Hello Thabk you so much for allowing me to join 💗My husband came across this website and thought it would be an amazing place to get help advice. So sorry for long post.
I have had vestibular dysfunction since August 2022. I've suffered with muscle joint pain in my neck(I have had an injury to this area in past but pain has been completely different). Vertigo, Tirness, balance issues the list goes on.
Having had brain and neck scans all came back normal then I was diagnosed with Vestibular.
I have struggled with Tiredness, heavy periods (which I've never had this started after my covid booster so put that down to that at first) very irregular period also always been clockwork every 28 days. Joint muscle pain, always being cold and going to bed in jumpers every night when i used to go to bed in tshirt and shorts even in the summer months. Weight gain I've gain 10lbs never been so heavy so really struggling mentally with this even though I walk 10 k steps a day and gym 3/4times a week. Dry skin low blood pressure. Oh and the moodswings I just don't feel like me.
I had put it all down to stress as I was getting married and moving house. Then after my vestibular specialist requesting bloods I noticed my T4 was on the low side 11.4 in June2023. I requested my report as Dr said they were in normal range. My friend looked at my results and told me to ask for the to be recheck.
I did again told me in normal range. A few weeks later I asked for a print out and they hadn't even tested me for T4 which I was requesting to be recheck. Back to drs I went redid bloods and check with nurse it was definitely T4.
Results again came back normal. Asked for print out they did wrong test again. I hate needles and this was getting me upset. Finally I looked at the screen they did the bloods again by now it's October results came back T4 10.6 the Dr said I would need to be repeated in 3 months time.
Come Jan 2024 had them recheck and my T4 were 11.6 so had gone up slightly and again I was told within normal range. The only difference I had done was started eating Cheese again. I had stopped because eof my vestibular dizziness.
I am just wondering if anyone can help me as at my witend. I have so many symptoms and vertigo is one associated with low thyroid. I did see also quite a few people have had issues with thyroid since having the covid booster.
Please can someone help me. Is the Dr right and that 11.6 is normal range but what about my symptoms. I had though may be it's perimenapause as a few cross over just don't know what to do.
So sorry for the long message xx
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Tinkerbell_84
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Hi there, welcome. You'll find everyone on here is very helpful. Can you please add all your test results (tsh, ft4, any vitamins, iron etc) with the 'normal' ranges.
Hi yes I did just add them below I don't know if you saw them . I do have more but I can't find them I know my full blood count my red blood ells were boarder line but I can't find my paperwork . I think I'll ask for them to be printed again.
So is your doctor right that your results are in the so-called 'normal' range? Well, you haven't given us the range (and please always give us the ranges because they vary from lab to lab) but I'm guessing yes, he's right. But so what! What he doesn't understand is that it's not about just being any old where within the range. It's about being in the right place within the range. And the ranges are much too wide, and he doesn't understand ranges, anyway. Two things doctors don't learn about in med school: thyroid and interpreting blood test results! Yes, I know that sounds weird but it's true.
So, it looks like your result is right at the bottom of the range, which is not good enough. If it's were truly 'normal' (euthyroid) it would be about 50% though the range.
However, there are three important results for thyroid tests, and the FT4 is only one of them. You also need the TSH and FT3, were these tested?
It's true that the NHS will only to the absolute minimum when testing for thyroid, which is why so many people go undiagnosed. And they usually only test the TSH, saying that that tells them 'all they need to know'. Which it doesn't! And, it is policy (for a reason) to need two out-side range results of tests taken three months apart before diagnosing. This is because thyroid levels can be skewed by infections and other things. However, the difference between your two results is so small, it should be irrelevant. Both are more than likely saying you're hypo. BUT we need the other results that go with it.
It's also a good idea to get antibodies and nutrients tested, too. But the NHS are very reluctant to test those. Would you consider doing a private test? Details of private testing here:
Hope you are well thank you so much for replying to me.
Yes of course. They say they use ranges from
11.50 - 22.70
So my I can't find all my paperwork but I roughly remeber.
So June 2023 THS 2.46 and only tested T4 11.6
Then In octobers 2023 THS was 2.87 and T4 10.6
Then Jan 2024 THS 2.43 and T4 11.6
Also had inflamation markers 2mm range 0.00-20.00
Had hormone test FSH 9.1 can't understanded ranges with that one as there are so many.
Sodium 141 range 133 - 146
Potassium 4.2 range 3.5-5.30
Creatine 67 range 46.00-92.00
On my report from the same blood sample they tested T4 twice by the lookes first at 11.9 then 2nd 11.6 for the same sample of blood which is weird.
Also had b6 tested 451 range 250-680
The Vit d was I think <50 and range <75 but I have been taking high vit d with this result and had been for around 6 months taking 1000iug.
Sorry hope that is clear to understand and not mumbled.
Thank you so much I saw this so I've actually gone on to thriva and booked the advanced Thyroid test and also tests for ferritin, foliate,b12,vit d as well as all the antibodies tests for thyroid and also TSH T3 and T4.
So it is quite normal to have all the so say normal tests and still have so many symptoms.?
So, your doctor is only really interested in your tsh (thyroid stimulating hormone). This is made by your pituitary and signals your thyroid to make thyroid hormone (mostly t4, a little t3). Its a negative feedback mechanism, so when your thyroid hormones are low, TSH is high, and visa versa. I can't see the range for your tsh, but I assume it was in the accepted normal range.... so your doctor is happy. Your ft4, however, is very low. So yes, you are probably experiencing hypothyroid symptoms. Most people need their ft4 towards the top of the range to feel ok. Your doctor is very unlikely to start you on levothyroxine (which is t4) until your tsh is above range, and has been for a while. Looking at your other results, your vitamin D is very low. Obviously you know this and have been supplementing. However, it is possible you're not absorbing it well (another hypo symptom). Have you tried an oral spray? Greygoose or another knowledgeable admin can give you advice on the best supplements. Its vital to keep your vitamins and minerals at good high-normal levels, because they're needed in the biochemical pathways that keep us feeling well. I see you've booked some blood tests which will provide more info, so please post those when you get them back and we can help you with the next step.
Oh thank you so much for all your help I truly appreciate it. I just posted my vit d results. With these I was already taking 1000iug as my vestibular specialist said there was proven evidance for this helping . I have started taking 2500iug in oil form but if there is a better one for absorbing I try that instead. So yes my TSH results were right in the middle the range for these are 0.55- 4.78 the highest mine have been is 2.87 but they went back down to 2.6 recently.
Oh I didn't realise that so even if my T4 is low they still won't give medication are there things to do to help the symptoms do you know . The brain fog is unreal. 🙈
OK, so what we can deduce from all this is that your TSH is not reflecting your low FT4 - and it can't get much lower without being under-range! But, what time of day were the blood draws for these tests? Because TSH fluctuates throughout the day and it's therefore best to have the blood draw just before 9 am.
Potassium 4.2 range 3.5-5.30
Potassium a bit low. Eat more bananas!
from the same blood sample they tested T4 twice by the lookes first at 11.9 then 2nd 11.6 for the same sample of blood which is weird.
No, it's not weird. The difference is so slight it's irrelevant. You're bound to get small differences like that.
Are you taking magnesium with your vit D? It won't do much for you unless you do. And also vit K2-MK7 to make sure any extra calcium absorbed from food goes into the bones and teeth and doesn't build up in the soft tissues and arteries.
So it is quite normal to have all the so say normal tests and still have so many symptoms.?
Don't confuse 'in-range' with 'normal'. Your results aren't 'normal'. Even your TSH, whilst not suggesting hypo, as it should, is saying that your thyroid is struggling. A 'normal' TSH would be around 1.
It rather looks like you're dealing with a pituitary problem - what we call Central Hypo - rather than a thyroid problem. TSH - Thyroid Stimulating Hormone - is a pituitary hormone, not a thyroid hormone. And your pituitary is not producing enough TSH to stimulate the thyroid to make enough thyroid hormones. Hence the symptoms. And the problem with that is that it's not 'normal' - or 'usual' - so doctors know nothing about it and cannot recognise it when they see it. You need an endo well-versed in pituitary problems to test your other pituitary hormones. And they are not easy to find.
So, I would suggest that first of all, you get your private test done, and see what the results are - remember to do it early morning, before 9 am and fasting - and if they're much the same, ask on here if anyone can recommend a pituitary-savvy endo in your area - or wherever you're prepared to travel to. And take it from there.
But, I would also suggest that you do your homework first so that you know what you're talking about - because your GP won't have a clue! Here are some links to get you started:
Doubtful your thyroid nodule has anything to do with your low FT4. Most people have some nodules and they are rarely of any concern.
Is Central Hypo serious? Well, all forms of hypothyroidism are serious, because you can't live without thyroid hormone, and low levels can cause a lot of horrible symptoms.
But, with Central Hypo there's an added problem in that the pituitary makes quite a lot of other hormones apart from TSH, and these also risk being low, causing more symptoms. But all hormones can be replaced, so no reason for over-worrying. It just needs to be diagnosed and treated.
🤣🤣🤣🤣🤣🤣 I'm sure I speak for alot of people on this group but thanks for the help you do give. I'm sure it's helping alot of people. Feels like such a lovely community
Can I ask I've just booked my private blood test for next week. The earliest they woukd do is 9am on a Wednesday the postage is 24hr. Only thing is I'll be on my period or just coming to end of period. Would this be ok or should I rearrange by a few days? I am having the advanced test with iron and vitamins also.
I think it does make a difference, yes. But I'm not sure in what way. jimh111 I think you know about these things don't you? I seem to remember you answering a similar question.
I did see there may be an issue if on period but can't see why. I don't supose you know about anything with Iodine? I did see if this is low this can also cause low T4 if your TSH is normal.
Deficient. Your GP needs to do an iron panel and take this seriously.
B12 64.3 range 37.5-188
Too low. I would suggest you take a 1000 mcg sublingual methylcobalamin (B12) tablet every day for a week. Then, add in a B complex with methylcobalamin and methylfolate whilst continuing with the sublingual B12. When the pot of sublingual B12 is finished, continue with the B complex as a maintenance dose.
TSH 3.54 range 0.27-4.2 So the last 8 months my TSH has been around middle with GP
Being in the middle of the range does not make it good, as some GPs seem to think. That is too high. A normal (euthyroid) TSH would be around 1, never over 2, and when it gets to 3 you are hypo. However, GPs have this weird idea that you cannot get symptoms unless your TSH is over 10, which is utterly rediculous - especially as the TSH itself doesn't even cause symptoms. It is the T3 that causes symptoms when too high or too low.
Free T3 3.8 range 3.1-6.8
And your FT3 is much too low. Euthyroid would be around mid-range. But I don't suppose your GP even knows what T3 is!
Free thyroxine 12.1 range 12-22
Your FT4 is far from 'normal'. It, too, should be around mid-range.
But, as I said before, your TSH should be higher than it is with those low Frees so your pituitary is not fully functional. And this suggests Central Hypo, as I said above. And unless your GP starts listening to you and taking this seriously, it's going to get worse, not better.
Thyroglobulin antibodies 28.3 range 0-115
Negative.
Thyroid peroxidase antibodies 25.7 range 0-34
Border-line. Not over-range on this test but could very well be at another time because antibodies fluctuate all the time.
So, all in all it looks like you are hypo - no doubt about that - but due to a poorly functioning pituitary/hypothalamuse rather than a malfunctioning thyroid. Don't ever let anybody tell you that these results are 'normal', because they aren't.
Thanks so much for taking the time to look at them and replying.
I'll buy the recommended b12 supplements. I did see they do a b12 spray better you. This won't be any good would it?
I will get on to my gp regarding my Iron levels thanks so much for this.
Would iron be classed as anything else on a full blood count when I first had my vestibular issues with balance. They tested my iron then and gave me 6 weeks of supplements but then never retested me that was 18 months ago.
Yes the last time I had mine check around 3 months ago my tSH was 2.46 or something around that so keeps fluctuating but my free T4 is always borderline or under.
What could I do about this if my Gp won't do anything?
And can I ask ask what you mean by negative? For antibodies bit?
Do you think this could be why I habe vestibular issues with dizziness and my balance? Or do you think I'm just clutching at straws .
Another thing that you need to know is that the time the blood test is taken is important.
This is because TSH varies during the day. We always recommend taking bloods by 9am. This will give you the highest TSH. If you do this every time you have tests, then the readings will be compatible. Tests done later in the day may be in range when they are not.
By the way, doctors and nurses and receptionists don't know this so you have to be obstinate when you book your test.
Yes so the ones that were 11.6 were after 10am and the one which was 10.6 was at 8.20am thabk you so much. I am booking a private blood test to put my mind at rest least then if they say its normal then I'm guessing my symptoms aren't thyroid related??
You can’t rule out a thyroid problem, your FT4 is very low. But in order to get a better picture you need - as greygoose has suggested - to test the following:
TSH
FT4
FT3 (*most* important)
Antibodies
Fortunately we have access to inexpensive home testing kits (assuming you’re in the UK). It’s important to understand that whilst your GP is extremely unlikely to action any treatment based on the results of such tests, it can trigger further investigations. Plus it can galvanise you to fight/advocate for your own health, like so many of us on this forum have to do.
Secondly, since your TSH fluctuates throughout the day you want to ‘capture’ it at its most elevated which, from a practical point of view is 9am. This must be done fasting. Also, it’s important to know that biotin can affect any blood test so if you’re supplementing that, you need to stop for several days.
There are other options including companies where you can get your blood drawn by a nurse. These are just the 2 most inexpensive options currently available.
Yes I've just been on the Thriva website and they have an advanced blood test with blood draw for around £120.So I am going to book this as it looks like there is a wide range of further tests they do including in price.
There was another which uses nhs labs but they only your thyroid in the test not the additions from what I can see.
So can I ask why they don't test T3 at Dr's. I have been very luckily everytime I've asked for a blood test they have done everyone I've requested. But all come back normal. Some of my full blood count are are boarder line low which of these are that my immune system is on the low side but not low enough some are only 0 .1 not low enough but they have not been re-tested and just get reported as normal which is frustrating without re-testing.
I did have a neck ultra sound as I had a lump pop after after my covid booster and they did find a thyroid nodule, I don't know if this could be contacted at all?
Yes all the tests I've done I've made sure I've fasted for but I think k only 1 of them was before 9am which was when my T4 was 10.6.
To be honest I though may be it's perimenapause as so many cross over. But my husband came across this website and I ha e so many symptoms when you go on the thyroid uk website for hypothyroidism.
It's seems terrible you have to fight but even if it comes back again normal in range but low I supose drs won't do anything regards medication anyway will they?
Thank you so much it's a mind field. Everyone's been so helpful.
Why don’t they routinely test FT3? The short and simple answer is it’s because thyroid issues are poorly understood and poorly treated. The mainstream opinion is that treatment with levothyroxine (ie T4 / mono therapy) is completely sufficient to make even the whiniest of under active thyroid sufferers well. Which is complete rubbish.
Thank goodness we can self test.
The fact that you were found to have thyroid nodules is probably significant, yes. It could well turn out that you have the autoimmune version of hypothyroidism which, in the presence of an enlarged thyroid/a goitre is known as Hashimoto’s. Autoimmune hypothyroidism without a goitre is known as Ord’s.
I would suggest that you explore the thyroid angle before considering menopause, given your signs and symptoms.
Thank you so much for the information. I did say to my Dr coukd the thyroid nodule that was found the year before be anything to do with my levels and he said no so I didn't think about it again. It's only when I wrnt on thyroid uk that I noticed a section about it but they have taken info off and it says coming soon.
I've heard of Hashimotos as that can cause balance and vertigo which I've had and still going through.
So best think like greygoose said is get this private test then go from there.
One of the things that low levels of thyroid hormones does is it can reduce the stomach's output of stomach acid. This can reduce the "processing" of food in the gut and leads to low absorption of nutrients.
Low levels commonly occur in vitamin D, Vitamin B12, Folate, and Ferritin (iron stores), so it is suggested that people get these tested and, depending on results, optimise them. Optimal levels are not just "in the range", which is what doctors assume. Instead they have to be high enough in the range to actually make you feel better.
Some optimal levels are :
Vitamin D : 100 - 150 nmol/L or 40 - 60 ng/mL [In the UK you will usually see nmol/L]
Note that there are two different tests for B12 : Serum B12 and Active B12. They have quite different reference ranges and also different units of measurement. The NHS usually uses serum B12 rather than the active B12 test (which is the newer, better test).
Folate : If the reference range has an upper level then optimal is upper half of the reference range. If the reference range is open ended e.g. > 3.0 mcg/L then the usual optimal quoted is around 15 - 20 mcg/L.
Ferritin : There are various opinions on this, and also many different reference ranges, which makes choosing an optimal level more difficult. The one I quote comes from here :
Normal ferritin levels for women are between 20 and 200 ng/mL. According to some experts, ferritin levels of at least 40 ng/ml are required to stop hair loss, while levels of at least 70 ng/ml are needed for hair regrowth. The optimal ferritin level for thyroid function is between 90-110 ng/ml.
It would probably be a good idea to take some vitamin C too, but nobody gets it tested. At "normal" levels of intake (1000mg per day?) I haven't heard of it being dangerous, and I have read some suggestions it can help with converting T4 to T3.
...
There are other nutrients that get mentioned on the forum, which are more expensive to test and are therefore less often discussed. Concentrate on the ones above, but depending on how you feel you may want to research these too, or just ask about them later :
Magnesium ; Selenium ; Zinc ; Copper
Note : As long as your kidneys are functional it is not worth testing magnesium because it can't be tested reliably. Functioning kidneys will excrete excess magnesium in urine, so it shouldn't build up to high levels.
...
If you test B12 and folate and one or both of them need supplementing to optimise them, it is a good idea to follow the following practice :
1) Take a good quality B Complex with active versions of all the B vitamins every day. See this list of active and inactive B vitamins :
2) If B12 is below optimal take a separate B12 supplement on top of the B Complex. Once B12 is optimal the B12 supplement can be stopped.
3) If folate is below optimal take a separate folate supplement (NOT folic acid) on top of the B Complex. Once folate is optimal the folate supplement can be stopped.
4) Note that some people have to continue taking separate B12 and/or folate because a B Complex doesn't contain enough to maintain optimal levels. And don't forget that supplements don't always have to be taken every single day without fail. So, for example, you might need a B12 supplement on top of a B Complex but only need to take it 1 - 2 times a week to maintain optimal levels. I use this fact to maintain my iron/ferritin levels too. And it saves money!
Thank you so much for all that information that is amazing I can't thank you enough. I've just found some of my results now so I'll put pictures up of my full blood count and some of my vitamins.
So with regards the first part with stomach acid would this cause alot of digestive issues and acid reflux? It's the weight gain that's been massive for me. Gaining 10lbs I am really struggling with as I'm excerising loads and nothing happend. I can see muscle definition in arms and legs and my tummy area is just bloated and my face is bloated and my 2 index fingers on both hand swollen.
Yes so I've looked at the Thriva website and can get advance blood test with is
Antibodies x2 differnt types
TSH
T4
T3
And
Ferritin, folate,B12, Vit D. With a drs report also and it's draw blood. It's £120 I think.
The first 2 pictures are vitamin D but I can't understand what results are. I was taking 1000iug of Vitamin D for 6 months leading up to this test.
After I had this test I did up the dose to 2500iug daily.
I didn't realise that so yes just looked and mine is Serum B12 that I had tested that's also on pic 1. I can't understand this result either. I don't take any B Vitamins currently.
So haven't had Folate tested. But getting in tested private after speaking with people in the chat.
But when I first had vertigo I did have my Iron levels checked and they were low and they gave me a 6 week course to take that was around 18 months ago but this hasn't been rechecked.
So i do actually take Vitamin c I take around 1500iug . As I saw some information regarding it c and Help relief vestibular/vertigo. This combined with the Vitamin D I have seen slight improvements so I've kept taking both of these.
Thinking back I only started taking Vitamin c back in September time so my T4 was 10.6 and went back up to 11.6 not sure if the vit c may have effected this?
I have had my Magnesium tested and it was on the higher end of normal think if I can remeber it was something like either 94 or 96 and I can't rember the range but top range was 100. And I thought oh I'm the top end as I though I was deficient I was shocked.
I've added my full blood count as some are on really low range but nothings been done or rechecked.
Haven't had any of these checked Selenium ,Zinc Copper.
Thank you so much I can understand alot of the results but some of them just aren't very clear. It's so hard having to fight as I'm not a Dr and don't have any medical background like alots of people on here. You can understand how people become so anxious.
So with regards the first part with stomach acid would this cause alot of digestive issues and acid reflux?
Yes. Gut problems are notoriously common in patients with thyroid disease.
Notice that acid reflux is actually caused by having too little acid in the stomach not too much. For info on the reasons for this see this link - it's part 1 of 6 and they are linked from one to the next. The link to the next one in the series is usually at the bottom of each article. They are all worth reading, in my opinion :
And of course, having incorrectly dosed thyroid treatment will always increase the risk of weight gain. Another factor is "mucin", which is not fat it is some kind of deposit found in soft tissue which makes people look fat. It has been mentioned on the forum a lot, and it is worth researching. I'm not sure what can be done to get rid of it.
Ferritin, folate,B12, Vit D. With a drs report also and it's draw blood. It's £120 I think.
It requires a finger-prick test if you think you can do it at home. Ask for advice from people in a new thread if you go down this route, about timing and how best to do the finger-pricking, timing and posting. If you want blood drawn by a phlebotomist that can be an expensive addition, and you can't always choose your time to do the test which you can if you prick your own fingers.
There is a 10% money-off code for medichecks tests which you can find here :
Sometimes they have special offers with higher discount codes. Note, discount codes can't be combined. To get info on their sales you need to register via email to create an account.
With regards to your potassium level, your level isn't bad and I wouldn't supplement. I would just eat more food which contains potassium.
Creatinine and GFR are related to kidney health. If you optimise your thyroid and nutrients these levels will probably improve. (Creatinine will reduce, GFR will increase)
Thanks so much yes this is the test I'm goijg to do but get someone to take my blood as I just dont want to mess the test up. Sorry I got the website wrong. This is the test I'm going to do but get someone to take my blood which is extra but it has a voucher code. I did start taking b12 but when the drs kept doing the wrong blood test I stopped as I didn't wany to get incorrect blood results from taking it .
The weigh gain is awful isn't it . I don't feel my self at all. And it's all around my tummy back area as I go to the gym my legs arms upper body all ok. Its very weird.
But when I first had vertigo I did have my Iron levels checked and they were low and they gave me a 6 week course to take that was around 18 months ago but this hasn't been rechecked.
I wrote about this in a reply to someone else today.
See where I refer to iron after the first paragraph in this reply :
It took me a long, long time to improve my iron. A six week course of iron supplements won't do anything. A month or two after you stopped your supplements you would be very low or even deficient again.
Oh thanks so much for explaining this. After I did that Vitamin test I actually went from taking 1000iug to 2500iug. And I have noticed a differance in doing so. Xx
Your Full Blood Count (FBC) shows you aren't anaemic (haemoglobin is well in range, and some other results help with diagnosing anaemia).
The results from Neutrophil count downwards are related to whether you have an infection. (You don't appear to have one. Results get high in range or over range with infection.)
I can't remember reading that the menstrual cycle affects thyroid function tests, but it would probably be worth asking in a separate question if it has affected other women.
What are you going to be tested for? Different rules apply to different tests.
So with regards the first part with stomach acid would this cause alot of digestive issues and acid reflux? Yes. Low stomach acid means the sphincter at the top of your stomach won't close tightly, so acid and pepsin (the enzyme that breaks down protein) can rise up your oesophagus. Low stomach acid makes it harder to digest proteins in the stomach, so food stays there longer. Low thyroid hormones will also slow down your gut motility, causing issues such as constipation. These low hormones also slow your metabolic rate, so you don't burn energy as fast as you should, hence weighr gain, feeling cold, brain fog etc. Thyroid hormones affect every cell in your body, so wide ranging symptoms.
It's a mine field but I've been having issues now for 2 years and it's always been put down to vestibular but I had my doubts. Or it still.could be to a degree but have this along side. So if they won't give medication how do people cope with all these symptoms 🙈🙈
First of all you need to accept you are ill, and you're not just imagining things (quite often we get fobbed off and told there's nothing wrong when there is) and that means accepting, for now, that there's a limit to what you can do, and that you will need time to rest. Rest and sleep gives your body time to 'catch up' when all your systems are running slow. You must also not get stressed by the frustrations of dealing with the nhs! Stress causes your thyroid hormones to drop further, so stay calm! Do what you can regarding your diet and supplements, and prioritise where you spend your energy. Everything else gets dropped for the time being. Focus on taking one step at a time toward, hopefully, a diagnosis and getting some meds. Be patient, it will take a while x
Hi Tinkerbell. Your description of symptoms in your post reads exactly how all my problems started. Similarly, I am right at the bottom of T4 range but my TSH has never gone above 3.35 in all the blood tests. Usually, it's around 2.5. So... no treatment.
I have an appointment with an endocrinologist (sadly only telephone) end of April and I'm going to push for testing for central hypothyroidism (problem with pituitary).
It's a battle and I'm frankly shocked at all the unnecessary suffering due to medical professionals being so uninformed or just not believing us
This group is amazingly supportive and knowledgeable. Don't know where I'd be without them!
Hi Agitator23Really. Can I ask do you have many symptoms? How long have you been trying to fight this with drs for ? I've been having tests with drs from June 23 to Jan 24 because I kept pushing for them luckily my Dr knows how much I've been struggling with Vestibular and so every time I've asked to do a blood test he's done them. The frustrating thing is only 2 of my THS has been been "normal range" the other 2 have been under.
1st T4 was 11.6 2.60 TSH(range 11.5-22.70 )
2nd was 11.1 2.62 TSH
3rd was 10.6 2.87 TSH
4th 11.6 2.46 THS
It's so frustrating as I have so many symptoms but when they say normal it's so frustrating u bet your exactly the same. And they keep saying you TSH is fine.
I've had my 2 index fingers on both hand swollen and pain full for over a year n half had xrays all came back no arthritis and had inflammation markers done came back 2.0 range was 0 - 20.0 so that said that was fine.
I had put alot down to my vestibular and having issue from my covid booster and Covid but from what I have read the booster and covid can attack the thyroid. And I've had all my issues since this.
I've paid to have a private blood test so hoping to get a better idea then.
I see people say about going to an endo I do have one quite local to me. So I think I'll look at my results and post them on here and go from there.
Oh good luck with your appointment write everything down you want to say and ask and make sure you don't end the phone call without all of it answered.
Please let me know how you get on.
How do the test for testing for central hypothyroidism (problem with pituitary)?
I know my husband came across this forum for me everyone is so lovely and soooooo helpful. It makes you feel like your being listen to doesn't it. ❤
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Do I have to stay single because I am hypothyroid
what do i do next after borderline hypothyroid results?
How do I get diagnosed with hypothyroidism?
Do I have Hashimoto? 
Could I have hypothyroidism? Please help
