawg profile image
Bluesadawg

Hiya,

Like slow dragon says, 50 mcg is the starting dose, it may take a quite a quite a while to get the levo dosage right for you as it has to be adjusted slowly.

Confusingly hypothyroid & menopause symptoms overlap a lot, I’m having trouble with this one too atm. But regarding hypothyroidism I’ve found Rachel Hill very informative- another thyroid patient who’se won awards for her work on hypothyroidism. She has information online & a couple of books- ‘Be your own thyroid advocate’ is the one i’ve read. She’s taught me a lot.

Have you looked into altering your diet? It can be a big one if your hypothyroidism is autoimmune, as I believe most people’s is. Gluten being a common culprit (of many) for worsened symptoms.

Good luck

Animallover73 profile image
Animallover73 in reply toBluesadawg

Thank you I'll have a look for the info

Buddy195 profile image
Buddy195Administrator

Welcome to the forum Animallover73,

Regarding menopause, it may be useful to have a look at Dr Louise Newson’s free Balance App, as I find it really useful for comparing HRT medications & having up to date research articles. There is also an ability to post questions.

healthunlocked.com/redirect...

Animallover73 profile image
Animallover73 in reply toBuddy195

Thank you I'll have a look into this

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