hello

[Ela23el]

I have anemia B12 &float deficiency and my treatment is Cyanocobalamin, if anyone else has been taking this treatment for some time, please tell me what the results are, for example, what do you notice changed in you, have you gained weight,i don’t know

[SlowDragon Administrator]

welcome to the forum

Are you also diagnosed as hypothyroid or do you suspect that you might be hypo

Low vitamin levels are common as a result of being hypothyroid

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and (if on levothyroxine) …last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

[Ela23el in reply to SlowDragon]

the doctor didn't say my diagnosis, but I think I have B12 deficiency anemia, I don't have hypothyroid, but I lost a few kg and I can't gain weight right away, what can I do?

[SlowDragon Administrator in reply to Ela23el]

You need

A) testing for coeliac disease

B) get all four vitamins tested and improve to good levels by supplementing

C) test thyroid including thyroid antibodies

D) are you vegetarian or vegan. If so low B12 and low ferritin are linked to diet

If not vegetarian or vegan you need testing for Pernicious Anaemia too

[helvella Administrator]

I urge you to visit the Pernicious Anaemia society forum, here: healthunlocked.com/pasoc

Are you taking cyanocobalamin orally or getting injections?

Why are you not treating folate deficiency?

[Ela23el in reply to helvella]

I take cyanocobalamin orally, I also have B12 and folate

[samaja]

If you are on Facebook join the B12 Deficency/Pernicious Anaemia Support group which should be able to answer all your questions.

[Ela23el]

thanks